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Last Updated: 11/20/2017
 

 Disability Information - Cancer

 

General Information

Education & Classroom Accommodations

Michigan Resources, Support Groups, Listservs & Websites

National Resources & Websites

Articles Related to this Disability

Medical Information

Books & Videos

Personal Home Pages & Websites

 

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 General Information

Cancer is defined as any malignant growth or tumor caused by abnormal and uncontrolled cell division; it may spread to other parts of the body through the lymphatic system or the blood stream.
 

Visit http://www.cancer.org for information.

 

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 Education & Classroom Accommodations

Children With Cancer May Need Special Education
from http://www.mydr.com.au/default.asp?Article=3936
One-quarter of children who survive cancer need special education for learning difficulties, US research shows. Children with cancer should therefore be followed closely to identify early signs of learning difficulties, researchers suggested (Cancer 2003; 97: 1115-26). Data obtained from 12,430 children who survived cancer for at least 5 years showed that those diagnosed under the age of 6 years were most likely to need special education. Those who had central nervous system tumors, leukemia, Hodgkin's disease (a malignant tumor of the lymph nodes), intrathecal methotrexate (a chemotherapy medication injected into the fluid that bathes the brain and spinal cord), or radiation therapy to the head also had special educational needs, the researchers wrote.

 

Hidden Disabilities
Among the vast range of disabling conditions which are not usually visible or readily detectable to the casual onlooker are seizure disorders and other problems related to brain injury or neurological dysfunction; cardiovascular diseases; muscular-skeletal problems (from arthritis to back injury); respiratory disease or dysfunction (such as asthma and chemical or environmental allergies); systemic diseases or dysfunctions (such as lupus, diabetes, cancer, etc.); and learning disabilities. Some students with hidden disabilities must cope daily with constant severe pain, a high level of fatigue, or medications, which may affect classroom performance. Because needs will differ widely, adaptations should be made in close consultation with the student. Specific information follows on the most common hidden handicap, a learning disability.
 

Students With Cancer

from http://www.acor.org/ped-onc/cfissues/backtoschool/iep.html
Students with cancer are covered by these laws under the category "Other Health Impaired" or OHI, since they have medical problems which adversely affect their educational performance. OHI includes medical conditions which affect strength, energy, or alertness. To provide for the special education needs of the disabled or health impaired, an Individualized Educational Plan (IEP) must be developed for each child. The IEP establishes which special services the child needs and how those needs will be met. For children who may not meet the specific eligibility criteria for services under IDEA, section 504 of the Rehabilitation Act prohibits discrimination against handicapped individuals. Section 504 requires schools to make reasonable accommodations to ensure full access to educational programs for any child with cancer. According to the Cancervive pamphlet, the Americans with Disabilities Act (ADA), passed in 1990, further extends the rights for full-inclusion, and may help in supporting a specific plan for a child with cancer.
 

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 Michigan Resources, Support Groups, Listservs & Websites

The American Cancer Society Great Lakes Division has 22 regional offices in Michigan: www.gl.cancer.org

 

Camp Casey: A Horse Camp for Very Special Kids (Haslett, MI) - At Camp Casey, families affected by cancer are able to enjoy a beautiful, peaceful setting as they participate in a variety of unique experiences. By interacting with horses - and each other - and by bringing families together, children are able to apply the courage learned at camp to their fight against cancer.

 

Michigan Cares (U of M, Mott, Ann Arbor): http://www.med.umich.edu/mott/newsletter/spring04/p04.html

Children's Hospital of Detroit: http://www.chmkids.org/chm/

 

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 National Resources & Websites

Histiocytosis Association of America Dictionary - A medical dictionary with emphasis on hematology and oncology terms and medications.

 

Candlelighters Childhood Cancer Foundation

Web: www.candlelighters.org

Email: info@candlelighters.org
Toll Free: 800-366-2223

Provides information about childhood cancer, including leukemia, bone marrow transplants, and educating the child about cancer. Information is available by phone, mail, or on website. Facilitates support groups for parents.

 

Kids Kicking Cancer was founded by Rabbi/Professor Elimelech Goldberg, who is both a black belt in the martial arts and a father who lost his first child to cancer in 1983. He is also a Clinical Asst. Professor in the Department of Pediatrics at Wayne State University Medical School. “Rabbi G” (as he is fondly called by his students) created the Kids Kicking Cancer program after serving for 12 years as the Director of a New York based summer camp for children with cancer. His experience in the martial arts, as a spiritual leader and as a parent who can identify with other parents facing serious disease, has provided him with remarkable insight into issues facing children and families with a diagnosis of cancer. Rabbi Goldberg was joined in 2001 by Dr. Susan Gardin, a public health specialist with clinical degrees in pediatric physical therapy and health education from U.C.L.A., U S.C. and Stanford University. As the National Program Director, Dr. Gardin is intimately involved with program management and development.

 

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 Articles Related to this Disability

Kids Who Survive Cancer Bounce Back - Study finds children often are just as happy and well-adjusted as those who never had the illness.

 

Immune Cells Used to Stop Severe Cancer - New Approach Brings Success to an Old Idea.

 

Leap of Faith: Cancer Survivors Sky-Diving Team - "We love the interaction after a dive, and the kids are absolutely amazed to see cancer survivors skydive into their camp and share the joy of interaction with us.  This team is about far more than just skydiving.  We are a way of life and a belief that cancer cannot compare to the power that we possess inside each of us."

 

Rosetta Stone Explains Rett Syndrome - Rett Syndrome (RS), a neurological orphan disease of children that was long relegated to obscure articles and the fervent concern of parents, might soon be adopted into a family of higher-profile neurologic disorders.

 

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 Medical Information

Visit the Burzynski Clinic at http://www.cancermed.com and http://www.burzsynskiclinic.com.

 

About Cancer in Children from The American Cancer Society: http://www.cancer.org/docroot/CRI/CRI_2x.asp?sitearea=&dt=7

Childhood Cancer from Cancer.gov: http://www.cancer.gov/cancerinformation/cancertype/childhood/

 

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 Books & Videos

 

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 Personal Home Pages & Websites

 

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