With its lighthearted, colorful
illustrations, this book helps children see that having celiac disease
is not so scary after all. Emily acknowledges that having celiac
disease is sometimes tough, but talking about her feelings with her
mom always makes her feel better.
The prevalence of celiac disease in the
general population was believed to be 1 in 300, but recent evidence
suggests that there are more undiagnosed than diagnosed cases. Our
assumption is that if you look at symptomatic populations with
gastrointestinal symptoms or autoimmune disease, then incidence will
be much higher.
The classic presentation of Celiac Disease is chronic diarrhea, with
abdominal bloating, sometimes pain, weight loss, iron deficiency and
other evidence of nutrient malabsorption. The disease is immune
mediated. Proteins in the cereal grains are responsible for the
disease. The suspect group of proteins are called "Gluten". Since a
strict gluten-free diet is protective against the complications of
adult celiac disease, it is important that the undiagnosed forms of
celiac disease or "wheat allergy" are diagnosed and treated.
Screening tests, such as anti-gliadin and anti-endomysium antibody
estimation can be used in groups considered to be at risk of celiac
disease. These include first-degree relatives of celiac patients and
patients with irritable bowel syndrome, arthritis, diabetes mellitus,
iron-deficiency anemia, epilepsy with cerebral calcification,
recurrent aphthous stomatitis and dental enamel hypoplasia.
Celiac Disease - An Introduction
http://www.nutramed.com/celiac/celiacintro.htm The classic presentation of Celiac Disease is chronic diarrhea,
with abdominal bloating, sometimes pain, weight loss, iron deficiency
and other evidence of nutrient malabsorption. The disease is immune
mediated. Proteins in the cereal grains are responsible for the
disease. The suspect group of proteins are called "Gluten".
Mental Symptoms of "Wheat Allergy" (Celiac Disease) by Sheryl Tingley
http://www.alternativementalhealth.com/articles/wheat.htm Although often referred to as "wheat allergy," Celiac Disease
(also called Celiac Sprue) is not an "allergy" but rather an
intolerance to the protein in gluten, a substance found in wheat and
other grains. It actually harms (destroys) the villi (miniscule
"fingers" that make up the intestinal lining) in the small intestine
that take in nourishment. The mental disorders that Celiac brings to a
child and adult is due to the malnutrition caused by the damage to the
small intestine.
Celiac Disease Your Family Doctor
http://familydoctor.org/handouts/236.html Celiac disease is a disorder that causes problems in your
intestines when you eat gluten, which is in wheat, rye, barley and
oats. Gluten is like a poison to people with celiac disease, because
it damages their intestines.
Celiac Disease and Gluten Sensitivity By Carol E. Semrad, M. D.
http://cpmcnet.columbia.edu/dept/gi/celiac.html Celiac disease, also referred to as celiac sprue, is an
inflammatory condition of the small intestine precipitated by the
ingestion of wheat in individuals with certain genetic makeups. The
onset of illness most commonly occurs around age two, after wheat has
been introduced into the diet, and in early adult life (third and
fourth decades). However celiac disease can begin anytime in life. In
susceptible individuals, the wheat protein gluten triggers an
inflammatory reaction in the small bowel which results in a decrease
in the amount of surface area available for nutrient and fluid and
electrolyte absorption.
Celiac Disease American Academy of Family Physicians
http://familydoctor.org/handouts/236.html Celiac disease is a disorder that causes problems in your
intestines when you eat gluten, which is in wheat, rye, barley and
oats. Gluten is like a poison to people with celiac disease, because
it damages their intestines.
Celiac Disease Mayo Foundation for Medical Education and Research
http://www.mayoclinic.com/invoke.cfm?id=DS00319 Celiac disease is a digestive condition triggered by consumption
of the protein gluten, which is found in bread, pasta, cookies, pizza
crust and other foods containing wheat, barley or rye. Oats may
contain gluten as well. When someone with celiac disease eats foods
containing gluten, an immune reaction occurs in the small intestine,
resulting in damage to the surface of the small intestine and an
inability to absorb certain nutrients from food.
Welcome to Club Celiac http://www.clubceliac.com/ Club Celiac is a great place for children with Celiac Sprue to
trade helpful hints, recipes and/or simply to just have fun chatting
with each other. Please come in, the door is always open.
Celiac Disease Study Guide
http://www.nutramed.com/celiac/celiacallergy.htm Immune responses to gluten, the proteins found in cereal grains
are a common cause of disease. The gastrointestinal tract is the
primary target organ; however systemic disease is an important
consequence of cereal grain ingestion in many patients. We think that
the people diagnosed with celiac disease are a sub-population of a
much larger group with gluten allergy.
Celiac Disease: The Diagnosis Celiac Sprue Association
http://www.csaceliacs.org/diagnosis.html Although there may be many clinical signs and laboratory tests
indicating probable malabsorption, the likely blue-chip means of
diagnosing celiac sprue remains to be the small intestine [jejunal]
biopsy. In this test, a small flexible tube is passed down the throat,
into the stomach, through the duodenum and out into a specific area of
the small intestine. At the end of this tube is a metal capsule
housing a small cylindrical knife. Suction is applied through the tube
and the minute pieces of the small intestine are cut off by moving the
cylindrical knife through the capsule. The tube is removed and the
tissue samples are examined under a microscope for evaluation and the
critical signs for the diagnosis.
Celiac Disease: A Guide for Children and Their Families North American Society for Pediatric Gastroenterology and
Nutrition
http://www.naspgn.org/sub/celiac_disease.asp In 250 A.D., Galen, a Roman physician, described childhood and
adult celiac disease. In 1888, Samuel Gee described celiac disease in
Britain and the role of diet in its control. Dicke in the Netherlands
during 1950 suggested that certain dietary cereal grains were harmful
to children with celiac disease. He also noted that persons previously
diagnosed with celiac disease improved during World War II when grain
products were in short supply. When grains became more plentiful after
the war, the incidence of celiac disease returned to its pre-war
levels. In 1954, Paulley first described the intestinal lesion, villus
atrophy, in patients with celiac disease. Cyrus L. Rubin and
co-workers in the United States demonstrated in 1958 that celiac
disease in children and adults were identical disorders. In the
1980's, Michael Marsh and co- workers in Manchester, England,
emphasized the role of the immune system in causing intestinal injury
in celiac disease.
Celiac Disease in Children
http://www.e-celiacs.org/2-Celiac_Disease_in_Children.htm The symptoms of celiac disease in children typically become
apparent three to five months after first consuming gluten- containing
foods although for some few cases, the interval may be as short as one
month. Several of the experts on infant feeding advise that solid
foods should not be introduced to a baby’s diet until nearly five
months old and that gluten-containing cereal should be avoided for the
first six months of life.
CELIAC DISEASE
http://www.icondata.com/health/pedbase/files/CELIACDI.HTM A malabsorptive disorder characterized by a permanent
gluten-sensitive enteropathy resulting in malabsorption, failure to
thrive, and gastrointestinal manifestations.
Coping with Celiac Disease American School Food Service Association
http://www.asfsa.org/newsroom/sfsnews/esceliac.asp It's hard enough to prepare menus and meals for one child who is
allergic to a specific food. But when you're serving hundreds of
students daily, it can be a real challenge. And, although it's
relatively easy to cut peanuts or peanut butter out of a diet, or even
eggs or milk out of a child's diet, what happens when he or she has an
allergy to food that serves as an ingredient for literally thousands
of other foods?
CD Prevalence Study for the USA by Michael Jones, Bill Elkus, Jim Lyles, and Lisa Lewis
http://www.enabling.org/ia/celiac/cdstudy.html How can Celiacs in the U.S. get the necessary attention of the
medical, business and governmental communities we so desperately seek?
A few short years ago many European countries were experiencing the
same frustrations. Today, things are dramatically better. Most have
Gluten-Free products readily available; doctors are knowledgeably
looking for Celiac Disease in patients; school children are being
tested for CD when they first enroll in school; McDonald's sells
Gluten-free Big-Macs.
Prevalence & Diagnosis
http://www.nutramed.com/celiac/celiac_diagnosis.htm The prevalence of celiac disease in the general population was
believed to be 1 in 300, but recent evidence suggests that there are
more undiagnosed than diagnosed cases. Our assumption is that if you
look at symptomatic populations with gastrointestinal symptoms or
autoimmune disease, then incidence will be much higher.
Celiac Disease Calgary Health Region
http://www.crha-health.ab.ca/schoolhealth/celiac.htm Celiac disease is a disorder of the small intestine resulting from
a sensitivity to gluten which is a protein found in wheat, barley, rye
and possibly oats. Ingestion of gluten in susceptible individuals
leads to an allergic inflammatory reaction and the destruction of fine
structures of the lining of the small intestine and consequent
malabsorption of nutrients. In North America, it is estimated that
approximately one in every 3,000 children will develop gluten
sensitivity.
CELIAC DISEASE alternative-medicine-and-health, llc
http://alternative-medicine-and-health.com/conditions/celiac.htm CELIAC DISEASE, also known as celiac spruce and nontropical
spruce, is a congenital, hereditary sensitivity to gluten, the protein
found in wheat and other grains. It's an interesting disorder. When I
was in medical school, celiac disease was considered rare; I don't
know that I ever expected to diagnose a case of it in my practice. But
over the years, I've encountered many cases of celiac disease, and I
suspect that it has been considered rare because it's difficult to
diagnose and is often overlooked.
What is Celiac Disease? The University of Chicago
http://gi.bsd.uchicago.edu/diseases/nutritional/celiac_disease.html Celiac disease is a digestive disease that damages the small
intestine and interferes with absorption of nutrients from food.
People who have celiac disease cannot tolerate a protein called
gluten, which is found in wheat, rye, barley, and possibly oats. When
people with celiac disease eat foods containing gluten, their immune
system responds by damaging the small intestine. Specifically, tiny
fingerlike protrusions, called villi, on the lining of the small
intestine are lost. Nutrients from food are absorbed into the
bloodstream through these villi. Without villi, a person becomes
malnourished--regardless of the quantity of food eaten.
Helping the Celiac Child Cope With the Gluten-Free Diet
http://www.celiac.edmonton.ab.ca/childcoping.html Your job as the parent of a celiac takes on an exaggerated role in
coaching, teaching, creativity, strength and support far beyond the
responsibilities of other parents. Your child (or you) have no other
choice. TO STAY HEALTHY, THEY MUST EAT GLUTEN FREE, ALL THE TIME.
Teach you child this fact.
KidCeliac
http://www.kidceliac.us/main.htm This page has been created to help those of us who have children
with celiac. We will try to keep this page up to date with the most
current links and information. Future updates will include a more
comprehensive list of restaurants, party ideas and some helpful links
for travel. If there is something you would like to contribute, please
let me know.
Celiac Disease, Gluten & Cereal Grains
http://www.nutramed.com/celiac/ Immune responses to gluten, the proteins found in cereal grains
are a common cause of disease. In celiac disease the gastrointestinal
tract is the primary target organ; however systemic disease is an
important consequence of cereal grain ingestion in many patients. We
think that the people diagnosed with celiac disease are a
sub-population of a much larger group with gluten allergy.
Celiac Disease Rescue with the Alpha Nutrition Program
http://www.nutramed.com/celiac/alphaceliac.htm The Alpha Nutrition diet revision program is gluten free and is
designed to discover a new diet that reduces immediate symptoms and
reduces the long-term risk of the disease progressing. The first phase
of the Alpha Nutrition Program is an attempt to clear symptoms. This
is home science.
Rosemary’s Gluten-Free Web Pages
http://melba.vu.edu.au/~rhh/ These pages contain information on gluten-free food in Australia,
primarily Melbourne and Victoria, and links to other Coeliac and
gluten-free sites. If you have coeliac disease it is highly
recommended that you join your local coeliac society as they can
provide assistance with your diet, gluten-free foods and someone to
talk to who understands.
Understanding and Implementing a Gluten & Casein Free Diet Lisa S. Lewis, Ph.D.
http://www.princeton.edu/~serge/ll/gfpak.html In the five years since my son was diagnosed with autism, I have
spent hundreds of hours in libraries, and connected to computerized
databases and networks. Because I worked at a university, I had access
to these resources, and the training and experience to use them.
Through these media, as well as connection to the Internet I was able
to gather together a great deal of information.
Basics for the Gluten-Free Diet Celiac Sprue Association
http://www.csaceliacs.org/basics.html The following guide for interpreting the clinical diet is based on
the grains, chemical and natural or artificial ingredients found to
induce an immune response or create discomfort for celiac and
dermatitis herpetiformis patients. This is a tool for celiacs,
dietitians and physicians to use in outlining a personalized diet.
Grains and Flours Celiac Sprue Association
http://www.csaceliacs.org/grainsflours.html Grains and Flours is intended to be an aid in choosing and
enjoying gluten-free foods. There is no worldwide consensus on the
permissible level of gluten, if any, in a gluten-free diet. Current
research shows that WHEAT, BARLEY, RYE and perhaps OATS contain gluten
that evokes an immune response in people with celiac disease and
dermatitis herpetiformis.
Celiac Disease: Nutrition and Cookbook Reviews Mayo Foundation for Medical Education and Research
http://www.mayoclinic.com/invoke.cfm?id=NU00180 Mayo Clinic dietitians continually review nutrition books and
cookbooks for people with celiac disease. The following books, listed
in alphabetical order, are recommended as particularly good sources of
healthy recipes and nutrition information.
Sully’s Living Without www.livingwithout.com Living Without is a lifestyle guide for people with allergies and
food sensitivities. It discusses a wide variety of health issues
including allergies, food sensitivities, multiple chemical
sensitivities, wheat intolerance, gluten intolerance, lactose
intolerance, dairy allergies, eating disorders, asthma, diabetes,
dermatitis, gastroenterology-related disorders, diets that heal,
celiac disease, anaphylaxis and the common allergens of egg, dairy,
wheat, peanuts, tree nuts, shellfish, fish, corn, soy and gluten.
Whether it be an allergy, an intolerance or a sensitivity, we provide
the solutions for living well, living without.
Helping the Celiac Child Cope With the
Gluten-Free Diet AT SCHOOL
http://www.celiac.edmonton.ab.ca/childcoping.html#school Start by sitting down with the teacher before the beginning of the
school year. Give the teacher some literature about Celiac Disease
(The CCA prints a brochure for teachers), along with a comprehensive
list of foods/ingredients that your child must avoid.
Celiac Support Groups in Michigan
http://www.enabling.org/ia/celiac/groups/grpus-mi.html A celiac's lifestyle is considerably easier with the help of a
local support group. To assist in the process of finding local
support, we have provided a series of files listing all of the celiac
support groups that we are aware of. For each group one or more
addresses and/or phone numbers are listed. When possible, e-mail
addresses are also listed. A very lax definition of support groups is
used in these listings; any group that meets regularly for mutual
support in handling celiac disease and the gluten-free diet is
included in these listings. When a formal group is not available but
someone is willing to function as a focal point, he/she is included as
a "Resource Unit".
Tri-County Celiac Support Group
http://www.tccsg.com/ The Tri-County Celiac Support Group (TCCSG) is a 501.c.3
non-profit organization supported by all volunteers and serves
Southeastern Michigan. TCCSG was formed to assist and support those
with celiac disease or dermatitis herpetiformis adjust and live on a
gluten-free diet, the only known treatment of celiac disease.
2003 – 2004 (Listed by County)Great
Lakes Gluten Free Discussion List
http://www.gluten-free.net/glgf Great Lakes Gluten Free (GLGF) is a FREE e-mail discussion list
for people in the Great Lakes area who follow a wheat-free,
gluten-free, and/or casein-free diet as a result of medical conditions
such as celiac disease, autism, or wheat allergy. The list is open to
all, but focuses on news and information relevant to people who live
in Illinois, Indiana, Iowa, Ohio, Ontario, Western New York,
Pennsylvania, Michigan, Minnesota, Missouri, and Wisconsin.
Celiac Sprue Association - USA www.csaceliacs.org The Celiac Sprue Association/United States of America, Inc. has
constructed this site for celiacs, their families and professionals
interested in celiac disease [CD] [nontropical sprue], dermatitis
herpetiformis [DH], and the gluten-free diet.
Connecticut Celiac Information http://connceliac.tripod.com Celiac disease is an inherited autoimmune condition. When people with
celiac disease eat anything containing gluten, a protein found in
wheat, rye, barley and possibly oats, they form antibodies which then
attack their intestines. The result is malnutrition, often resulting
in complications such as osteoporosis, anemia, infertility or
lymphoma. Symptoms are varied, but often include diarrhea, bloating,
abdominal pain, and poor growth in children. The treament for celiac
disease is strict adherence to a gluten free diet for life. While
initially, this lifestyle change can seem daunting and overwhelming,
it allows for a completely healthy life. With a little creativity, the
diet can be varied and delicious.
Gluten Free Exchange www.gfexchange.com Welcome to the Gluten Free Exchange. I hope you will find this site
useful and informative.
Raising our Celiac Kids (R.O.C.K.) www.celiackids.com Welcome to CeliacKids.com by Danna Korn, founder of R.O.C.K. - Raising
Our Celiac Kids, a support group for kids and their parents, and
author of "Kids with Celiac Disease: A Family Guide to Raising Happy,
Healthy Gluten-Free Children."
Celiac Disease Foundation http://www.celiac.org CDF provides support, information and assistance to people affected by
Celiac Disease/Dermatitis Herpetiformis (CD/DH).
Celiac.com - The Celiac Disease and Gluten-free Diet Support Page http://www.celiac.com/ Celiac.com - The Celiac Disease and Gluten-free Diet Support Page
provides important resources and information for people on gluten-free
diets due to celiac disease, gluten intolerance, dermatitis
herpetiformis, wheat allergy, or other health reasons. Celiac.com
offers key gluten and wheat-free on-line resources that are helpful to
anyone with special dietary needs. Our purpose is to raise the
awareness of the disease, and to provide people who have it with
enough information to get diagnosed and treated so that they can begin
to lead more comfortable and healthy lives.
North American Society for Pediatric Gastroenterology and Nutrition http://www.naspgn.org/ The mission of the North American Society for Pediatric
Gastroenterology, Hepatology, and Nutrition is to be a world leader in
advancing the science and clinical practice of Pediatric
Gastroenterology, Hepatology and Nutrition in health and disease.
Friends of Celiac Disease Research, Inc. http://www.friendsofceliac.com/ Friends of Celiac Disease Research, Inc. is a non-profit charitable
corporation devoted to assisting people with celiac disease and
dermatitis herpetiformis (CD/DH), primarily by supporting the efforts
in research and education of celiac disease.
University of Maryland School of Medicine Center for Celiac Research http://www.celiaccenter.org/ The paramount goal of the Center for Celiac Research is to increase
the awareness of celiac disease in order to provide better care,
better quality of life, and more adequate support for the celiac
disease community.
Gluten Intolerance Group http://gluten.net/or http://www.gluten.net/ Medical information provided on this site has been prepared by Cynthia
Kupper, RD, CD (GIG® Executive Director), and reviewed by GIG®'s
Medical Advisor Board for accuracy. Information contained on this site
should only be used with the advise of your physician or health care
professional.
University of Chicago Celiac Disease Program 1-888-824-0200
Links of Interest: Celiac Disease http://www.sharperdesigns.com/celiaclinks.html Includes support groups and vendors in the USA, Canada, and the UK, as
well as a listing of Food companies.
Gluten-Free Market
Goes Mainstream - For about 2 million
Americans, the bread basket used to be filled with a tasteless,
brick-like loaf that crumbled when sliced. That was the bleak world of
food Bernie Mansbach found 25 years ago when he was diagnosed with
celiac disease, or an intolerance to a wheat protein called gluten.
Celiac: Is Wheat Making You Sick? - A very common disease is starting to
get some much-needed attention -- celiac disease, also known as wheat-gluten
intolerance, which is a digestive disorder. Millions of people have it, but
don't know it, in part because they are reluctant to talk about certain health
issues -- bowel functions ranking near the top.
Celiac Disease:
Symptoms, Diagnosis - Celiac disease, also referred to as gluten
sensitive enteropathy, gluten intolerance or celiac sprue, is hereditary. The
digestive disease, triggered by wheat, rye and barley, damages the intestines
and interferes with nutrient absorption.
What is Celiac Disease? Mayo Clinic http://www.mayoclinic.com/invoke.cfm?id=DS00319 Celiac disease is a digestive condition triggered by consumption of
the protein gluten, which is found in bread, pasta, cookies, pizza
crust and other foods containing wheat, barley or rye. Oats may
contain gluten as well. When someone with celiac disease eats foods
containing gluten, an immune reaction occurs in the small intestine,
resulting in damage to the surface of the small intestine and an
inability to absorb certain nutrients from food.
Celiacs, Dairy Products and ELISA Testing By Ron Hoggan http://www.gluten-free.org/hoggan/elisa.txt Few celiac and DH patients need to be told of the dramatic impact food
can have on our wellness. Yet in our preoccupation with gluten we may
overlook the importance of other dietary sensitivities. One report of
patients with dermatitis herpetiformis indicated that regardless of
compliance with a gluten-free diet, a large portion of DH patients
continued to demonstrate antibodies against proteins found in cow's
milk (1). Another report indicated that about half of untreated
celiacs mount an immune response to one or more of the proteins in
milk (2).
Celiac Disease and Down Syndrome by Dr. Len Leshin, MD, FAAP http://www.ds-health.com/celiac.htm The small bowel has many roles, one of which is to absorb nutrients
from our food. Celiac disease (CD) arises when the lining of the small
bowel becomes damaged from exposure to gluten, the protein found in
oats, barley, rye and wheat. The small bowel becomes unable to absorb
water and nutrients, causing a number of different symptoms.
Researchers Recommend Testing Diabetic Children for Celiac Disease HealthLink http://healthlink.mcw.edu/article/1009402816.html As a result of their recent study, published in the Journal of
Pediatric Gastroenterology in October, a group of Medical College of
Wisconsin researchers are recommending that children with
insulin-dependent diabetes mellitus (IDDM) be tested for celiac
disease (CD).
UNIVERSITY OF MARYLAND STUDY SHOWS CELIAC DISEASE IS MORE PREVALENT IN
U.S. THAN PREVIOUSLY THOUGHT http://www.umm.edu/news/releases/celiac_study.html Although serious conditions ranging from diabetes, anemia, short
stature, infertility, Down syndrome and diarrhea can all be associated
with celiac disease, few people in the U.S. have heard of it. A new,
multi-center study led by the University of Maryland Center for Celiac
Research in Baltimore finds that celiac disease is much more common in
this country than previously thought.
An Ailment's Common Grain By David Brown, Washington Post Staff Writer http://www.washingtonpost.com/ac2/wp-dyn?pagename=article&node=&contentId=A54126-2003Feb10¬Found=true By the time Alyson and Joshua Weinberg found out what was wrong with
their daughter Josie, the toddler was too weak to walk across the
room. She had sunken cheeks and a swollen belly, and she was vomiting
frequently. She was clingy and scared, and her parents were petrified.
No one in an office full of pediatricians in Montgomery County
recognized what was wrong with her.
Celiac disease is far more common than thought The University of Chicago Medical Center, Office of Public Affairs http://www.uchospitals.edu/news/2003/20030210-celiac.html A massive, multi-center study has found that celiac disease is much
more common in the United States than previously believed. The study,
published in the 10 February 2003 issue of the Archives of Internal
Medicine, found that one out of every 133 Americans has celiac
disease. Since only about one out of 4,700 Americans has been
diagnosed, this means that 97 percent of cases in this country go
undetected.
Testing for Celiac Disease May Soon Be on the Rise By Nell Boyce, CLINICAL LABORATORY NEWS http://usuarios.arnet.com.ar/ricardovald/testcel.htm Imagine what it wouId be líke to have severe diarrhea every day for a
year, imagine how it would affect your work, your family, your
friendships, and your health. Unfortunately, scenarios like this one
have been all too real for people living with undiagnosed celiac
disease, a chronic sensitivity to proteins found in wheat and cereal
that damages the small intestine. Although physicians in Europe know
that celiac disease affects approximately one in 400 Caucasians,
physicians in the United States believe that celiac is uncommon and
they usually don't think to test for such a "rare" disorder. But new
antibody tests for celiac have recently made screening easier, and
American researchers have just initiated a multicenter trial to
determine how many people are affected in this country. Experts
predict that when physicians realize the true prevalence of celiac,
labs will see an unprecedented interest in screening for this disease.
STANFORD RESEARCHERS FIND CAUSE, POSSIBLE CURE FOR GLUTEN INTOLERANCE Stanford University Medical Center http://www-med.stanford.edu/center/communications/news_releases_html/2002/sepreleases/gluten.html A team of investigators led by Stanford University researchers have
discovered the cause and a potential treatment for celiac sprue, an
autoimmune disease that leads to an inability to digest gluten, a
major protein in wheat, rye and barley products. The disease is
estimated to afflict as many as 1 in 200 Americans.
Celiac Disease: Then and Now Richard J. Grand, M.D., Pediatric Gastroenterologist, Chief, Division
of Gastroenterology and Nutrition
The Floating Hospital for Children, New England Medical Center and
Department of Pediatrics
Division of Gastroenterology, Tufts University School of Medicine http://www.csaceliacs.org/thennow.html The challenge of living with celiac sprue is not trivial. A lot of
people say, "Well, what's the big deal. You just get on the
gluten-free diet, and you are cured." But eating gluten-free is not
simple, so that is the challenge. The good news, of course, is that
the complications of celiac disease can be avoided by careful
adherence to a self-managed gluten-free diet.
Susan's Story: A Mother's Struggle to Find the True Cause of Her
Daughter's Illness By Susan Blumenfeld http://www.uchospitals.edu/areas/pediatrics/celiac-disease/pt-story.html The week of my 35th birthday, my daughter Julie lay dying on a
hospital gurney, waiting to receive general anesthesia. Not even two
years old, Julie was very familiar with hospitals and tests. She was
about to have an MRI to find out why she had lost so much weight,
stopped walking, continued to vomit and pass stools that looked like
undigested food. It was hard to believe that only six months ago she
was a happy and healthy baby, with pudgy cheeks and lots of energy.
Now, she could barely hold her head up, and inside I was screaming,
because there was nothing I could do to make it stop.
Perils in the Parlor Friends Don’t Let Friends Eat Gluten: A Love Story By Beth Hillson http://www.glutenfree.com/files/perils-winter02.pdf “H because of this crazy gluten-free diet,” wailed a young woman who
was just diagnosed with celiac disease.My teenage son (also a celiac)
has expressed a similar sentiment. He would rather starve than eat a
hamburger without the roll in front of his friends or raise an
objection when his friends select glutenfilled party food. He’d go
hungry before he would mention what he can’t eat.
Celiac disease requires eliminating gluten from diet B Barbara Beznos, iCan News Service, columnist http://www.icanonline.net/news/fullpage.cfm/articleid/F0B813E1-54B7-4FCF-831961EE2294518A/cx/health.stay_healthy/article.cfm Once the mystery is solved and celiac disease is diagnosed, those
signs of gluten intolerance come through your body, loud and clear.
You probably have asked yourself, “How can a grain become a foreign
substance that creates so many sensitivities and serious problems
within the body?” One important piece of information to keep in mind
is if your digestion is affected, then absorption is not taking place,
and elimination is going to consume your time and thoughts. You will
not feel well, nor will you be nourished.
Recipes help those with gluten allergy Lansing State Journal http://www.lsj.com/columnists/geissler/011001_read_3d.html Living with a food allergy or intolerance can be challenging.
Carefully checking ingredient lists, eliminating foods you may love
and seeking out acceptable recipes becomes a way of life.
Pill camera reveals the inside story BBC News http://news.bbc.co.uk/2/hi/health/2319249.stm A patient has swallowed a pill-sized camera to give doctors a better
picture of her insides. The camera, which is just slightly bigger than
a normal pill, should help doctors diagnose the stomach problems she
has been suffering for over two years.
Gastroenterologist
Locator Service American Gastroenterological Association http://www.gastro.org/ypages/disclaim1.html The AGA Gastroenterologist Locator Service, a listing of AGA member
gastroenterologists, is intended for use by the public to assist in
locating a gastroenterologist within a specific state. All data is
self-reported and is not intended for use by organizations requiring
credentialing verification. The AGA does not warrant the accuracy,
completeness, timeliness, or appropriateness for a particular purpose
of the information contained in the Gastroenterologist Locator
Service. The AGA does not endorse the individuals listed in the
service, nor does AGA verify medical qualifications, licenses,
practice areas or suitability of those listed. In no event shall the
AGA be liable to you or anyone else for any decision made or action
taken by you based upon the information provided in the service.
Detecting Celiac Disease in Your Patients HAROLD T. PRUESSNER, M.D., University of Texas Medical School at
Houston http://www.aafp.org/afp/980301ap/pruessn.html Celiac disease is a genetic, immunologically mediated small bowel
enteropathy that causes malabsorption. The immune inflammatory
response to gluten frequently causes damage to many other tissues of
the body. The condition is frequently underdiagnosed because of its
protean presentations.
Biopsies, Serological and other Noninvasive Screening for Celiac
Disease http://www.enabling.org/ia/celiac/diag-tst.html This is a discussion of biopsies, serological and other noninvasive
screening for Celiac Disease. Besides an explanation of the procedures
used in testing for and monitoring CD, a series of questions and
answers with several noted medical experts will give an understanding
of the medical steps. It is important to remember that diagnosis
requires that the person be on a gluten containing diet.
Celiac Disease — How to Handle a Clinical Chameleon Alessio Fasano, M.D. http://www.celiaccenter.org/Articles/NEJMEditorial.pdf Celiac disease is an immune-mediated enteropathy triggered by the
ingestion of gluten-containing grains (including wheat, rye, and
barley) in genetically susceptible persons. The disease is associated
with HLA-DQ2 in 90 to 95 percent of cases and with HLA-DQ8 in 5 to 10
percent of cases and is self-perpetuating in the continued presence of
gluten.
Drug Information Guide Celiac Sprue Association http://www.csaceliacs.org/pharmaceuticals.html Recognizing the sensitivity of celiacs to gluten, many drug companies
are now excluding wheat starch and other gluten-containing materials
from their products—especially from their non-vitamin containing
products which includes prescription and nonprescription products.
Gluten, however, can also find its way into vitamin products which may
contain wheat germ oil, wheat bran, or other forms of wheat extract.
Celiac and dermatitis herpetiformis patients who use vitamins must be
especially cautious if they are to avoid gluten and will need to work
closely with their physician and pharmacist team in selecting such
products for their use.
Treatment of Celiac Disease Celiac Sprue Association http://www.csaceliacs.org/treatment.html The present known treatment for celiac disease is both simple and
complex. All that is required is lifelong, scrupulous avoidance of
gluten, specifically, the gliadin fraction of gluten found in selected
grains (especially in wheat, barley, rye and oats). The gluten-free
diet is essential for persons with diagnosed conditions of celiac
disease and dermatitis herpetiformis.
Current Approaches to Diagnosis and Treatment of Celiac Disease: An
Evolving Spectrum ALESSIO FASANO* and CARLO CATASSI‡, *Center for Celiac Research and
Division of Pediatric Gastroenterology and Nutrition, University of
Maryland, Hospital for Children, Baltimore, Maryland; and ‡Department
of Pediatrics, University of Ancona, Ancona, Italy http://www.celiaccenter.org/Articles/celiacgastro.pdf Celiac disease (CD) is a syndrome characterized by damage of the small
intestinal mucosa caused by the gliadin fraction of wheat gluten and
similar alcohol-soluble proteins (prolamines) of barley and rye in
genetically susceptible subjects. The presence of gluten in these
subjects leads to self-perpetuating mucosal damage, whereas
elimination of gluten results in full mucosal recovery. The clinical
manifestations of CD are protean in nature and vary markedly with the
age of the patient, the duration and extent of disease, and the
presence of extraintestinal pathologic conditions.
Celiac Disease Related Disorders Gluten Intolerance Group http://gluten.net/related.asp Dermatitis herpetiformis is also present in some people with celiac
disease. Other autoimmune disorders that people with CD are at greater
risk to develop include Addison' s disease, autoimmune chronic active
hepatitis, Alopecia Areata, Graves' disease, insulin-dependent
diabetes mellitus (type 1), myasthenia gravis, scleroderma, Sjogren's
syndrome, lupus, and thyroid disease. Thyroid diseases and diabetes
are the two most commonly associated diseases found with celiac
disease. Thyroid disease is most commonly associated with DH.
Dermatitis Herpetiformis Defined Celiac Sprue Association http://www.csaceliacs.org/dermherp.html Dermatitis Herpetiformis (DH) is an important associated disorder or
complication of celiac disease. There is strong evidence that the
changes in the intestinal mucosa and the immunologic findings in the
majority of patients are identical with those found in celiac disease.
Second, gluten has been found to have a close relationship with the
skin rash which occurs with dermatitis herpetiformis. DH is often
referred to as "celiac disease of the skin" while CD is referred to as
"celiac disease of the gut."
Early effects of gliadin on enterocyte intracellular signalling
involved in intestinal barrier function. Clemente MG, De Virgiliis S, Kang JS, Macatagney R, Musu MP, Di Pierro
MR, Drago S, Congia M, Fasano A., Department of Biomedical Sciences
and Biotechnology, 2nd Pediatric Clinic, University of Cagliari,
Cagliari, Italy. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=
Friends of Celiac Research www.friendsofceliac.com Friends of Celiac Disease Research, Inc. is a non-profit charitable
corporation devoted to assisting people with celiac disease and
dermatitis herpetiformis (CD/DH), primarily by supporting the efforts
in research and education of celiac disease.
The Book of Gluten Alpha Nutrition Health Education Series http://www.nutramed.com/publishing/book_of_gluten.htm The Book of Gluten describes how eating cereal grains can cause a
spectrum of illness from ambiguous, relatively mild digestive symptoms
to more destructive and even life-threatening disease.
2VNFOXDLOW&isbn=1890627216&itm=1 Internet Book Watch: Danna Korn's Kids With Celiac Disease: A Family
Guide To Raising Happy, Healthy, Gluten-Free Children is an ideal,
"parent friendly", and practical guide for families with children and
teens afflicted with celiac disease, a genetic autoimmune condition
which causes symptoms of chronic diarrhea, irritable-bowel distress,
anemia, and bloating. Such children must have a gluten free diet. Kids
With Celiac Disease will also help families cope with post-diagnosis
transitions and show how lifestyle changes can lead to happy and
healthy lives for such children and their families. Of special value
is the guidance concerning menu planning, grocery shopping, food
preparation strategies, and whether or not it is necessary for the
entire family to have a gluten-free diet. There's even a section on
junk food! If you have a child with celiac disease, you need to sit
down and read Danna Korn's Kids With Celiac Disease from first page to
last. The result will be a much happier and healthier kid, — with a
mom or dad relieved of the stress, anxiety, and uncertainty of not
knowing how to effectively parent such a child.
2VNFOXDLOW&isbn=155369404X&itm=2 Avoiding gluten (the protein in wheat) is like walking in a minefield.
Gluten lurks in everything from soy sauce and bouillon cubes to salami
and instant coffee. This book provides essential strategies for anyone
who can't tolerate wheat or gluten due to celiac disease or for those
looking for relief from symptoms of Crohn's disease, colitis,
rheumatoid arthritis, MS, ADD, autism, eczema and psoriasis, candida,
migraines and more. Crangle covers practical issues, such as how to
organize your kitchen cupboards, ordering in restaurants, grocery
shopping, and traveling, as well as the personal, such as explaining
diet guidelines to party hosts and first dates. She guides you through
multi-ethnic cuisine and suggests many new and delicious foods and
recipes from countries where wheat is not a diet staple. Far beyond a
"poor me" coping book, Living Well with Celiac Disease: Abundance
Beyond Wheat and Gluten opens up a new world of culinary delights and
will change old notions of what it means to be on a "restricted" diet.
2VNFOXDLOW&isbn=1583331298&itm=3 Dangerous Grains turns the U.S. Food Guide Pyramid upside down by
exposing the myriad health risks posed by gluten grains (wheat, rye,
barley, spelt, kamut, and triticale). The authors, leading experts in
the field of food allergies, and celiac disease, present compelling
evidence that our grain-centered diet is to blame for a host of
chronic illnesses. Largely misunderstood and frequently misdiagnosed,
these disorders can be prevented and reversed by the useful program
outlined in this important new book.
2VNFOXDLOW&isbn=1572840455&itm=4 Celiac disease is a chronic digestive disorder caused by a sensitive
reaction to gluten. Using gluten-free flours, breads, and pastas, the
recipes here cover everything from the everyday (Chicken Kiev and
Spaghetti Bolognese) to the elegant (Rack of Lamb with Mustard Crust
and Chicken Risotto with Fennel and Pine Nuts). The book also provides
information on diagnosis, lifestyle changes, foods to avoid, and
pantry stocking. Black-and-while illustrations are featured
throughout.
2VNFOXDLOW&isbn=0597832633&itm=6 This sourcebook has been created for patients who have decided to make
education and Internet-based research an integral part of the
treatment process. Although it gives information useful to doctors,
caregivers and other health professionals, it also tells patients
where and how to look for information covering virtually all topics
related to celiac disease, from the essentials to the most advanced
areas of research. The title of this book includes the word official.
This reflects the fact that the sourcebook draws from public,
academic, government, and peer-reviewed research. Selected readings
from various agencies are reproduced to give you some of the latest
official information available to date on celiac disease. Following an
introductory chapter, the sourcebook is organized into three parts.
PART I: THE ESSENTIALS; Chapter 1. The Essentials on Celiac Disease:
Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials
and Celiac Disease; PART II: ADDITIONAL RESOURCES AND ADVANCED
MATERIAL; Chapter 4. Studies on Celiac Disease; Chapter 5. Patents on
Celiac Disease; Chapter 6. Books on Celiac Disease; Chapter 7.
Multimedia on Celiac Disease; Chapter 8. Periodicals and News on
Celiac Disease; Chapter 9. Physician Guidelines and Databases; Chapter
10. Dissertations on Celiac Disease; PART III. APPENDICES; Appendix A.
Researching Your Medications; Appendix B. Researching Alternative
Medicine; Appendix C. Researching Nutrition; Appendix D. Finding
Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE
GLOSSARIES; CELIAC DISEASE GLOSSARY; INDEX. Related topics include:
Celiac sprue, Gluten enteropathy, Gluten intolerance, Nontropical
sprue, Sprue.
2VNFOXDLOW&isbn=0896036502&itm=7 With the recent development of powerful bioanalytical techniques,
research on gluten sensitivity has entered an exciting new phase. In
Celiac Disease: Methods and Protocols, Professor Michael N. Marsh, a
recognized world authority on this condition, together with a team of
other expert laboratory/clinical investigators from around the world,
present a collection of these state-of-the-art techniques for studying
the biology and immunopathology of celiac disease. Both novice and
experienced researchers will find in this collection detailed
step-by-step methods for cloning lymphocytes, creating gene/peptide
libraries, and performing genotyping, linkage, and positional cloning.
Also included are techniques for determining the peptide structure of
HLA-bound material (tandem mass spectroscopy), computerized
morphometry, in situ hybridization, organ culture, and monoclonal AB
assays.
Tapes & Books: Celiac Center at Columbia Presbyterian Hospital, NYC
www.cdcc.hs.columbia.edu From results obtained from recent studies, researchers are finding
that CD is proving to be more widespread in the U.S. than was
previously thought, and it is no longer considered a rare disease. We
believe that the information you will obtain is vital to you, your
friends and relatives. With your help we can enrich the lives of
celiac patients and families through awareness.
We currently do not
have any listings for this section. If you have a personal
website or home page dedicated to this disease, feel free to submit it
to us at info@bridges4kids.org.
Be sure to specify the main topic of the website, the address and a
short description. Thank you.
