|
Disability
Information - Fibromyalgia & Chronic Fatigue Syndrome |
|
General
Information
Education
& Classroom Accommodations
Michigan
Resources, Support Groups, Listservs & Websites
National
Resources & Websites
Articles
Related to this Disability
Books
& Videos
Personal
Websites & Home Pages
Medical
Information
back to the top
- back to
disability topics -
report a bad link
|
|
General Information |
|
FMS
(fibromyalgia syndrome) is a widespread musculoskeletal pain and
fatigue disorder for which the cause is still unknown. Fibromyalgia
means pain in the muscles, ligaments and tendons--the fibrous tissues
in the body. FMS used to be called fibrositis, implying that there was
inflammation in the muscles, but research later proved that
inflammation did not exist. Most patients with fibromyalgia say that
they ache all over. Their muscles may feel like they have been pulled
or overworked. Sometimes the muscles twitch and at other times they
burn. More women than men are afflicted with fibromyalgia, but it
shows up in people of all ages.
Fibromyalgia Resource
Information Website
Fibromyalgia in
Children
Excerpted from
Fibromyalgia: A Comprehensive Approach by Miryam Williamson
http://www.mwilliamson.com/children.htm
Until recently,
fibromyalgia was considered an adult disorder; children were thought
not to get it. Then, in a study published in the Journal of
Rheumatology in 1993, a team of doctors in Israel reported that 6.2
percent of 338 healthy schoolchildren between the ages of nine and 15
met the criteria for the fibromyalgia syndrome.
Juvenile Fibromyalgia and Chronic Fatigue Syndrome
http://members.aol.com/fibroworld/juvFM.htm
A new study
concludes that children diagnosed with chronic fatigue syndrome (CFS)
have significantly more optimistic prognoses than their adult
counterparts.
Children With FM
http://tigihiggins.tripod.com/children.htm
FM in children
often starts with a flu-like illness from which the child seems never
to have fully recovered. Sometimes, particularly in children before
puberty, the ailment simply comes on gradually, without any obvious
precipitating event. Very young children may not remember a time
without pain, and thus may not complain at all.
A
brief guide for parents
http://www.fibromyalgia-associationuk.org/child_young.htm
The aim of this leaflet is to provide basic information about
fibromyalgia and suggestions on management and coping skills. Parents
and other care-givers can assist young people to manage a social life,
continue with their education and plan for the future despite this
troublesome condition. FMS affects children in different degrees but
FMS is not life threatening.
WHY
CHILDREN WITH CFS ARE OFTEN OVERLOOKED
by
Rebecca C. Moore and Frank Albrecht, Ph.D.
http://home.bluecrab.org/~health/reb.html
In children, Chronic Fatigue Syndrome (CFS) -- it's also called
Chronic Fatigue Immune Dysfunction Syndrome (CFIDS)-- is often
incorrectly diagnosed by pediatricians and other primary care
physicians, and often by specialists as well.
Abstract:
Thirteen-Year Follow-Up of Children and Adolescents with Chronic
Fatigue Syndrome
ImmuneSupport.com
http://www.immunesupport.com/library/showarticle.cfm/ID/3347/T/CFIDS_FM
OBJECTIVE: To
describe the educational, social, and symptomatic outcome of children
and adolescents with chronic fatigue syndrome 13 years after illness
onset.
To The Newly
Diagnosed Patient
Russell
Rothenberg, M.D., Chair, Medical Advisory Board, National
Fibromyalgia Partnership
http://www.fmpartnership.org/To%20The%20Newly%20Diagnosed%20Patient.htm
Fibromyalgia can be a
confusing diagnosis both to the patient and to the treating physician.
One of the principal missions of the National Fibromyalgia Partnership
is to educate both patients and physicians about what is currently
known about this disease. Hopefully, through education, patients will
be diagnosed more quickly and be started on a therapeutic treatment
program at an earlier stage in their disease.
Questions and
Answers about Fibromyalgia
http://www.niams.nih.gov/hi/topics/fibromyalgia/fibrofs.htm
Fibromyalgia
Patient Education
Institute
This is an
interactive tutorial that requires Flash plug-in.
http://www.nlm.nih.gov/medlineplus/fibromyalgia.html
Fibromyalgia
Mayo Foundation
for Medical Education and Research
Fibromyalgia is a
chronic condition characterized by fatigue and widespread pain in your
muscles, ligaments and tendons.
http://www.mayoclinic.com/invoke.cfm?id=DS00079
Fibromyalgia.com
http://www.fibromyalgia.com/home.htm
It
is the purpose of our presence on the World Wide Web to disseminate
information that is accurate and beneficial in improving the quality
of life for those suffering from fibromyalgia.
Fibromyalgia (FMS) &Chronic Myofascial Pain (CMP)
http://www.sover.net/~devstar/
This site
describes two medical conditions which often occur together:
Fibromyalgia and Chronic Myofascial Pain. Chronic Myofascial Pain was
previously called Myofascial Pain Syndrome.
Fibromyalgia: What it is and how to manage it
American Academy of Family Physicians
http://familydoctor.org/handouts/070.html
Where to Go
When You Need Help
National
Fibromyalgia Partnership
http://www.fmpartnership.org/documents/emerserv.pdf
Fibromyalgia (FM) is a challenge even under the best of circumstances.
When it interferes with patients' abilities to support themselves and
their families or pursue their chosen careers, it can be devastating.
Coping Tips To Help With Life Links
http://bcorsa.freeyellow.com/coping.html#coping
Fibromyalgia
Research: Challenges and Opportunities
National
Institute of Arthritis and Musculoskeletal and Skin Diseases
http://www.niams.nih.gov/hi/topics/fibromyalgia/fibromya.htm
Fibromyalgia is a
chronic disorder characterized by widespread musculoskeletal pain,
fatigue, and tenderness in localized areas of the neck, spine,
shoulders, and hips called "tender points." People with this syndrome
may also experience sleep disturbances, morning stiffness, irritable
bowel syndrome, anxiety, and other symptoms. Available data suggest
that the number of persons aged 18 and older in the United States with
fibromyalgia is approximately 3.7 million. It primarily occurs in
women of childbearing age, but children, the elderly, and men may also
be affected.
Delivering on the
Promise in Fibromyalgia
Arthritis
Foundation
http://www.arthritis.org/research/research_program/Fibromyalgia/default.asp
The causes,
underlying pathologic processes and optimal treatment of fibromyalgia
are not yet well understood. There is increasing evidence that
abnormalities of the nervous system involving heightened pain
perception play a role in its development.
What's in a Name:
Fibromyalgia versus Chronic Fatigue Syndrome (CFS)
Arthritis
Foundation
http://www.arthritis.org/resources/news/news_fibro_cfs.asp
Fibromyalgia and chronic fatigue syndrome (CFS) share a number of
symptoms, and the names are often used interchangeably in the medical
literature.
The Scientific
Basis for Understanding Pain in Fibromyalgia
Robert Bennett MD, FRCP
http://www.myalgia.com/Scientific%20basis.htm
Fibromyalgia is a clinical construct that
has been developed, for the most part, by rheumatologists. It is a
direct descendent of "fibrositis", a common misnomer (1) that was
first coined in 1904 (2). There are always problems inherent in
defining a disorder in purely descriptive terms. Nevertheless the
publication of the
American College of Rheumatology's 1990 Classification Criteria for
fibromyalgia (3) has been coincident with an impressive resurgence of
research in this area. This article attempts to synthesize
contemporary research findings.
Helpful hints
from support group members
http://www.ncf.carleton.ca/fibromyalgia/helpful.htm
ACTION for CFIDS / M.E.
http://www.cfs-news.org/action.htm
Help to fight for the CFIDS / M.E. community! Promote awareness,
campaign for change, and help to correct misimpressions in the media
and by government officials.
FibroMyalgia Personal Support Centre
http://www.fmpsc.org/info/info.htm
Fibromyalgia, Chronic Fatigue Syndrome & Related Syndromes
http://www.geocities.com/HotSprings/Falls/8173/
I have created this web page to provide an extensive resource of
information on FM, CFS and other related conditions. I hope you find
this site helpful in your search for information or support.
Miss Kitty
Fibromyalgia Center
http://www.fmscenter.com/index2.html
Support, info, stories and more about Fibromyalgia and related
conditions. You can also share your own story.
WHO
GETS FIBROMYALGIA?
http://www.ucdmc.ucdavis.edu/ucdhs/health/a-z/76Fibromyalgia/doc76risk.html
Studies report that between 1.3% and 2% of the general population meet
the diagnostic criteria.
It's a Guy Thing: Men with Fibromyalgia
by
Lisa Lorden
http://fmaware.org/patient/coping/men.htm
The relationship between Fibromyalgia (FM) and gender has been a
source of confusion and controversy among researchers and patients
alike. Although FM is clearly more prevalent among women, the illness
does afflict men as well.
Benefits For Children With Disabilities
Social Security Administration
http://www.ssa.gov/pubs/10026.html
This
booklet is written primarily for the parents and caregivers of
children with disabilities and adults disabled since childhood.
Financial Help Links for People with Fibromyalgia
http://bcorsa.freeyellow.com/coping.html#financial
Informative!
Alternative And Supplemental Income For People With Fibromyalgia
http://www.managing-my-fibromyalgia.com/supplemental-income.html
Social
Security Administration Ruling on Chronic Fatigue Syndrome
http://www.myalgia.com/SSA%20ruling%20on%20CFS.htm
The Social Security Administration (SSA) issued a ruling on April 30,
1999 which paves the way for severely afflicted persons with CFS to be
classified as having a medically determinable impairment. This ruling
provides guidance to disability claims processors for applying SSA
policy to applications for Social Security Disability Income (SSDI)
benefits that result from disability due to CFS. This does not imply
that persons with CFS are automatically entitled to SSDI, but it
should make it easier for severely afflicted CFS patients to granted
benefits.
Social
Security memorandum on fibromyalgia
http://www.myalgia.com/SSA%20memorandem%20on%20FM.htm
Disability Help Links
http://bcorsa.freeyellow.com/coping.html#disability
back to the top
- back to
disability topics -
report a bad link
|
|
Education & Classroom
Accommodations |
|
Attending school with
Fibro/CFS
Fibro/CFS Foothold
http://www.tertius.net.au/foothold/school.html
A list of things that
you can do to help survive school.
CFIDS: EDUCATIONAL RIGHTS, RESPONSIBILITIES, AND OPTIONS
By Michelle L. Banks MS.ed
http://www.geocities.com/cfsdays/edu_rts.htm
This information will help to identify the child's unique learning
style to see if the onset of CFIDS has in anyway altered his/her
educational ability or performance.
GUIDELINES FOR SCHOOLS: UNDERSTANDING and ACCOMMODATING CFIDS/FMS
CHRONIC FATIGUE AND IMMUNE DYSFUNCTION SYNDROME and FIBROMYALGIA
SYNDROME
The National CFIDS Foundation
http://www.ncf-net.org/general/guidlines.htm
Chronic Fatigue Syndrome and School Success
http://www.ncfsfa.org/Patients/cfsschool.htm
A Cognitive-Behavioral Approach in the Treatment of Children and
Adolescents Diagnosed with Fibromyalgia
Reported by Karin Amour
http://fmaware.org/patient/research/acr2001c.htm
Schooling/Educating Sick and Worn-out Kids
http://home.bluecrab.org/~health/sch/sch.html
Many children with chronic fatigue syndrome, fibromyalgia, and other
debilitating illnesses can't attend school, or can attend only
part-time. These children usually don't look sick, so school staff
often thinks, "It's all in her mind," or, "There's really nothing
wrong with her." Even if they recognize that the illness is real,
staff may think the child is school-avoidant, that the family doesn't
really want the child in school, that he or she exaggerates the amount
of pain or discomfort, or that "He could do better if he tried
harder."
Home, Hospital, and Other Non–School-based Instruction for Children
and Adolescents Who Are Medically Unable to Attend School (RE9956)
AMERICAN ACADEMY OF PEDIATRICS, Committee on School Health
http://www.aap.org/policy/re9956.html
Homebound instruction is governed by federal and state laws, but
implementation may vary not only from state to state, but also from
one school district to another. It must be clear that homebound
instruction is meant for acute or catastrophic health problems that
confine a child or adolescent to home or hospital for a prolonged but
defined period of time and is not intended to relieve the school or
parent of the responsibility for providing education for the child in
the least restrictive environment.
Americans With Disabilities Act: What Persons With Fibromyalgia Need
to Know
National Fibromyalgia Partnership
http://www.fmpartnership.org/documents/Disabilact.PDF or
http://www.fmpartnership.org/ada.htm
back to the top
- back to
disability topics -
report a bad link
|
|
Michigan
Resources, Support Groups, Listservs & Websites |
|
Fatigue and Fibromyalgia Clinic of Michigan
http://www.cfids.com/
Our
clinic is dedicated to the treatment of Chronic Fatigue Syndrome (CFS),
Fibromyalgia (FMS), Candida (yeast), allergies, Multiple Chemical
Sensitivities (MCS) and other related disorders.
Fibromyalgia
Michigan
http://www.chiropractor-finder.com/Fibromyalgia/Michigan/
Find fibromyalgia
doctors fibromyalgia treatment for fibromyalgia FMS.
Michigan
Head•Pain & Neurological Institute
http://www.mhni.com/faqs_other_disorders.html#top
3120 Professional Drive
Ann Arbor, Michigan 48104-5131
Telephone:
(734)
677-6000
Livonia CFS/Fibromyalgia Support Group
http://www.geocities.com/LivoniaCFSFMS/
We
meet at 7:00 at the Livonia Civic Center Library which is located at
32777 Five Mile Road in Livonia. Normal meeting days are the second
Thursday of the month - NO DECEMBER MEETING. Please check meeting
section for further information. We try to keep our meetings FRAGRANT
FREE for those with multiple chemical sensitivities. Please avoid
SCENTED PRODUCTS AND SMOKE just prior to attending. Thank you for your
consideration.
Join the Fatigue
& Fibromyalgia Clinic of Michigan mailing list
http://lb.bcentral.com/ex/manage/subscriberprefs.aspx?customerid=6141
University of
Michigan Fibromyalgia Research
http://www.med.umich.edu/intmed/rheumatology/fmweb/
back to the top
- back to
disability topics -
report a bad link
|
|
National Resources &
Websites |
|
The American Fibromyalgia Syndrome
Association -
http://www.afsafund.org/
Fibromyalgia Network -
http://www.fmnetnews.com/index.html
http://www.fibromyalgia.com
|
The following
resources are from the
American Self-Help Group Clearinghouse:
National Chronic Fatigue Syndrome and Fibromyalgia Association,
Inc.
http://www.ncfsfa.org/
To educate patients, the public, and the medical profession about
chronic fatigue syndrome and fibromyalgia. Support groups,
periodic newsletter, funds research, conducts seminars. Literature
available for patients and physicians. Guidelines and assistance
available for starting support groups.
CFIDS Association, Inc.
http://www.cfids.org
Advocacy, information and encouragement for persons with chronic
fatigue immune dysfunction syndrome.
Fibromyalgia Network
http://www.fmnetnews.com
Provides information on fibromyalgia and chronic fatigue syndrome.
Referrals to support groups, health care professionals, and other
services. Newsletter, phone support,
information and referrals, conferences, and guidelines and
assistance in starting new groups. |
National Fibromyalgia Association
http://fmaware.org/index.html
Our
mission is to develop and execute programs dedicated to improving the
quality of life for people with Fibromyalgia by increasing the
awareness of the public, media, government and medical communities.
National Fibromyalgia Partnership, Inc. (NFP)
http://www.fmpartnership.org/FMPartnership.htm
Thanks to the generous support of a number of medical experts and
the National Institutes of Health, the NFP has been able to offer
quality educational materials and speaker presentations on
fibromyalgia and related conditions since its inception.
The American
Fibromyalgia Syndrome Association
http://www.afsafund.org/
AFSA
is the
only
charitable organization whose primary mission is to seed research in
FMS and CFS. We acknowledge that patient and physician education,
public awareness and advocacy are all important ingredients in aiding
the lives of people with FMS and CFS.
American College
of Rheumatology (ACR)
http://www.rheumatology.org/
The American
College of Rheumatology (ACR) is the professional organization of
rheumatologists and associated health professionals who share a
dedication to healing, preventing disability, and curing the more than
100 types of arthritis and related disabling and sometimes fatal
disorders of the joints, muscles, and bones. Members include
practicing physicians, research scientists, nurses, physical and
occupational therapists, psychologists, and social workers.
Arthritis Foundation
http://www.arthritis.org/
The
Arthritis Foundation is the only national not-for-profit organization
that supports the more than 100 types of arthritis and related
conditions with advocacy, programs, services and research.
Fibromyalgia
Resource Center at HealingWell.com
http://www.healingwell.com/fibro/
Medical news,
information, community message boards, chat, email, free homepages,
books, links and more for patients, friends and family of patients
diagnosed with Fibromyalgia.
Living With FM & MPS
http://www.tidalweb.com/fms/
FibroMoms
http://members.tripod.com/fibroark/
There are millions of women suffering from fibromyalgia, and other
invisible illnesses. A huge percentage of these women are moms. Come
to FibroMoms and connect with others who really understand the
struggle of raising kids while coping with invisible illnesses.
Support Groups by State
http://www.fmscommunity.org/sptgrp.htm#us
Here you will
find links to various Fibromyalgia support groups.
Clouds Online Support Group
http://pub144.ezboard.com/bcloudsonlinesupportgroup.html
Fibrofacts UK
Discussion Board
http://www.hotboards.com/plus/plus.mirage?who=helenchambers
FibroMoms message board
http://members.tripod.com/fibroark/id35.htm
Fibromyalgia
Message Board
http://www.ecolivingcenter.com/board/fibromalgia/index.html
Friends International Online FMS-CFS-Chronic Pain Support
http://pub123.ezboard.com/bsunshine35446
back to the top
- back to
disability topics -
report a bad link
|
|
Articles Related to this
Disability |
|
Fibromyalgia and Sleep Deprivation -
People with
fibromyalgia often experience sleeplessness. In this three-part
series, MARRTC explores causes and solutions to the problem, and what
it's like to live one sleepless night after another.
Part One: Fatigue Can Be Dangerous
Part Two: Pills and Pillows
Part Three: A Sleepless Night Crawls By
Tired Children,
Teenagers in Pain
Aging Healthfully Magazine
http://www.majidali.com/Vol%202%20No%201%20Tired%20Children.htm
A parent can ignore a child's unexplained tiredness only at peril. To
blame a teenager's muscle pain (myalgia) on hormones is often a
serious mistake. For a doctor to dismiss tired children and teenagers
in pain simply because lab tests are negative is a grave error.
Unexplained tiredness is oxygen deprivation in brain and other
tissues. Muscle pain is oxygen deficiency in muscles. Those are the
simple facts about tired children and teenagers in pain.
A Novel Holistic Explanation for the Fibromyalgia Enigma: Autonomic
Nervous System Dysfunction
By Manuel Martínez-Lavín, M.D., Instituto Nacional de Cardiologia
Mexico
http://www.fmpartnership.org/Lavin%20article.htm
This article discusses scientific evidence supporting the notion that
all fibromyalgia (FM) features can be explained on the basis of
autonomic (sympathetic) nervous system dysfunction. On this basis, a
holistic approach for FM treatment is proposed.
Post-Traumatic Fibromyalgia: A New Paradigm
National Fibromyalgia Partnership, Inc.
http://www.fmpartnership.org/Post-Traumatic_FM2.htm
The brain is easily overwhelmed by head injury, viruses, severe
stress, and even rape and abuse. When an injury to the brain occurs,
it triggers a cascade of neurochemicals to protect the traumatized
area. Unfortunately for the patient, such defensive actions by the
brain can cause significant dysfunctions in the body, i.e., limited
energy, poor sleep, impaired cognition, dysautonomia, and mood
abnormalities, among others, and they also seem to prevent FM patients
from maintaining the effects of rehabilitative treatments over the
long-term.
Non-Allergic Rhinitis
By Tamara Liller, M.A.
http://www.fmpartnership.org/Rhinitis.htm
As a group, persons with fibromyalgia (FM) exhibit many similar
symptoms: a chronic runny nose, a congested head, a throat-clearing
cough, or a maddening postnasal drip. While a sign of allergic
reaction in some, for most with FM it is not, for there is no immune
reaction in the body (i.e., antibodies that are detected by skin
testing) and very little itching or inflammation occurs in the eyes
and nose, respectively.
Up The Down Staircase: Work & Fibromyalgia
http://www.fmpartnership.org/work-fm.htm
The following is a "Letter to the Editor", reprinted in the spring
2000 issue of Fibromyalgia Frontiers, which raises many important
issues relevant to working individuals with fibromyalgia.
(A) Fibromyalgia, (B) Myofascial Pain Syndrome, (C) All of the Above
By Bernard E. Filner, M.D.
http://www.fmpartnership.org/filner.htm
Persons with chronic pain frequently see many practitioners in their
quest for a diagnosis and relief from their symptoms. Unfortunately,
this quest often resembles the story of the six blind men, each
stationed at a different part of the anatomy and then asked to
describe the elephant.
The Art of Drawing a Blank
http://www.fmpartnership.org/memory.htm
It is helpful to think about memory as consisting of three stages: (1)
the acquisition of information, (2) the storage of information, and
(3) the retrieval of information when it is needed. When we forget
things, we tend to blame our retrieval powers.
Marge Cheston ... On Adjusting
http://www.fmpartnership.org/cheston1.htm
When I was finally diagnosed with fibromyalgia syndrome (FMS), I was
amazed that there was actually a name to cover all those weird and
widespread body happenings that I was experiencing.
Latest Research Findings on Pain and Fibromyalgia
Tiny gene changes means big differences in pain
NewScientist.com news service
http://www.myalgia.com/OFF%20Archives/comt%20and%20pain.htm
A new study by US researchers has linked differences in the way people
withstand pain - both physical and emotional stress - to a gene which
makes a protein important for brain chemistry.
Fibromyalgia and Sleep Deprivation: Fatigue Can Be Dangerous
By Nicholas Rummell
http://www.muhealth.org/~arthritis/articles/sep02/sleep.html
Judy Fry says her symptoms of sleep deprivation began long before she
was diagnosed with severe fibromyalgia in 1983.
A New Approach to Fibromyalgia
Summarized by Robert W. Griffith, MD
The treatment of fibromyalgia is, for the most part, unsatisfactory.
Maybe that's why sufferers often have a considerable degree of anxiety
and depression. And while it's known that exercise has proven helpful
in some studies in reducing tender-point pain, it's general effect on
the poor mood in fibromyalgia subjects has been questionable. Now a
Canadian study has been reported in Arthritis Care & Research that
provides more conclusive results.
Exercise Therapy Improves Fibromyalgia
intelihealth.com
http://www.intelihealth.com/IH/ihtIH/WSIHW000/333/344/353014.html
(British Medical Journal) -- Prescribed graded aerobic exercise is a
simple, cheap, and effective treatment for people with fibromyalgia
(medically unexplained chronic muscular pain and joint tenderness),
finds a study in this week's BMJ.
Exercise Can Ease Fibromyalgia
By Jennifer Warner, WebMD Feature
http://webmd.lycos.com/content/article/49/40037.htm
back to the top
- back to
disability topics -
report a bad link
|
|
Books &
Videos |
|
Adolescence and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome:
Journeys with the Dragon
Naida Edgar Brotherston, MSW, RSW Supervisor, Community Services
Program and Coordinator, Program Evaluation, Calgary Women’s Emergency
Shelter
http://www.haworthpress.com/store/product.asp?sku=2075&AuthType=2
Adolescence and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome:
Journeys with the Dragon examines the firsthand experiences of four
young women stricken with this stigmatized chronic illness and offers
advice and support for the victims, as well as for their family and
friends. The book focuses on the ways they cope with a stigmatizing
chronic illness during adolescence and the impact it has on their
lives. It offers a personal “guide to survival” that will appeal to
adolescent patients and parents, and it provides a window into the
psychosocial implications of illness that is well-suited to
professionals.
A
Parents' Guide to CFIDS:
How to Be an Advocate for Your Child with Chronic Fatigue Immune
Dysfunction
By David S.
Bell, M.D., FAAP; Mary Z. Robinson, M.S.Ed.; Jean Pollard, A.S.; Tom
Robinson, M.S., CAS; and Bonnie Floyd, M.A.
http://www.haworthpressinc.com/store/product.asp?sku=1829
This guide will assist you in understanding CFIDS, also known as
Fibromyalgia (FM) and Myalgic Encephalomyelitis (ME), one of the most
complicated illnesses in medical history. You will learn how to help
your child overcome the major academic challenges of CFIDS and the
socialization issues inflicted by being cut off from friends and peers
at a critical stage of development.
The Best Of
Fibromyalgia Frontiers, 1992-2000
National
Fibromyalgia Partnership (NFP)
http://www.fmpartnership.org/BOFF.htm
A goldmine of quality
information still highly relevant to persons with fibromyalgia. 62
articles on fibromyalgia & related conditions, symptom management,
coping, and work & disability, plus 18 favorites from our "Ask the
Expert" columns. 81/2"x11", softbound, 182 pages.
The Clinical Neurobiology of Fibromyalgia and Myofascial Pain:
Therapeutic Implications
A Synopsis of the
Plenary Sessions of the MYOPAIN 2001 Conference in Portland, OR
Edited by
Robert Bennett, M.D.
http://www.fmpartnership.org/Clinical%20Neurobiology.htm
If you are a medical
professional or someone with advanced medical knowledge and are
seeking a reference that charts noteworthy advances in the study of
the neurobiology of soft tissue pain and suggests promising paths for
future inquiries, this publication is for you.
Fibromyalgia: A Resource Guide For Health Care Professionals
(2002/2003 Edition)
National Fibromyalgia Partnership (NFP)
http://www.fmpartnership.org/Resource%20Guide.htm
This
new guide contains a wealth of quality information for medical
professionals.
From Whiplash To
Fibromyalgia: A Painful Beginning That Doesn't End
By Mark
Pellegrino, M.D.
http://www.fmpartnership.org/Whiplash.htm
In this latest book,
From Whiplash to Fibromyalgia: A Painful Beginning That Doesn't End,
Dr. Pellegrino offers an up-close and careful look at the mechanics of
whiplash injuries from the moment of initial impact through the
evaluation and treatment of sustained injuries. This discussion is a
great boon for the lay reader who would otherwise find wading through
the complex scientific and medical articles on the subject very tough
going.
A Practical Guide
To Persevering & Winning Your Chronic Pain/Fatigue Disability Case
By Scott Davis
http://www.fmpartnership.org/ScottDavisBook.htm
The National
Fibromyalgia Partnership has compiled 11 articles authored by Mr.
Davis which provide practical and up-to-date information for persons
with FM and CFS who are considering filing for Social Security
Disability.
When Muscle Pain Won't Go Away:
The Relief Handbook for Fibromyalgia and Chronic Muscle Pain
Gayle Backstrom, Bernard Rubin
This new revised
edition tells sufferers everything they need to know about
fibromyalgia (FM), but can't find anywhere else. It will assist and
educate the layperson in recognizing and treating FM--what it is, how
to detect it, and whom to consult about it, all in simple,
straightforward language. The authors cover the gamut of exercise,
diet, drugs, and emotional considerations.
The Fibromyalgia Relief Handbook
Chet Cunningham
Fibromyalgia:
Simple Relief through Movement
Stacie L. Bigelow
Targeting mostly
women between the ages of thirty-five and sixty, Fibromyalgia Syndrome
(FMS) is an often-misunderstood condition that causes muscle pain,
fatigue, and numerous other symptoms. Exercise and physical activity
are recognized as the most effective methods to relieve the symptoms,
but few people, including medical practitioners, know how to exercise
without actually exacerbating the symptoms. Written by a motivational
health counselor, Fibromyalgia presents clear and specific advice on
how to safely and effectively use movement to ease the pain of FMS. *
The first book devoted to relieving FMS pain through movement * 15
drawings illustrate ways to safely reduce pain.
Handbook for Fibromyalgia and Chronic Muscle Pain
Gayle Backstrom, Bernard R. Rubin
This revised and expanded edition of When Muscle Pain Won't Go Away
offers you hope for coping with FM and shows you how to get on with
your life. With the assistance of Dr. Bernard R. Rubin, author Gayle
Backstrom, a sufferer herself, provides the information you need to
know about FM, including how it is diagnosed, basic symptoms and
conditions, treatment options, pain-relieving exercises that are easy
to follow, and effective coping strategies.
Fibromyalgia For Dummies
Roland Staud, Christine Adamec, Christine A. Adamec
This easy-to-use guide will help you identify fibromyalgia
symptoms, find the right doctor, and develop a plan of care. You get
up-to-date information on prescription and over-the-counter
medications, as well as alternative therapies that will help you
manage your pain while handling work and family life.
From Fatigued to Fantastic!: A Proven Program to Regain Vibrant
Health Based on a New Scientific Study Showing Highly Effective
Treatment for Chronic Fatigue and Fibromyalgia
Jacob Teitelbaum, Act (Editor)
From Fatigued to Fantastic! offers the most effective treatment
plan to help people recover from these disorders, and will coincide
with the publication of a groundbreaking study in the Journal of
Chronic Fatigue Syndrome announcing the author's findings to the
medical community.
Managing Pain before It Manages You, Revised Edition
Margaret A. Caudill, Herbert Benson
Like the foreword writer, Herbert Benson, MD, author of The
Relaxation Response, Caudill (Dartmouth Medical School) is a
physician who subscribes to complementary alternative medicine. She
explains the mind-body connection, common chronic pain conditions, and
self-help tasks. Worksheets include a pain diary. No data is given for
the first edition. Annotation c. Book News, Inc., Portland, OR (booknews.com)
Fibromyalgia and Chronic Myofascial Pain: A Survival Manual
Devin J. Starlanyl, Mary Ellen Copeland, Christopher R. Brown
Fibromyalgia & Chronic Myofascial Pain Syndrome offers the first
comprehensive patient guide for managing these conditions. You'll
start by learning what FMS and MPS are, evaluating your own symptoms,
and identifying the tender and/or trigger points that are crucial for
treating them. The manual covers chronic pain, sleep problems, and
other "internal affairs," shows you how you can use your mind to
counteract physical symptoms and the numbing effects of "fibrofog,"
and provides an extensive set of healing tools - including information
on the latest medications, a nutritional program, and tips for using
bodywork and other less commonly known treatments. Its comprehensive
survival strategies include suggestions for coping with family and
work situations, getting support, and dealing with the health care
system.
Fibromyalgia Help Book: A Practical Guide to Living Better with
Fibromyalgia
Jenny Fransen,
I. Jon Russell
A
how-to guide that gives people with the disorder practical tools for
effective management. Recommended for fibromyalgia patients, medical
professionals who treat fibromyalgia, those seeking to understand
fibromyalgia sufferers, and support groups.
Parting the Fog:
The Personal Side of Fibromyalgia / Chronic Fatigue Syndrome
Sue Jones
This book is a thorough and candid description of what it is like to
journey through life suffering from fibromyalgia/chronic fatigue
syndrome. Sue Jones is able to speak both personally and directly to
those of us trying to balance our everyday lives while feeling the
physical and emotional pain of these syndromes. Her mixture of truth,
hope, pain, and humor will have readers shaking their heads in
agreement as she inspires us to face each day with hope. She assures
us that "FM leaves plenty of room for hope." The poetry that she
includes is quite beautiful and certainly puts into words how some of
us are feeling during our everyday trials and tribulations. It might
not be a bad idea for some of our family, friends, and co-workers to
browse through this enlightening book!
Muscle Pain:
Understanding Its Nature, Diagnosis, and Treatment
David Simons, Mense
In recent years,
massive amounts of data have accumulated on the components of pain
pathways, and concurrently knowledge of muscle pain in the field of
neurobiology has increased markedly. This book, a collection of much
of this data, aims to serve as an overview of the many diseases and
syndromes associated with muscle pain, and to combine the clinical
view with new concepts based on neuroanatomic and electrophysiologic
research. Topics covered include local and neuropathic muscular pain,
mediated and postural muscle pain, central and centrally modified
pain, myofascial pain caused by trigger points, and fibromyalgia
syndrome. Heavily illustrated. Annotation c. Book News, Inc.,
Portland, OR (booknews.com)
Inside Fibromyalgia:
With Mark J. Pellegrino, MD
Mark J. Pellegrino, David Schumick (Illustrator)
You
already know how Dr. Pellegrino can help you with his understanding
and sound advice. Now get Dr. Pellegrino's new healing prescription in
his comprehensive 348-page book, Inside Fibromyalgia. From the newest
medications to alternative therapies and everything in between, Dr.
Pellegrino helps you develop a plan for healing today and tomorrow.
Dr. Pellegrino's special understanding - what really works and what
doesn't - comes from his own personal experience having fibromyalgia
and is now yours with Inside Fibromyalgia. You get the most effective
healing resource from Dr. Pellegrino - forward thinking medical
expertise combined with empathy and understanding; just like a
personal "consultation" with him.
The Fibromyalgia Supporter
Mark J. Pellegrino
Written for the loved
ones (e.g., "supporters") of FM patients, this book helps to explain
how it feels to have fibromyalgia and explores in a non-judgmental way
how persons with fibromyalgia and their supporters can develop better
relationships. Not only does it contain good discussions of the basics
of fibromyalgia (i.e., symptoms, diagnosis, and treatment), it also
provides insight and humor regarding the various types of "supporters"
and their relationship to their partners. (Anadem Publishing, Inc.,
1997, 82 pages, softcover.
All about Fibromyalgia: A Guide for Patients and Their Families
Daniel J. Wallace, Janice Brock Wallace
This edition provides
the current understanding of the disease as well as the latest drug
treatments—all laid out in clear and accessible language. As in the
previous volume, the authors provide a detailed, yet clear explanation
of the disease.
The Fibromyalgia Relief Book: 213 Ideas for Improving Your Quality of
Life
Miryam Ehrlich Williamson, Foreword
by Mary Anne Saathoff
"...explains ways to
change diet through nutrition and supplements, incorporate exercise
into one life, and improve moods and relationships."
Concise
Encyclopedia of Chronic Fatigue Syndrome
Roberto Patarca-Montero
The Concise
Encyclopedia of Chronic Fatigue Syndrome summarizes current knowledge
about chronic fatigue syndrome (CFS) to help anyone working with CFS
patients become familiar with recent developments and facts about this
and related fatiguing disorders. The information presented here has
been thoughtfully organized so that you will be able to easily access
and become familiar with highlights of the most relevant topics."
"Comprehensive and thorough, the Concise Encyclopedia of Chronic
Fatigue Syndrome will give both health care professionals and the
general public a greater awareness of this widespread and growing
problem.
VIDEO - New
Fibromyalgia Stretch Video
Produced by Dr.
Sharon Clark
http://www.myalgia.com/Videos/OnlineOrderFormTapes.htm
This
revised program from Dr. Clark takes into consideration the up to date
information about central sensitization and fibromyalgia.
The
complete stretching program may be done while sitting. Includes
warm-up. This video follows four FM patients led by a professional
exercise instructor - Janice.
VIDEO - Toning and
Strengthening Video
Produced by Dr.
Sharon Clark
http://www.myalgia.com/Videos/OnlineOrderFormTapes.htm
Under the guidance of
Dr.Sharon Clark, the fibromyalgia fitness team performs exercises
while standing, sitting and lying down. Sections are divided so that
participants can do one section, take a day off then do another
section followed by a day off, etc. Instructions for safely changing
position and how to progress from beginner to more advanced are
given. Illustrations of each muscle group are provided, allowing
exercisers to precisely identify the muscles to be worked. There are
fun-filled warm-up and warm-down sessions for you to do along with the
entire FM exercise team.
VIDEO - Aerobic
Exercise Video
Produced by Dr.
Sharon Clark
http://www.myalgia.com/Videos/OnlineOrderFormTapes.htm
This tape provides a
complete aerobics exercise program for persons with fibromyalgia. It
includes warm-up, aerobics, cool down and gentle stretching. Whether
you are a beginner or advanced, there is an aerobic program for you.
back to the top
- back to
disability topics -
report a bad link
|
|
Personal
Home Pages |
|
FibroFriends
Network
http://www.fibrofriendsnetwork.com/
My name is Chris;
I am a 33 year old male and was diagnosed with Fibromyalgia in Nov. of
1999. I decided to create this web site because I saw there was a need
for others such as myself to have a resource which allowed them to
learn about their condition as well as to express there feelings.
A Bit of Roly's
world
http://www.geocities.com/roly42/
A site about myself, family, and how FMS affects our lives.
About Me and
Fibromyalgia
http://www.geocities.com/daynauk2001/fibromyalgia.html
Read my story of having fibromyalgia and hypermobility syndrome, and
living with it everyday. I am 19 years old and my sister also has it,
she is 16. Also good useful realated fibromyalgia sites. Also a link
so you can submit your own poem about fibromyalgia, or just read other
peoples poems. CHAT ROOM AND DISCUSSION BOARD, FOR FMS AND/OR HMS.
Anne Red's
Fibromyalgia Page
http://www.angelfire.com/mb/annered/fms.html
Anne Red's Fibromyalgia Page discusses FMS, some of the causes being
researched, coping tips, ideas for things to help relieve the pain,
links, survey and more.
Cojema's FMS Pages
http://www.geocities.com/cojema/fibro.html
My site has info on fibromyalgia, also photos of my family and pets,
free card shops and other freebies, fibromalgia links and Bible
Readings.
Critter's
Fibromyalgia Center
http://crittersworld.tripod.com/fibro.html
HELLO, MY NAME IS RALPH, aka "CRITTER". I'M A 45 YEAR OLD MALE WITH
FIBROMYALGIA. I AM ALSO A DESERT STORM VETERAN AND THINK THAT IS WHAT
STARTED MINE.
Debbie's Fibro
Story
http://www.angelfire.com/il/stillsinging/FibroStorypage2.html
This page has my story plus some info on fibro and some links to help
find more info on Fibromyalgia. Also Arthritis, health info & links.
Desiree's Page
http://www.geocities.com/Heartland/Vista/7164/desiree.html
My site has
several links on FMS and ADD. It also shows my story on FMS.
Fibro/CFS
Foothold
http://www.tertius.net.au/foothold/index.html
Bek's site is for anybody with Fibromyalgia and/or CFS. It contains
her 'Open Letter', a bookshelf of relevant books with reviews from
sufferers, a journal of her personal battle with Fibromyalgia/CFS, and
lots of information about surviving, coping, and even having a life!
Fibromyalgia and
Caring Friends
http://members.tripod.com/~treasures/fms.html
Hello, my name is
Margaret, and I am just one of many that suffer from FMS (
Fibromyalgia Syndrome. ) My story is much like many others that you
may have seen on the Net.
Fibromyalgia and
Me
http://www.geocities.com/goofy_carol/fibro/fibro2.htm
This page is the first of now many. As time goes on it's apparent we
need more public awareness to find a cause and cure.
Jessica's World
http://www.angelfire.com/ut/jessthegoon/index1.html
This page is about me, my struggle with FMS/CFS. links to friends
pages who also have these diseases, links to pages with more info and
to support groups.
KokoBaby's Home
http://member.tripod.com/~KokoBaby/index.html
Personal site on my illnesses including Fibromyalgia & CFIDS. There
are many other related illnesses that are discussed as well as many
links to helpful information.
Managing My
Fibromyalgia
http://www.managing-my-fibromyalgia.com/
The "Managing My Fibromyalgia" Web site chronicles the author's
journey since 1978 with what is now called fibromyalgia. He shares his
experiences, frustrations, insights, and tips with others who have
this disabling disorder. Author maintains unique diary [Weblog] of his
ongoing experience.
My Fibromyalgia
Story
http://www.mountain-breeze.com/webmaster/fms/index.html
Tells my story about my fight with fms and also has links to other
sites that have information on fms. My site also consists of over 500
recipes and link ware graphics.
My Life as A
Fibromaniac
http://www.angelfire.com/wa/joanyle/fibro.html
This is a small web page i put together telling briefly of my life
with fibromyalgia.
Petra's FMS Page
http://www.kjsl.com/~petra/fms.htm
The story of my life with Fibromyalgia, helpful links and tips.
My
Life With CFIDS And Fibromyalgia
http://www.anneshomeontheweb.com/CFIDS4.html
My
name is Anne. I am 37 years old. I am a native NY'er. I presently live
on the East Coast of Central Florida. I have 3 children and I am
divorced. I live with the devastating diseases called "Chronic Fatigue
and Immune Dysfunction Syndrome" and "Fibromyalgia".
back to the top
- back to
disability topics -
report a bad link
|
|
Medical
Information |
|
Diagnostic Criteria for
Fibromyalgia and Chronic
Fatigue Syndrome
FIBROMYALGIA SYNDROME (FMS)
For the most part, routine laboratory testing reveals nothing about
fibromyalgia or chronic fatigue syndrome. However, upon physical
examination, the fibromyalgia patient will be sensitive to pressure in
certain areas of the body called tender points. To meet the diagnostic
criteria, patients must have:
A. Widespread pain in all four quadrants of their body for a minimum
of three months
B. At least 11 of the 18 specified tender points
(see diagram)
These 18 sites used for diagnosis cluster around the neck, shoulder,
chest, hip, knee and elbow regions. Over 75 other tender points have
been found to exist, but are not used for diagnostic purposes.
*The 18 Tender Point Locations for FMS
on "The Three Graces" Masterpiece.
While many chronic pain syndromes display symptoms that overlap with
fibromyalgia, the 1990 ACR multi-center criteria study (published in
the February 1990 issue of Arthritis and Rheumatism) evaluated a total
of 558 patients, of which 265 were classified as controls. These
control individuals weren't your typical healthy "normals." They were
age and sex matched patients with neck pain syndrome, low back pain,
local tendinitis, trauma-related pain syndromes, rheumatoid arthritis,
lupus, osteoarthritis of the knee or hand, and other painful
disorders. These patients all had some symptoms that mimic FMS, but
the trained examiners were not foiled--they hand-picked the FMS
patients out of the "chronically ill" melting pot with an accuracy of
88%. FMS is not a wastebasket diagnosis!
Although the above criteria focuses on tender point count, a consensus
of 35 FMS experts published a report in 1996 saying that a person does
not need to have the required 11 tender points to be diagnosed and
treated for FMS. This criteria was created for research purposes and
many people may still have FMS with less than 11 of the required
tender points as long as they have widespread pain and many of the
common symptoms associated with FMS. Commonly associated symptoms
include:
fatigue
irritable bowel (e.g., diarrhea, constipation, etc.)
sleep disorder (or sleep that is unrefreshing)
chronic headaches (tension-type or migraines)
jaw pain (including TMJ dysfunction)
cognitive or memory impairment
post-exertional malaise and muscle pain
morning stiffness (waking up stiff and achy)
menstrual cramping
numbness and tingling sensations
dizziness or lightheadedness
skin and chemical sensitivities
CHRONIC FATIGUE SYNDROME (CFS)
Chronic fatigue syndrome is diagnosed using the CDC 1994 guidelines
published in the Annuals of Internal Medicine 121(12):953-959.
To meet the criteria, patients must have:
A. Fatigue
Severe, unexplained fatigue that is not relieved by rest, which can
cause disability and which has an identifiable onset (i.e., not
lifelong fatigue). It must be persistent or relapsing fatigue that
lasts for at least six or more consecutive months.
B. Four or more of the following symptoms:
impaired memory or concentration problems
tender cervical or auxiliary lymph nodes in neck region (note that
they do not have to be swollen but just tender; this can be a problem
for people with FMS who have tenderness in these areas as well)
sore throat (but may not show signs of infection)
muscle pain
multi-joint pain (but not arthritis)
new onset headaches (tension-type or migraine)
unrefreshing sleep (wake up in the morning feeling unrested)
post-exertional malaise (fatigue, pain and flu-like symptoms after
exercise)
NOTE: Five of the above eight criteria relate to pain and are often
present in FMS as well. For both the fibromyalgia and chronic fatigue
syndrome criteria, patients should be evaluated for other problems
that could cause pain and fatigue, such as low thyroid function, low
iron stores, arthritis and many other medical conditions. If any of
these problems are found and corrected, but the individual still meets
the FMS criteria, these other disorders (FMS and CFS) are viewed as
co-existing and deserving of special medical attention. Unfortunately,
the CDC criteria excludes people with other medical problems such as
hypothyroidism and lupus, but it is okay to have the tender points of
FMS or a mild case of depression/anxiety.
As a patient, you are deserving of medical care if the CFS symptoms
persist and you should pursue therapy options with your doctor.
However, when it comes to research studies or prevalence figures
determined by the CDC, you will not be included as a CFS patient if
you have any other co-existing medical condition (other than FMS and
mild depression/anxiety). On the other hand, FMS is viewed as a
distinct clinical entity that stands on its own, regardless of whether
a person has other medical problems. This may be one reason why the
prevalence figures for FMS (2% of the general population) are so much
higher than CFS (roughly 0.5% of the general population).
Questions to Ask a New Doctor
Fibro/CFS Foothold
http://www.tertius.net.au/foothold/doctor_questions.html
Seeing a new doctor is usually a harrowing experience, and people with
CFS and FMS have the added worries of 'Will they believe me?' and 'Do
they know anything useful about treating my problems?'. I am looking
for a new doctor at the moment, and this is a list that I compiled
before I started ...
Improving Doctor/Patient Communication Links
http://bcorsa.freeyellow.com/coping.html#communication
Symptoms of
Fibromyalgia
http://members.tripod.com/fibroark/id26.htm
You
may have all of these symptoms at one time or another, or only a few.
FIBROMYALGIA
IMPACT QUESTIONNAIRE (FIQ)
http://www.myalgia.com/fiq.pdf
FIBROMYALGIA
IMPACT QUESTIONNAIRE (FIQ) SCORING
http://www.myalgia.com/Paintools/FIQ%20scoring%20b.pdf
Purpose: The FIQ
is an assessment and evaluation instrument developed to measure
fibromyalgia (FM) patient status, progress and outcomes. It has been
designed to measure the components of health status that are believed
to be most affected by FM. The average FM patient scores about 50,
severely afflicted patients are usually 70 plus.
Weekly Chart
for use with FM / MPS / CFIDS / MS
By Paula Payne
http://www.tidalweb.com/fms/weeklypainchart10.pdf
Pain Scale for
FM & MPS
http://www.tidalweb.com/fms/fm_pain_scale.shtml
I designed this
pain scale as a tool to help the FM patient clearly communicate to
his/her doctor the pain levels hat he/she is experiencing. Hope it
helps! –Paula
My FibroJournal
http://members.tripod.com/fibroark/id39.htm
Suggested
Causes and Treatments of Fibromyalgia
By Ian
Anderson, B.Sc., DC
http://www.ncf.carleton.ca/fibromyalgia/anderson.htm
Fibromyalgia is
no joke! It is estimated that up to 4% of the U.S. adult population
has fibromyalgia.
Mercury Toxicity [Implications for Chronic Fatigue Syndrome and
Fibromyalgia Patients]
by Paul Dunn, M.D., ImmuneSupport.com
http://www.immunesupport.com/library/showarticle.cfm/id/3084/T/Both/
The
incidence of mercury toxicity is much more prevalent in the general
population than even possibly many physicians realize. It affects many
people from developing fetus to infants, children, and adults of all
ages. Reports in the recent past have pointed out the possibility of
mercury poisoning from leaking gas meters and other mercury containing
devices like thermometers, thermostats, blood pressure manometers,
barometers, and elemental mercury collected by hobbyists. The
incidence of mercury toxicity is actually greater than would be
expected from these sources alone.
Fibromyalgia
IS reversible - but you must DETOXIFY
http://goldberg.getwebspace.com/fibromyalgia.html
"I have yet to see a patient whose overall health was improved, whose
fibromyalgia did not improve as well." says Dr. Paul Goldberg in
Atlanta, who has had great success with no-drugs nutritional methods,
and with fasting and detoxification. Book extracts, patient letters,
description of healing methods.
Fibromyalgia
Medications
Arthritis
Foundation
http://www.arthritis.org/conditions/DrugGuide/about_fibromyalgia.asp
Despite the
prevalence of fibromyalgia, no drugs have been developed or approved
specifically for its treatment. However, researchers are currently
studying at least two drugs to treat the condition's multiple
symptoms.
Fibromyalgia
Tender Points Identified By the American College of Rheumatology in
1990
National
Fibromyalgia Partnership
http://www.fmpartnership.org/documents/sidetable.PDF
Disorders that accompany FMS
http://members.tripod.com/fibroark/id28.htm
Fibromyalgia and Sjogren’s Syndrome
http://www.myalgia.com/sjogrens.htm
There has been an increasing realization and interest over the last
few years that many patients with Sjogren’s syndrome have an
additional problem in the form of fibromyalgia and some patients
initially diagnosed with fibromyalgia also have Sjogren's.
Do
I have lupus or Fibromyalgia ?
Robert Bennett MD
http://www.myalgia.com/lupus.htm
This is not an uncommon question that I get asked. Unfortunately some
fibromyalgia patients are erroneously diagnosed as having lupus, a
potentially dangerous condition that affects about 2 in every 1000
people.
Headaches Due to
Myofascial Trigger Points
Devin Starlanyl, MD
http://www.tidalweb.com/fms/headache.shtml
There are many possible causes of headache. For people with the hyper
aroused autonomic nervous system of FMS, sensitivity to noise, cold,
heat and light can add to our headache woes.
Reactive
Hypoglycemia (RHG): FM/MPS Perpetuating Factor
Devin Starlanyl, MD
http://www.tidalweb.com/fms/rhg.shtml
It is thought that up to 85% of people with FM could have this
condition.
Managing Your Fibromyalgia
Karen Lee
Richards, Co-Director NFA
http://fmaware.org/patient/coping/managingfm.htm
A disease like
Fibromyalgia has a way of taking control of your life. It can consume
every ounce of your energy and every moment of your day if you don't
learn ways to manage it.
Fibromyalgia and
Exercise
American Academy
of Family Physicians
http://familydoctor.org/handouts/061.html
One of the best
things you can do if you have fibromyalgia is exercise.
Meditation
Arthritis
Foundation
http://www.arthritis.org/resources/arthritistoday/2001_archives/2001_01_02_meditation.asp
Taken daily, it
can untangle tension, fight fatigue and even lower your blood
pressure. It can lift your spirits and help you find inner peace.
What's more, it costs nothing, has no side effects and doesn't require
medical help.
But
I Can't Meditate!
Fibro/CFS Foothold
http://www.tertius.net.au/foothold/meditation.html
Since the 'Real Thing' didn't seem to be working, I went about finding
some alternatives to meditation ... this is what I came up with.
Find a
Rheumatologist
American College
of Rheumatology
http://www.rheumatology.org/directory/geo.asp
This compilation
is created and maintained by the ACR.
Treatment of Fibromyalgia
Robert Bennett MD
http://www.myalgia.com/Treatment/treatment.htm
Clinical Trials
- Fibromyalgia
National
Institutes of Health
http://clinicaltrials.gov/ct/gui/action/FindCondition?ui=D005356&recruiting=true
Genetics &
Fibromyalgia
Researchers at Case Western Reserve
University in
Cleveland, Ohio, are seeking volunteers to participate in a study of
genetics and fibromyalgia (FM) sponsored by the NIH National Institute
of Arthritis and Musculoskeletal and Skin Diseases (NIAMS). Study
participants must be diagnosed with fibromyalgia and have at least one
living family member (i.e., parent or sibling) who has also been
diagnosed with FM. Several study locations are available across the
country.
For more information or to volunteer, phone: (216) 778-4589 or email:
ffs@darwin.epbi.cwru.edu or write: Fibromyalgia Family Study,
Department of Epidemiology and Biostatistics, Case Western Reserve
University, MetroHealth Medical Center, 2500 MetroHealth Drive, R252A,
Cleveland, OH 44109.
Fibromyalgia
information for health care specialists:
back to the top
- back to
disability topics -
report a bad link
|
|
|
|
|