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Last Updated: 10/31/2017
 

 Disability Information - Prader-Willi Syndrome

 

General Information

Education & Classroom Accommodations

Michigan Resources, Support Groups, Listservs & Websites

National Resources & Websites

Articles Related to this Disability

Medical Information

Books & Videos

Personal Home Pages & Websites

 

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 General Information

For more information, visit http://www.pwsausa.org/. Information in this section from PWUSA.org.

 

About Prader-Willi syndrome

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 Education & Classroom Accommodations

Information for School Staff: Supporting the Student Who Has Prader-Willi Syndrome - All students with PWS are individuals. Each have varying strengths and needs. This chart does not reflect the behavioral needs of all children &young adults.

 

General Overview of Prader-Willi for Teachers (PDF)

 

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 Michigan Resources, Support Groups, Listservs & Websites

 

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 National Resources & Websites

Links to other PWS Websites

 

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 Articles Related to this Disability

MI Schneider: Haslett Team Effort Makes Winners Out of Everybody - The last race of the recent Laingsburg Cross Country Invitational had been run, and the teams were packing up to go home. Except those from Haslett High School.

 

WA Rare syndrome has 3 victims, medical experts say - In cases of Prader-Willi syndrome, experts say there are really three victims: the child who must suffer through a lifetime of insatiable hunger, and the mother and father who must constantly deny food to their child so he doesn't die.
 
 

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 Medical Information

Finding Psychiatric Help for Your Child - This document covers what to look for in a consultant and how to prepare for the consultation in order to make the most out of the time. This document is for parents, teachers, psychologists and other providers seeking psychiatric help for the child or adult with PWS.
 

Food Security - This document describes the basic principles which greatly aid in maintaining both weight and behavioral control.
 

Psychiatrists' Primer for PWS - Includes principles of Food Security and Treatment algorithms for common presenting problems.

 

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 Books & Videos

 

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 Personal Home Pages & Websites

 

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