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Last Updated: 04/12/2018

Health & Safety: The Care Notebook  (back to Health & Safety)

We recently came across this WONDERFUL resource for parents.  The Care Notebook was created by The Center for Children with Special Needs and is available on the web at:


The Care Notebook and Care Organizer are tools for families who have children with special health care needs. Families use Care Notebooks to keep track of important information about their child's health and care. This makes it easier to find and share key information with their child's care team.
What are the Care Notebook and Care Organizer?
The Care Notebook is a 3-ring binder. It contains supplies that make it easier to find information quickly. These supplies include plastic pages that hold business cards and several pocket dividers that hold papers. The Care Notebook also contains forms that families may fill in. These 39 forms are available below.
The Care Organizer is a plastic expanding file folder with individual pockets labeled to help organize paperwork. Multi-lingual including English, Spanish, Vietnamese, Russian, Chinese and Somali.
How can they help?
In caring for a child with special health needs, families may get information and paperwork from many sources. Families can use the Notebook or Organizer to help organize the most important information in a central place.
What is available here?
You can get copies of the forms included in the Care Notebook. Families may use these pages to keep track of appointments and health care, to create a list of their care team and resources, and to create a summary of their child's abilities and care needs. Most families do not need or want every page.

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