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 Disability Information - Cerebral Palsy

 

General Information

Education & Classroom Accommodations

Assistive Technology

Michigan Resources, Support Groups, Listservs & Websites

National Resources & Websites

Articles Related to this Disability

Medical Information

Books & Videos

 

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 General Information

When Your Child Has Cerebral Palsy
Nemours Foundation
http://kidshealth.org/parent/medical/brain/cerebral_palsy.html
Cerebral palsy (CP) is one of the most common congenital (existing before birth or at birth) disorders of childhood. About 500,000 children and adults of all ages in this country have cerebral palsy, and the overall incidence is rising because premature babies who once would have died are surviving. A preemie's risk of cerebral palsy is much higher than that of a full-term baby. Premature babies who weigh less than 3.3 pounds (1510 grams) are up to 30 times more likely to develop cerebral palsy than full-term babies.
 

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 Education & Classroom Accommodations

Assistive Technology in K-12 Schools
Alliance for Technology Access
http://www.ataccess.org/
Assistive Technology in K-12 Schools gives a range of information about integrating assistive technology into schools.
 

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 Michigan Resources, Support Groups, Listservs & Websites

UCP Michigan
http://www.ucpmichigan.org/
UCP Michigan believes that every person with a disability has a right to be a full member of his or her community. UCP Michigan knows that people with disabilities and their families will have to work hard to get the services they need, and that parents of children with cerebral palsy need information and support as they search for answers and services. UCP wants to be there for parents of children with cerebral palsy and for people with disabilities when they need information about their rights and about how to go about getting the services and equipment they need.

 

UCP OF METROPOLITAN DETROIT
UCP/Detroit provides information and referral services, employment programs (Rehabilitation Renaissance and One Stop To Success, a partnership with the Department of Labor), individual and family support services (Parents Training Parents and Advocacy), community inclusion and independent living supports and community education.
 
Conductive Education Center of Metro Detroit
http://www.cecmd.com/
Conductive education is a program designed to help children with cerebral palsy learning disabilities and other motor disorders to increase their physical strength, mobility and independence. The therapist, or ‘Conductor’ is trained in all areas of rehabilitation, including education, physical therapy, occupational therapy, speech therapy and psychology. In conductive education, the children are encouraged to master their environment, rather than have their environment be adapted to their needs. Although conductive education is sometimes viewed as alternative therapy, it’s main difference is simply that the conductor provides several types of therapeutic activities simultaneously. It is carried out in a group setting, in which the children, even those with learning disabilites, are motivated by each other’s progress, along with singing to provide cadence and a fun atmosphere for learning.
 
The Physical Medicine and Rehabilitation Department at Children's Hospital of Michigan
http://www.chmkids.org/chm/deprtmnts/physicalmedicinerehab.html
Our goal is to help patients gain control over their bodies to the best of their ability and help them to integrate into community based schooling and work programs.

 National Resources & Websites

GBKids.com - "As parents, we are motivated to provide our children with the best opportunities for play and learning. As a parent of a child with multiple disabilities, I have selected products for my child that allow her to fit in with her peers at school and around the neighborhood. We feature those same products on our website."

 

eCerebralPalsy.com - Does your child suffer from Cerebral Palsy? Have you been searching for answers to your questions about cerebral palsy? In this site you'll find many articles and resources about cerebral palsy. We have thoroughly researched the best sites about this medical condition. Please enter by clicking on the link below or use one of the links below to go directly to a specific section of this site.

 

Health Journals for Parents of Kids with Special Needs - "When my daughter was diagnosed, I created a health journal to help organize all of her medical information. Soon, the clinic asked me to make 40 more for the other parents." The Little Acorn now offers many versions of this book which have been customized to fit specific disabilities. Visit the website for more details or to order. Available items (New products added often - see website for current offerings): "Juggling Autism" Starter Kit, "Juggling Cystic Fibrosis” Starter Kit, "Juggling Down Syndrome” Starter Kit, "Juggling Cerebral Palsy" Starter Kit, "Juggling Asthma" Starter Kit, "Juggling Diabetes" Starter Kit, "Healthy Kids” Starter Kit, "A Woman's Health Journal", and "The Courage Book”
 

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 Articles Related to this Disability

WV Local Artist Exhibits in Charleston - Nine paintings by Tucker Lewis, a 10-year-old Morgantown resident with cerebral palsy, were displayed this week at the Charleston Civic Center. Tucker, who can't physically hold a paint brush, paints using the Artistic Realization Technologies method.

 

For information on the Hart Walker, visit http://www.cplqld.org.au/techsupport/hartwalker/index_html.

 

Cerebral Palsy Magazine: New Publication for Parents and Professionals - Cerebral Palsy Magazine™ is a quarterly special-interest publication focusing on issues related to Cerebral Palsy.  First issue of this new magazine was published in June 2003.

 

Specially Designed Walker Brings Hope To Young Cerebral Palsy Victims - Children with cerebral palsy often rely on walkers and wheelchairs to get around since their small bodies just aren't strong enough to give appropriate support. Now there's a device that's paving the way for what could be a remarkable journey for thousands to follow.

 

Read "A new tool to assess birth defect" - Canadian researchers have developed motor-development charts to help parents better gauge the outlook for a baby born with cerebral palsy.

 

Story on Cerebral Palsy
Nemours Foundation
http://kidshealth.org/teen/diseases_conditions/brain_nervous/story_cerebral_palsy.html
Do you know someone who has cerebral palsy? Chances are you might. Each year 10,000 new cases of cerebral palsy are diagnosed in the United States. Maybe someone at your school has cerebral palsy - or maybe you have it and you've been dealing with it your whole life. At a time when you're more conscious of your appearance and body image, it can be tough to be in a wheelchair or to have to use crutches to get around. But having cerebral palsy doesn't mean you can't do what other teens do. And if you know someone who has cerebral palsy, it helps to be a supportive friend. Keep reading for the story on cerebral palsy.

 

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 Medical Information

What is Conductive Education? - Developed in 1945 in Hungary by Dr. Andras Peto, conductive education is based on the theory that the central nervous system has the capacity to form new neural connections, despite neurological damage. By repeating tasks and integrating intentional movement with learning, the brain creates alternate paths to send messages to muscle groups, creating the desired movements. Through this, a child can gain movement and skills, and achieve greater levels of independence.
 

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 Books & Videos

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 Assistive Technology

Consumers: People who buy and use wheelchairs
http://www.wheelchairnet.org/WCN_ProdServ/Consumers/start.html
As a person who is new at using a wheelchair or as a family member of a person who is new to using a wheelchair, you probably have many questions. In fact you may be feeling overwhelmed by the amount of information and the kinds of decisions you are now faced with. (As WheelchairNet develops we plan to include some software resources that will help with this decision-making process.)
 
FDA Approves Stair-Climbing Wheelchair
Food and Drug Administration
http://www.fda.gov/bbs/topics/NEWS/2003/NEW00933.html
The Food and Drug Administration (FDA) today approved a battery-powered wheelchair that relies on a computerized system of sensors, gyroscopes and electric motors to allow indoor and outdoor use on stairs, as well as on level and uneven surfaces.
 
Assistive Technology: Frequently Asked Questions
Alliance for Technology Access
http://www.ataccess.org/resources/fpic/faq/default.html
The following are the most frequently asked questions of the Alliance for Technology Access. As technology and solutions continue to change, so do both the questions and their answers.
 
Assistive Technology: What You Need to Know
Alliance for Technology Access
http://www.ataccess.org/resources/fpic/whaten.html
Assistive technology is a growing and complex field. New developments happen daily.
 
Emerging Trends in Medical Device Technology
Food and Drug Administration, By Carol Lewis
http://www.fda.gov/fdac/features/2001/301_home.html
Medical devices, products and technologies are converging to revolutionize home- and self-care health systems in the United States, making it possible for people to play a greater role in maintaining their own health.
 
NIDRR's Long Range Plan - Technology for Access and Function Research
National Institute on Disability and Rehabilitation Research
http://www.ncddr.org/rpp/techaf/lrp_ov.html
For Americans without disabilities, technology makes things easier. For Americans with disabilities, technology makes things possible.
 

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NOTE: (ALL RESOURCES PRE-IDEA 2004 ARE FOR INFORMATIONAL/HISTORICAL RESEARCH PURPOSES ONLY)