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 Disability Information - Rett Syndrome

 

General Information

Education & Classroom Accommodations

Michigan Resources, Support Groups, Listservs & Websites

National Resources & Websites

Articles Related to this Disability

Medical Information

Books & Videos

Personal Home Pages & Websites

 

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 General Information

For more information, visit http://www.rettsyndrome.org/.

 

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 Education & Classroom Accommodations

 

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 Michigan Resources, Support Groups, Listservs & Websites

 

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 National Resources & Websites

 

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 Articles Related to this Disability

Integrated at Last: The Right to Belong, The Story of Yvonne

 

Rosetta Stone Explains Rett Syndrome - Rett Syndrome (RS), a neurological orphan disease of children that was long relegated to obscure articles and the fervent concern of parents, might soon be adopted into a family of higher-profile neurologic disorders.

   

A Wonderful and Hopeful Story: Potential Treatment for Rett - Caroline, now age six, began having seizures when she was just two days old. As she grew older, the seizures persisted, and by the time she was 5, Caroline had lost all of her hand function, with her hands held tightly at her chest. She had ataxia and her breathing was abnormal. She had never walked or talked.
 

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 Medical Information

 

Existing Drug Reverses a Form of Mental Retardation in Mice - Scientists hope medication could treat learning disorders caused by autism. A drug already on the market for a completely unrelated condition could be used to treat a form of mental retardation linked to autism—if the results of a study in mice hold up, researchers report. Scientists used rapamycin—a medication doctors prescribe to patients who have had transplants to prevent their bodies from rejecting the new organs—to treat learning disorders associated with a disease called tuberous sclerosis complex (TSC) in mice.

 

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 Books & Videos

 

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 Personal Home Pages & Websites

 

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NOTE: (ALL RESOURCES PRE-IDEA 2004 ARE FOR INFORMATIONAL/HISTORICAL RESEARCH PURPOSES ONLY)