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                Beltway Briefs: 
                SSA To Update Rules For Evaluating Mental Retardation and OSEP 
                Indicates Respite Services Not Required Under IDEA Part C 
                Beltway 
                Briefs is a weekly series covering administrative activity, 
                litigation, legislative activity, media issues, research 
                initiatives, and national advocacy activity of interest to 
                member state agencies. Please feel free to contact me with 
                comments, questions, or suggestions by e-mail at
                dberland@nasddds.org 
                or call (703) 683-4202 or fax to (703) 684-1395. I appreciate 
                the input.by Dan Berland, Federal Policy Analyst, March 28, 2003
 For more articles like this 
                visit 
                https://www.bridges4kids.org
 
                SSA To Update Rules For Evaluating 
                Mental Retardation
 
 The Social Security Administration (SSA) is planning to update 
                and revise the rules it uses to evaluate “mental disorders,” 
                including mental retardation, in both adults and children who 
                apply for Social Security disability benefits or Supplemental 
                Security Income (SSI) payments based on disability. SSA's 
                "Listing of Impairments" specifies the detailed criteria, bodily 
                system by bodily system, that SSA uses in determining whether an 
                applicant meets the statutory eligibility criteria to receive 
                SSI or SSDI disability benefits. Even relatively minor changes 
                in SSA's criteria for qualifying for SSI or SSDI benefits on the 
                basis of mental retardation can affect whether thousands of 
                children or adults nationwide are determined eligible to receive 
                federal income maintenance payments. The loss of SSI eligibility 
                means that groups of individuals may lose categorical 
                eligibility for Medicaid benefits, meaning, for example, that 
                states can no longer claim federal funding on their behalf if 
                they are enrolled in a waiver program or ICF/MR services.
 
 Before drafting any revisions, SSA is asking interested people 
                and organizations to send them comments and suggestions for 
                revising the rules they use to evaluate mental disorders. SSA is 
                also interested in any ideas you have about how to improve their 
                programs for people who have mental disorders, especially those 
                who would like to work full-time or part-time with supports. The 
                Social Security Administration will accept your comments by e-mail to
                regulations@ssa.gov; by 
                fax to (410) 966-2830; or by letter to the Commissioner of 
                Social Security, PO Box 17703, Baltimore, MD 21235-7703 no later 
                than June 16, 2003.
 
 OSEP Indicates Respite Services Not 
                Required Under IDEA Part C
 
 The Office of Special Education Programs (OSEP) in the U.S. 
                Department of Education (ED) has released a letter indicating 
                that respite is not a required early intervention service under 
                Part C of the Individuals with Disabilities Education Act 
                (IDEA). According to the letter, issued by OSEP Director 
                Stephanie Lee, the term “respite,” as used in sections of Part C 
                that list services that could be considered a necessary part of 
                early intervention, is “not intended to mean ‘reprieve’ or 
                ‘rest’ but rather a child care-type service provided to enable 
                parent(s) to participate or receive other early intervention 
                services.”
 
 Part C of IDEA requires that appropriate early intervention 
                services must be available to all eligible children and their 
                families. The Part C regulations list 16 types of services 
                included under “early intervention services,” but indicate that 
                the list is not exhaustive, and mention “respite” as another 
                possible component of early intervention services. According to 
                the OSEP letter, “respite” here is not intended to serve as 
                child-care or “baby-sitting” assistance in ordinary 
                circumstances, but rather as in-home or other care arrangements 
                for a child in order to allow the child’s family to participate 
                in early intervention services that include a defined family 
                component, such as family training or counseling services, 
                psychological services, or social work. Lee suggests that in 
                order for a parent to develop the capacity to assist his/her 
                child in meeting his/her developmental needs, the parent may 
                need respite or other type of care for the child while the 
                parent participates in appropriate early intervention 
                activities. Under these circumstances, the state is required to 
                provide respite or equivalent care.
 
 Lee also provides formal clarification as to whether states have 
                discretion in determining what services are provided in addition 
                to those expressly listed in Part C of IDEA. Early intervention 
                services needed by a particular child are determined through the 
                Individualized Family Service Plan (IFSP) process. The letter 
                points out that the early intervention services that meet the 
                unique needs of a child and the supports and services necessary 
                to enhance the family’s capacity to meet the developmental needs 
                of the child are determined through the IFSP process. The state 
                is required to provide any service meeting Part C’s definition 
                of early intervention services that an IFSP indicates is 
                necessary to meet the developmental needs of the child or the 
                need of the family to enhance the child’s development.
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