Featured
Website:
Cerebral Palsy Toys & Play Aids Why toys and why play? Throughout this site you will find
“Quotable quotes” from a variety of individuals who have in common, an
understanding of the importance of play in all of our lives. A child
with cerebral palsy is first and foremost a child. “Play” is the
“work” of childhood and toys are the tools used in that work. Featured
Website:
Cerebral Palsy: Equipment & Accessories Cerebral palsy is a lifelong condition, and it requires a lot
from the family and loved ones of the child affected. As with any
child, constant care and love are always needed, but the child with
cerebral palsy needs a lot more.
Featured
Website: Caring
For Cerebral Palsy This site addresses the specifics of caring for a child with
cerebral palsy: bathing, dental care, dressing, exercise, feeding,
hearing, nutrition, play, seizures, sleep, suctioning techniques,
suppositories & enemas, toilet training & bowel issues, and vision
care. Information comes to you in the form of excerpts from texts
we've found useful, and links to sites that offer additional
perspective.
Featured
Website:
Treating Cerebral Palsy Treatment options that this website explores include behavioral
therapy, counseling, braces, drugs, mechanical aids, music therapy,
dance therapy, physical therapy, occupational therapy, play therapy,
and speech & language therapy and surgery.
When Your Child Has Cerebral Palsy Nemours Foundation
http://kidshealth.org/parent/medical/brain/cerebral_palsy.html
Cerebral palsy (CP) is one of the most common congenital (existing
before birth or at birth) disorders of childhood. About 500,000
children and adults of all ages in this country have cerebral palsy,
and the overall incidence is rising because premature babies who once
would have died are surviving. A preemie's risk of cerebral palsy is
much higher than that of a full-term baby. Premature babies who weigh
less than 3.3 pounds (1510 grams) are up to 30 times more likely to
develop cerebral palsy than full-term babies.
NINDS Cerebral Palsy Information Page
http://www.ninds.nih.gov/health_and_medical/disorders/cerebral_palsy.htm
Cerebral palsy is an umbrella-like term used to describe a group of
chronic disorders impairing control of movement that appear in the
first few years of life and generally do not worsen over time. The
disorders are caused by faulty development of or damage to motor areas
in the brain that disrupts the brain's ability to control movement and
posture. Symptoms of cerebral palsy include difficulty with fine motor
tasks (such as writing or using scissors), difficulty maintaining
balance or walking, involuntary movements. The symptoms differ from
person to person and may change over time.
Cerebral Palsy -- Hope Through Research National Institute of Neurological Disorders and Stroke
http://www.ninds.nih.gov/health_and_medical/pubs/cerebral_palsyhtr.htm
In the 1860s, an English surgeon named William Little wrote the first
medical descriptions of a puzzling disorder that struck children in
the first years of life, causing stiff, spastic muscles in their legs
and, to a lesser degree, their arms. These children had difficulty
grasping objects, crawling, and walking. They did not get better as
they grew up nor did they become worse. Their condition, which was
called Little's disease for many years, is now known as spastic
diplegia. It is just one of several disorders that affect control of
movement and are grouped together under the term cerebral palsy.
Cerebral Palsy March of Dimes Birth Defects Foundation
http://www.marchofdimes.com/professionals/681_1208.asp
Cerebral palsy refers to a group of conditions that affect control of
movement and posture. Due to damage to one or more parts of the brain
that control movement, an affected child cannot move his or her
muscles normally. While symptoms range from mild to severe, the
condition does not get worse as the child gets older. With treatment,
most children can significantly improve their abilities.
Cerebral Palsy Mayo Foundation for Medical Education and Research
http://www.mayoclinic.com/invoke.cfm?id=DS00302
Cerebral palsy is a general term referring to abnormalities of motor
control caused by damage to a child's brain early in the course of
development. The damage can occur during fetal development, during the
birth process or during the first few months after birth. Cerebral
palsy can result in abnormalities of movement and posture in various
parts of the body.
Cerebral Palsy National Center on Birth Defects and Developmental Disabilities
http://www.cdc.gov/ncbddd/dd/ddcp.htm
Cerebral palsy refers to a group of disorders that affect a person's
ability to move and to maintain balance and posture. It is due to a
nonprogressive brain abnormality, which means that it does not get
worse over time, though the exact symptoms can change over a person's
lifetime.
Cerebral Palsy Definition - Cerebral Palsy A-Z
http://www.about-cerebral-palsy.org/definition/index.html
What is the Definition of Cerebral Palsy? Cerebral palsy is a term
used to describe a group of chronic conditions affecting body
movements and muscle coordination. It is caused by damage to one or
more specific areas of the brain, usually occurring during fetal
development, or during infancy. It can also occur before, during or
shortly following birth.
Types of Cerebral Palsy
http://www.about-cerebral-palsy.org/definition/spastic-athetoid-ataxic.html
Cerebral palsy is a broad term which encompasses many different
disorders of movement and posture. To describe particular types of
movement disorders covered by the term, pediatricians, neurologists,
and therapists use several classification systems and many labels. To
understand different types of cerebral palsy more clearly, you must
first understand what professionals mean by muscle tone.
Cerebral Palsy Statistics
http://www.about-cerebral-palsy.org/definition/statistics.html
Because cerebral palsy influences the way children develop, it is
known as a developmental disability. In the United States today, more
people have cerebral palsy than any other developmental disability,
including Down syndrome, epilepsy, and autism.
Cerebral Palsy Glossary
http://www.about-cerebral-palsy.org/definition/glossary.html
Cerebral palsy is a broad term which encompasses many different
disorders of movement and posture. To describe particular types of
movement disorders covered by the term, pediatricians, neurologists,
and therapists use several classification systems and many labels. To
understand different types of cerebral palsy more clearly, read
through our interactive glossary.
Medical Malpractice and Cerebral Palsy
http://www.about-cerebral-palsy.org/diagnosis/negligence-malpractice.html
Did a medical mistake cause your child's cerebral palsy?
Unfortunately, medical mistakes are the cause of thousands and
thousands of cerebral palsy cases. Doctors and hospitals make
mistakes during delivery.
Cerebral Palsy Diagnosis
http://www.about-cerebral-palsy.org/diagnosis/index.html
How is the Diagnosis of Cerebral Palsy Made? When an infant or child
has brain damage, a variety of symptoms can lead doctors and parents
to suspect that something is wrong.
Risk Factors for Cerebral Palsy
http://www.about-cerebral-palsy.org/diagnosis/risk-factors.html
A risk factor is not a cause, it is a variable which, when present,
increases the chance of something occurring. In other words, a risk
factor for cerebral palsy is not a cause of cerebral palsy, it is a
variable that could increase your child's chances of developing
cerebral palsy.
Causes of Cerebral Palsy
http://www.about-cerebral-palsy.org/diagnosis/causes.html
Why does your child have cerebral palsy? The simplest answer to this
question is because your child has brain damage. This leads naturally
into the second question: Why does your child have brain damage?
Therapy and Treatment for Cerebral Palsy
http://www.about-cerebral-palsy.org/treatment-therapy/index.html
Following your child's interdisciplinary assessment, the professionals
providing care for your child will develop recommendations for his or
her treatment.
History of Cerebral Palsy in Children
http://www.about-cerebral-palsy.org/cerebral-palsy-history/index.html
Cerebral palsy is not a new disorder. There have probably been
children with cerebral palsy as long as there have been children. But
the medical profession did not begin to study cerebral palsy as a
distinct medical condition until 1861.
Cerebral Palsy Q & A
http://www.cerebralpalsycanada.com/Q&A.htm
Every person who has cerebral palsy is unique. CP describes many
different types of disability, ranging from mild to severe, with
different causes, affecting individuals in many ways. If you are new
to cerebral palsy, you may find yourself struggling with a bewildering
number of medical and technical terms.
Cerebral Palsy Connection
http://www.cpconnection.com/
Hello there. My name is JessePaul and this is Cerebral Palsy
Connection. CPC exists to allow those with CP to communicate with each
other. Communication is very important in coping with the disability.
All to often those with CP (or any other disability) feel isolated and
alone. Communication is just as much a healing method as therapy or
medication used by doctors. CPC soul existence is to bridge the gap
and tries to help people realize they are not alone in the world in
everything that must be dealt with CP.
Myths About Cerebral Palsy
http://geocities.com/aneecp/myth.htm
The following are myths and stereotypes that are told about Cerebral
palsy.
Classification of Athletes with Cerebral Palsy and Related
Neurological Conditions
http://ed-web3.educ.msu.edu/kin866/cfpalsy.htm
Athletes with cerebral palsy, stroke, and head injury are placed into
one of eight classes based partly upon the degree of spasticity,
partly upon the athlete's coordination, and partly upon the number of
limbs/body parts involved. Classes 1-4 are for athletes who compete
from a seated position, and Classes 5-8 are for athletes who are
ambulatory. The following brief description of the eight-class system
was modified from the web site of the CP Sport/England and Wales
organization at
http://www.cpsport.org.
Examples of Accommodations in a School Environment, Example #2 -
Cerebral Palsy
http://web.macam98.ac.il/~shayke/thenapa/Examples1.htm#cp
Sarah is a very bright seventeen year old girl who plans on graduating
from high school at the end of next year. Sarah has cerebral palsy.
She has spasticity (frequent, painful muscle spasms) in her arms and
legs, and has difficulty speaking. For these reasons, she uses a
wheelchair for mobility and an augmentative communication device (an
electronic device that enables her to speak with artificial speech).
She needs assistance getting dressed and preparing meals. She lives in
a small town with few resources.
Teaching Students with Mobility Impairments
http://dsp.berkeley.edu/TeachStudentsWithDisab.html#11
Mobility impairments can have many causes: for example, cerebral
palsy, multiple sclerosis, muscular dystrophy, and spinal cord injury.
Students with mobility impairments have varying physical limitations
and deal with their limitations in different ways; they may use
crutches, braces, or a wheelchair.
Students With Physical Exceptionalities Special Needs
Opportunity Windows
http://snow.utoronto.ca/best/teachingstrategies/physical.html
Students with physical problems are as individual as any other group
of students. Most students with physical disabilities or chronic
health concerns have had extensive involvement with other
professionals, such as doctors and nurses, physiotherap ists and
occupational therapists. Professionals in the medical and
rehabilitation fields can suggest appropriate accommodation for
students with artificial limbs, spina bifida, cerebral palsy, spinal
cord injuries, etc. All plans for these students should involve
parents and these professionals, whenever possible.
Assistive Technology in K-12 Schools
Alliance for Technology Access
http://www.ataccess.org/resources/atk12/default.html
Assistive Technology in K-12 Schools gives a range of information
about integrating assistive technology into schools.
School Dayz The Cerebral Palsy Network
http://www.geocities.com/Heartland/Plains/8950/schooldazes.html
Since we first started our school dazes pages when IDEA was in it's
baby stages in my opinion we've tried to help you obtain as much
information as we could to assist you in having the best and most
appropriate education for your child.
Daycare for a Child with a Disability: Who Is Fighting for You? by Gale Jurasek
http://www.cerebralpalsy.org/story_courage01.htm
Brenda Hull, who lives in Greater Dane County, Wisconsin, had problems
finding daycare for her son, Jacob. Jacob has cerebral palsy,
cognitive delays, and a seizure disorder. She knew how important it
was for him to have social contact with children his own age, and when
he was 2, Jacob attended a "highly recommended childcare program" for
a few hours each day.
Michigan
Resources, Support Groups, Listservs & Websites
UCP
Michigan
http://www.ucpmichigan.org/
UCP Michigan believes that every person with a disability has a right
to be a full member of his or her community. UCP Michigan knows that
people with disabilities and their families will have to work hard to
get the services they need, and that parents of children with cerebral
palsy need information and support as they search for answers and
services. UCP wants to be there for parents of children with cerebral
palsy and for people with disabilities when they need information
about their rights and about how to go about getting the services and
equipment they need.
What is
Conductive Education? - Developed in
1945 in Hungary by Dr. Andras Peto, conductive education is based on
the theory that the central nervous system has the capacity to form
new neural connections, despite neurological damage. By repeating
tasks and integrating intentional movement with learning, the brain
creates alternate paths to send messages to muscle groups, creating
the desired movements. Through this, a child can gain movement and
skills, and achieve greater levels of independence.
UCP OF METROPOLITAN
DETROIT
http://www.ucp.org/ucp_local.cfm/89
UCP/Detroit provides information and referral services, employment
programs (Rehabilitation Renaissance and One Stop To Success, a
partnership with the Department of Labor), individual and family
support services (Parents Training Parents and Advocacy), community
inclusion and independent living supports and community education.
Conductive Education Center of Metro Detroit
http://www.cecmd.com/
Conductive education is a program designed to help children with
cerebral palsy learning disabilities and other motor disorders to
increase their physical strength, mobility and independence. The
therapist, or ‘Conductor’ is trained in all areas of rehabilitation,
including education, physical therapy, occupational therapy, speech
therapy and psychology. In conductive education, the children are
encouraged to master their environment, rather than have their
environment be adapted to their needs. Although conductive education
is sometimes viewed as alternative therapy, it’s main difference is
simply that the conductor provides several types of therapeutic
activities simultaneously. It is carried out in a group setting, in
which the children, even those with learning disabilites, are
motivated by each other’s progress, along with singing to provide
cadence and a fun atmosphere for learning.
Advantage Mobility Outfitters
http://www.advantagemo.com/
Since 1979, Advantage Mobility Outfitters has been committed to
developing, installing, and delivering the highest quality mobility
solutions possible. Always sensitive to the unique needs of our
customers, we dedicate ourselves to design solutions that fit your
individual needs. We also offer a pick-up and delivery service, as
well as a mobile repair unit that can be dispatched to your home or
business.
The Physical Medicine and Rehabilitation Department at Children's
Hospital of Michigan
http://www.chmkids.org/chm/deprtmnts/physicalmedicinerehab.html
Our goal is to help patients gain control over their bodies to the
best of their ability and help them to integrate into community based
schooling and work programs.
Wheelchair Seating Service:
University of Michigan Health Services
http://www.michiganallianceforfamilies.orgDetails_Resource.asp?ResourceID=98
UMHS Wheelchair Seating Service rehabilitation specialists provide
enabling technology in the areas of wheeled mobility, seating, and
ambulation equipment, which are designed to meet the needs of people
with long-term disabilites.
Easter Seal Society of
Michigan
4065 Saladin Drive, S.E.
Grand Rapids, MI 49546
(616) 942-2081; (800) 292-2729 (in MI)
E-mail:
EESofMich@aol.com
STATE VOCATIONAL REHABILITATION AGENCY
Michigan Dept. of Career Development
Michigan Rehabilitation Services
P.O. Box 30010
Lansing, MI 48909
(517) 373-3391
OFFICE OF STATE COORDINATOR OF VOCATIONAL EDUCATION FOR STUDENTS WITH
DISABILITIES Special Populations, Programs, & Services
Office of Career and Technical Education Service
Department of Education
P.O. Box 30008
Lansing, MI 48909
(517) 373-6866
STATE MENTAL HEALTH AGENCY
Department of Community Health
Lewis-Cass Bldg.
320 South Walnut Boulevard
Lansing, MI 48913
(517) 373-3500
STATE MENTAL HEALTH REPRESENTATIVE FOR CHILDREN AND YOUTH
Division of Mental Health Services to Children and Families
3423 N. Martin Luther King Blvd.
P.O. Box 30195
Lansing, MI 48909
(517) 335-9261
STATE MENTAL RETARDATION PROGRAM
Community Living, Children and Families Administration
Department of Community Health
3423 N. Martin Luther King Jr. Blvd., Room 218
Lansing, MI 48909
(517) 335-9371
STATE DEVELOPMENTAL DISABILITIES PLANNING COUNCIL
MI Developmental Disabilities Council
Lewis Cass Building
Lansing, MI 48913
(517) 334-6123
PROGRAMS FOR CHILDREN WITH SPECIAL HEALTH CARE NEEDS
Children's Special Health Care Services Plan Division
Plan Administration and Customer Services Bureau
Medical Services Administration
Department of Community Health
400 S. Pine, P.O. Box 30479
Lansing, MI 48909-7979
(517) 335-8207
Physically Impaired Association of
Michigan (PIAM)
1023 South US-27
St. Johns, MI 48879-2423
(517) 224-0333
Developmental Disabilities Institute, Wayne State University
326 Justice Building
6001 Cass Avenue
Detroit, MI 48202
(313) 577-2654
Tech 2000: Michigan's Assistive Technology Project
Michigan Disability Rights Coalition
740 W. Lake Lansing Road, Suite 400
Michigan Disability Rights Coalition
East Lansing, MI 48823
(800) 760-4600; (517) 333-2477
Web:
www.copower.org/
VSA (Very Special Arts) Michigan
21700 Northwestern Highway, Suite 730
Southfield, MI 48075-4902
(248) 423-1080
E-mail:
vsami@ic.net
GBKids.com -
"As parents, we are motivated to provide our children with the
best opportunities for play and learning. As a parent of a child
with multiple disabilities, I have selected products for my child
that allow her to fit in with her peers at school and around the
neighborhood. We feature those same products on our website."
eCerebralPalsy.com - Does your child
suffer from Cerebral Palsy? Have you been searching for answers to
your questions about cerebral palsy? In this site you'll find many
articles and resources about cerebral palsy. We have thoroughly
researched the best sites about this medical condition. Please enter
by clicking on the link below or use one of the links below to go
directly to a specific section of this site.
Health
Journals for Parents of Kids with Special Needs - "When my
daughter was diagnosed, I created a health journal to help organize
all of her medical information. Soon, the clinic asked me to make 40
more for the other parents." The Little Acorn now offers many versions
of this book which have been customized to fit specific disabilities.
Visit the website for more details or to order. Available items (New
products added often - see website for current offerings): "Juggling
Autism" Starter Kit, "Juggling Cystic Fibrosis” Starter Kit, "Juggling
Down Syndrome” Starter Kit, "Juggling Cerebral Palsy" Starter Kit,
"Juggling Asthma" Starter Kit, "Juggling Diabetes" Starter Kit,
"Healthy Kids” Starter Kit, "A Woman's Health Journal", and "The
Courage Book”
UCP
National (aka United Cerebral Palsy)
http://www.ucpa.org/
UCP is the leading source of information on cerebral palsy and is a
pivotal advocate for the rights of persons with any disability. As one
of the largest health charities in America, UCP's mission is to
advance the independence, productivity and full citizenship of people
with cerebral palsy and other disabilities. American Academy for Cerebral Palsy and Developmental Medicine
http://www.aacpdm.org/
Ontario Federation for Cerebral Palsy
http://www.ofcp.on.ca/
Over the past few years, the Ontario Federation for Cerebral Palsy has
been embarking on the development of a Long Term Planning and Support
Program. The program is being created to address the age old question
of "Who will take care of my son or daughter with a disability after
I'm gone?"
Cerebral Palsy SPORTS OF bc
http://www.cpsports.com/
SportAbility is committed to providing recreation and sport
opportunities for athletes with disabilities.
Scope
http://www.scope.org.uk/
Scope is a disability organisation in England and Wales.
Our focus is people with cerebral palsy (cp).
Cerebral Palsy Society of New
Zealand
http://www.cpsoc.org.nz/
Our overriding philosophy is that individuals with Cerebral Palsy are
people first. They have a right to a home life and day activities as
close to normal patterns as their disabilities allow.
Easter Seals
http://www.easter-seals.org/site/PageServer
Easter Seals provides services to children and adults with
disabilities and other special needs, and support to their families.
North American Growth in Cerebral Palsy Project
http://www.people.virginia.edu/~mon-grow/
Children with Cerebral Palsy often do not grow the same as other
children. Children with CP are often shorter and thinner than other
children of the same age. We do not know if this is "normal," or if
there could be a problem with nutrition or hormones, and so we are
interested in discovering what is "just right" for a child with CP.
The first step in understanding growth in Cerebral Palsy is to measure
a large group of children with CP. This study is under way in six
different medical centers in the United States and Canada.
MI
Eaton Rapids Teen Named Miracle Network Champ - For most of his life,
Eric Lownsbery relied on crutches or a walker to get around. The 15-year-old
from Eaton Rapids was born with cerebral palsy, a brain disorder that causes
loss of muscle control. As he grew, his feet turned in and his back arched -
making walking more and more difficult. An innovative surgery changed his life.
Resources: The Sparrow Regional Children's Center at Sparrow Hospital is one of
170 children's hospitals in the Children's Miracle Network. With the help of the
network, Sparrow has raised about $15 million since 1988. Some of that money
will help build mid-Michigan's first pediatric emergency room at Sparrow, due to
be completed in 2006. Also, be sure to visit the Children's Miracle Network at
www.cmn.org.
MI
Cerebral Palsy Project Focuses on Adults -
Researchers at Michigan State University hope a new approach will help them find
the elusive cause of cerebral palsy. Researchers are seeking adults who have
cerebral palsy and adult family members of children with the condition to
participate in a new study.
WV
Local Artist Exhibits in
Charleston - Nine paintings by Tucker Lewis, a
10-year-old Morgantown resident with cerebral palsy, were displayed this week at
the Charleston Civic Center. Tucker, who can't physically hold a paint brush,
paints using the Artistic Realization Technologies method.
Cerebral Palsy Magazine:
New
Publication for Parents and Professionals
- Cerebral
Palsy Magazine™ is a quarterly special-interest publication focusing
on issues related to Cerebral Palsy. First
issue of this new magazine
was published in June 2003.
Specially Designed Walker
Brings Hope To Young Cerebral Palsy Victims - Children with
cerebral palsy often rely on walkers and wheelchairs to get around
since their small bodies just aren't strong enough to give appropriate
support. Now there's a device that's paving the way for what could be
a remarkable journey for thousands to follow.
Read "A
new tool to assess birth defect" - Canadian researchers have
developed motor-development charts to help parents better gauge the
outlook for a baby born with cerebral palsy.
Story on Cerebral Palsy Nemours Foundation
http://kidshealth.org/teen/diseases_conditions/brain_nervous/story_cerebral_palsy.html
Do you know someone who has cerebral palsy? Chances are you might.
Each year 10,000 new cases of cerebral palsy are diagnosed in the
United States. Maybe someone at your school has cerebral palsy - or
maybe you have it and you've been dealing with it your whole life. At
a time when you're more conscious of your appearance and body image,
it can be tough to be in a wheelchair or to have to use crutches to
get around. But having cerebral palsy doesn't mean you can't do what
other teens do. And if you know someone who has cerebral palsy, it
helps to be a supportive friend. Keep reading for the story on
cerebral palsy.
Despite son's medical problems, family never gives up BY KATHERINE L. BRYANT
http://www.geocities.com/Heartland/Farm/7020/Austin/Looking_for_hope.html
When many families discover they're going to have a baby, they are
thrilled and excited with what the precious new bundle of joy will
bring - especially if the pregnancy seems normal.
Japanese Technical Engineer with Cerebral Palsy Works Effectively
and Productively Using Her Computer, Assistive Technology, and
Built-in Windows Accessibility Options
http://www.microsoft.com/enable/casestudy/oki.aspx
Avoiding a crowded commute is one of the advantages to working from
home. Ayako Nakamura, of Oki Electric Industry Company, headquartered
in Tokyo, Japan sees many more. Nakamura has cerebral palsy and has
difficulty with speaking as well as mobility. But with the help of
assistive technology and a forward-thinking employer, she is able to
work productively from home and is now in her fifth year of employment
as a technical engineer with the company.
Mom should check out cerebral palsy suspicions Allen Douma Family Doctor,
Tulsa World
http://www.intellisearchnow.com/pwrpub_view.scml?ppa=6ikplWZejlkswqTTeb%27%40%3E%20bfeiZv
Dear Dr. Douma: My 4-year-old grandson is a lot less coordinated than
other children his age. It hasn't been a major problem, but my
daughter was recently told by a daycare worker that he may have
cerebral palsy. Needless to say, my daughter is scared. But she is
also offended that the daycare worker would say such a thing, as if my
daughter weren't a good mother. What should we do? - - W.G.,
Corvallis, Ore.
Neuromuscular Disease; Vanishing twin syndrome probably doesn't
account for cerebral palsy Women's Health Weekly
http://www.intellisearchnow.com/pwrpub_view.scml?ppa=6ikplWZeilqrsrSTeb%27%40%3E%20bfeiZv
According to a study from England, "it has been hypothesized that
cerebral palsy of unknown etiology is the result of the death of an
unrecognized co- twin a vanishing twin in early gestation. We
conducted a case- control study of vanishing twin as a risk factor for
cerebral palsy of unknown etiology in women who had an obstetric
ultrasound during pregnancy."
New wheelchair will ease struggle for boy with cerebral palsy
Agencies work together to help family ... Katharine Goodloe,
Milwaukee Journal Sentinel
http://www.intellisearchnow.com/pwrpub_view.scml?ppa=6ikplWZfgknqppXTeb%27%40%3E%20bfeiZv
To his mother, Mirtha Sosa, the new chair is a welcome relief from
undersized strollers and outgrown wheelchairs that have already
outlasted her expectations. It was donated by The UPS Store's We
Deliver Dreams Foundation with the help of workers at United Cerebral
Palsy, a local non-profit devoted to enhancing the lives of people
with cerebral palsy.
Imagining Life With Less Spasticity PR Newswire
http://www.intellisearchnow.com/pwrpub_view.scml?ppa=6ikplWZefffjjiSTeb%27%40%3E%20bfeiZv
For many of the estimated 500,000 Americans who suffer from spasticity
-- an often undiagnosed and untreated condition commonly associated
with cerebral palsy, multiple sclerosis, stroke, brain injury and
spinal cord injury -- "tight, stiff muscles" as a description does not
adequately capture its impact on daily life.
Graduation walk mattered Student with cerebral palsy gets degree Sandy Strickland,
Florida Times Union
http://www.intellisearchnow.com/pwrpub_view.scml?ppa=6ikplWZeiljjks%5BSfd%7DGJ%7BbfeiZm
For three months, Julius Mainor underwent grueling stretching
exercises so he could walk across a stage. His painstaking steps were
so charged with emotion that he got a thunderous ovation when he
received his diploma this month at the Times-Union Center for the
Performing Arts. "I felt like a champion," said Mainor, who has
cerebral palsy and uses a wheelchair.
Cerebral palsy causes explored Jane E. Brody, Milwaukee Journal Sentinel
http://www.intellisearchnow.com/pwrpub_view.scml?ppa=6ikplWZdcksmgkUSfd%7DGJ%7BbfeiZm
Despite widespread belief among both doctors and laypeople that
cerebral palsy results from lack of oxygen to the baby's brain during
labor and delivery, a new report says that birth asphyxia alone
accounts for 10% of cases at most.
Under pressure to heal A mobile hyperbaric oxygen chamber has
rolled into town. Is it help or hype? Lorilyn Rackl Daily Herald Health
Editor, Chicago Daily Herald
http://www.intellisearchnow.com/pwrpub_view.scml?ppa=6ikplWZdcjpsrt%5BSfd%7DGJ%7BbfeiZm
It might sound hokey, but hyperbaric oxygen therapy has proven its
worth when it comes to treating an unlikely assortment of health
problems. It's a well-established weapon to help scuba divers get rid
of "the bends," for example, and to repair tissue damage in cancer
patients who've had radiation therapy.
A disease which hits 1 in 400 Evening News; Edinburgh
http://www.intellisearchnow.com/pwrpub_view.scml?ppa=6ikplWYlrllknvYSfd%7DGJ%7BbfeiZm
CEREBRAL palsy does not refer to a specific disease or illness, but is
used to describe a physical problem in the brain which affects a
person's movement. About one in every 400 children born in the UK is
affected.
What is
Conductive Education? - Developed in
1945 in Hungary by Dr. Andras Peto, conductive education is based on
the theory that the central nervous system has the capacity to form
new neural connections, despite neurological damage. By repeating
tasks and integrating intentional movement with learning, the brain
creates alternate paths to send messages to muscle groups, creating
the desired movements. Through this, a child can gain movement and
skills, and achieve greater levels of independence.
Growth Assessment in Children with Cerebral Palsy Richard D. Stevenson, M.D., Carmen D. Booker
http://www.people.virginia.edu/~smb4v/growth/home.htm
An important part of routine health care for all children is the
surveillance of growth and nutritional status. The periodic
measurement of growth indicators and the comparison of these
indicators against reference standards, or norms, serve as a screening
tool for health problems. Normal growth is a marker for health, while
abnormal growth is a marker that the child may be ill or malnourished
or that something may be awry in the child's environment. Cerebral
palsy is a common neurological condition that originates in childhood
but affects individuals throughout their lifespan. Children with
cerebral palsy (CP) frequently grow poorly and adults with cerebral
palsy tend to be small in stature. Thus, surveillance of growth and
nutritional status is extremely important for children with CP.
Toxin Injections May Improve Walking Ability in Kids With Cerebral
Palsy
http://kidshealth.org/research/botulinum_toxin.html
Children with cerebral palsy (CP) often have reduced physical control
over their muscles. They may experience spasticity, which is a
condition that limits control and coordination of muscle movement
around a joint. Toe walking may occur in children with equinus gait
deformity, in which there is overpull or tightness of muscles in the
leg and ankle. But according to researchers, a therapy involving
injections of botulinum toxin type A, a toxin produced by the bacteria
that cause botulism, may improve the muscular mobility and walking
ability of children with CP.
Genetic Disorders of Metabolism: Cerebral Palsy
http://www.ucpa.org/ucp_generaldoc.cfm/53/4/24/24-6607/529
In the not too distant past, any infant or child who had an
unexplained developmental disorder that included muscle spasticity
and/or unusual body movements (athetosis; dystonia) was often referred
to as having cerebral palsy (CP). The children were included in the
cerebral palsy category even though they had other major problems
which were only sometimes associated with cerebral palsy (e.g.
blindness; profound behavioral disturbance, frequent convulsions;
muscle twitching; cardiac failure; etc); however, for lack of a better
diagnosis, the term cerebral palsy was used.
Magnesium Sulfate and Decreased Risk of Cerebral Palsy
http://www.cerebralpalsy.org/magnesium.htm
Research conducted and supported by the National Institute of
Neurological Disorders and Stroke (NINDS) continuously seeks to
uncover new clues about cerebral palsy (CP). Investigators from the
NINDS and the California Birth Defects Monitoring Program (CBDMP)
presented data suggesting that very low birthweight babies have a
decreased incidence of CP when their mothers are treated with
magnesium sulfate soon before giving birth. The results of this study,
which were based on observations of a group of children born in four
Northern California counties, were published in the February 1995
issue of Pediatrics.
What Research is Being Done?
http://www.cerebralpalsy.org/research.htm
Investigators from many arenas of medicine and health are using their
expertise to help improve treatment and prevention of cerebral palsy.
Much of their work is supported through the National Institute of
Neurological Disorders and Stroke (NINDS), the National Institute of
Child Health and Human Development, other agencies within the Federal
Government, nonprofit groups such as the United Cerebral Palsy
Research Foundation, and private institutions.
userid=2XPN2MNOH3&isbn=059039584X&itm=2
Shelley Nixon loves to laugh, to write stories and poetry, and to
challenge herself. In this heartfelt autobiography, she tells readers
how she does all this while confined to a wheelchair and living with
all the other challenges of cerebral palsy.
userid=2XPN2MNOH3&isbn=0933149824&itm=3
Children with Cerebral Palsy, considered by many the first book that
families should read, is now available in a second edition. As one of
Woodbine House's Parents' Guides, it provides parents with a complete
spectrum of information and compassionate advice about cerebral palsy
and its effect on their child's development and education.
userid=2XPN2MNOH3&isbn=0750605790&TXT=Y&itm=4
The contributors represent the specialties of consulting, child
psychology, speech and language therapy, and music therapy. All are
from U.K. hospitals, health centers, and private practices, with one
from Switzerland. Institutions prominently represented include Charing
Cross Hospital and the Bobath Centre for Children with Cerebral Palsy.
userid=2XPN2MNOH3&isbn=0736802800&itm=5
Discusses the causes, diagnosis, symptoms, and treatment of cerebral
palsy, as well as current research and possible ways of preventing
this disorder.
userid=2XPN2MNOH3&isbn=0801859492&itm=10
Written by a team of experts associated with the Cerebral Palsy
Program at the Alfred I. duPont Institute, this book addresses the
complexities and uncertainties of cerebral palsy while providing
information about everything that anyone might ever need to know about
the condition. It is a comprehensive resource for parents,
grandparents, caregivers, and health professionals, as well as
adolescents and adults with cerebral palsy.
userid=2XPN2MNOH3&isbn=0823929604&itm=17
Describes the causes and consequences of cerebral palsy, the most
common lifelong disability in America, as well as offering coping
strategies and resources for teens with cerebral palsy.
userid=2XPN2MNOH3&isbn=0817257446&itm=19
Describes the varying effects of cerebral palsy, how different people
manage to live with this condition, and where to get more information.
userid=2XPN2MNOH3&isbn=155766322X&TXT=Y&itm=23
Based on the caregiving approach developed at the Cerebral Palsy
Program at The Children's Hospital of Philadelphia and Children's
Seashore House, this daily-use handbook draws on the experience of
pediatricians and orthopedic surgeons as well as physical and
occupational therapists, speech-language pathologists, social workers,
educators, and administrators. It presents a conceptual framework for
care delivery and emphasizes goals for development and competency in
family and community settings. An in-depth, practical resource, it is
a must for physicians, nurses, therapists, educators, social workers,
home visitors, and families who want to make sound, collaborative
caregiving decisions.
userid=2XPN2MNOH3&isbn=1898683204&itm=24
Doody Review Services - After a review of the definition,
classification, incidence, and prevalence of cerebral palsy, the
authors develop the concept of causal pathways:sequences of events that lead to a clinical outcome. They then
apply this analysis to the causes of cerebral palsy. The examples of
hyperbilirubinemia and preterm birth clearly show how causal pathways
can contribute to our understanding of medical outcomes. The
description of the relationship of the recent increase in multiple
births to the incidence of cerebral palsy is most timely. The
references are complete, including references to online databases.
Coping with Cerebral Palsy Rosen Publishing Group, Incorporated
http://search.barnesandnoble.com/booksearch/isbnInquiry.asp?
userid=2XPN2MNOH3&isbn=0823931501&itm=25
School Library Journal - Gr 5 Up-A realistic self-help book written
with a little sassiness and a "That's the way it is and this is how to
deal with it" attitude. A short chapter is devoted to the
basics-definition and treatment. Following chapters discuss attaining
independence, schooling, dealing with the insensitivity of others,
depression, traveling, working, and relationships with others, all
taking into account the amount of disability. Dion Pincus's Everything
You Need to Know about Cerebral Palsy (Rosen, 2000) concentrates on
the factual aspects and less on how to manage living with the
disorder.-Martha Gordon, formerly at South Salem Library, NY Copyright
2001 Cahners Business Information.
userid=2XPN2MNOH3&isbn=1567661017&itm=27
School Library Journal - Gr 5-8-Each of these titles leads off with an
introduction to a young person who has the featured disease.
Subsequent chapters explain the physiology of the illness, what causes
it, and what it's like to live with it. Concluding sections look at
possible treatments and potential cures. The texts are clear and
simple, double spaced, and punctuated by colorful exemplary photos of
kids dealing with the disease. Gray provides a surprising amount of
information and develops considerable empathy in readers.
userid=2XPN2MNOH3&isbn=0807560685&itm=44
Twelve-year-old Sarah Bennett has the same wishes that many girls
have: she hopes she will like her new school and will find friends
there. She wants to see more of the world, and dreams about what she
might do, about who she will become.But Sarah is also different from
most girls; she was born with cerebral palsy. She must move about in a
wheelchair, and she cannot speak but uses a symbol board. Sarah has a
lot to say, though--when she makes a school friend, Maggie, who learns
to read Sarah's symbols; when she takes a disastrous trip to the zoo
with her family; and when she meets Johnnie, a boy who can't walk, but
who gives her glimpses of new worlds. Sarah's life is filled with
adventure--enough for any girl.
Welcome to Amanda’s Friends
http://www.geocities.com/Heartland/Plains/8950/friendof.html
So many voices with so many stories. Stories of victory, stories that
defy all medical boundaries. Our children our are our heroes. Without
each of them we would have a giant hole in our lives one that can
never be replaced because of the knowledge and strength they teach
us. We hope that through our children you find a piece of what we've
learned through them. Thankyou for allowing us the chance to teach us
what our darlings have taught us.
Cyberscrapbook
http://www.cyberscrapbook.com/
Welcome to our Cyberscrapbook! We created this page to share
information with other families of children with disabilities - and
more specifically those diagnosed with Cerebral Palsy.
Austin
http://www.geocities.com/Heartland/Plains/8950/austin.html
Austin has spastic quadriplegia cp. He is 1 year post Rhizotomy. He
utilizes assistive technology. Austin is now in preschool. He receives
2
hrs. of P.T. and 1 hr of O.T. along with 1hr speech and 1 hr in the
assistive
technology lab per week.
Hi! I'm Danny! Welcome To my Homepage!!
http://members.aol.com/_ht_a/pluto111/danny.html
I haveCerebral Palsy, but am doing really great with lots of love,
attenetion, therapy and help from the people at the Kennedy Krieger
Institute. You can read about my first year by clicking here Danny's
Story. My mommy had a special song, Danny's Song, written for me as a
present. I love to listen to it on my adapted tape recorder.
Hi! This is me... Matt Slater.
http://members.ozemail.com.au/~ctech/matt.htm
am disabled. I have cerebral palsy and I am in a wheelchair. I was
born with a body that doesn't work very well but my brain works fine.
Susie’s Cerebral Palsy Homepage
http://www.susiecphome.com/home.html
My name is Susie Rodde. I'm 49 and live in Torrance, California with a
hearing dog named Ivy, and an attack cat named Kameco. This page is
about me and my story.
Connie V.’s Corner
http://www.geocities.com/Heartland/Plains/9328/
Hi! My name is Connie Van Amerongen. I was born on the twelfth of
February, in 1965. I am confined to a wheelchair because of Cerebral
Palsy, but I can talk up a storm! (Just ask the people that know me!)
I have three older brothers, a younger brother and a younger sister. I
also have lots of nephews and nieces! I love kids!
The Chris Anderson Home Page
http://www.geocities.com/chrisanderson1954/
Hello, and welcome to The Chris Anderson Home Page. Please bear with
me as I add new things to this website. I am a Christian living with
Cerebral Palsy and communicate with a Delta Talker, and thus, it takes
quite some time to download, and add new material...but I have
wonderful assistants who help me from time to time.
Jennifer's Story
http://www.nichcy.org/pubs/factshe/fs2txt.htm
Jen was born 11 weeks early and weighed only 2˝ pounds. The doctors
were surprised to see what a strong, wiggly girl she was. But when Jen
was just a few days old, she stopped breathing and was put on a
ventilator. After 24 hours she was able to breathe on her own again.
The doctors did a lot of tests to find out what had happened, but they
couldn't find anything wrong. The rest of Jen's time in the hospital
was quiet, and after two months she was able to go home. Everyone
thought she would be just fine.
Sandeep's Older Brother
http://www.cerebralpalsy.org/story_courage12.htm
My son Srikanth has cereberal palsy. He is now 15 years old. He is
very loving, always with a smile. For school syllabus, he is not good.
But he is interested in music, cricket and tennis . He could not walk
independently. My request to all the parents of disabled children is
to spend most of your time with your angels and heroes. My second son
Sandeep is 9 years old and is very loving, affectionate, and helpful
to his brother.
Livin' Outloud
http://www.cerebralpalsy.org/story_courage11.htm
I am a colorguard instructor at a Charter school in south Dallas,
Texas. I began teaching colorguard as a class 3 years ago. Everyone
was allowed to participate in my class. Our school even has a no
tryout policy. Little did I know that my life would change because of
the time I took to teach a young girl with cerebral palsy?
My Anthony
http://www.cerebralpalsy.org/story_courage10.htm
I would like to tell you a little about my life. I am a 24 yr old
single mom to 3 kids. My oldest is Anthony. He is 8 and has cerebral
palsy. I have a 5 yr old who is healthy and a 16 month old who has
recently been diagnosed with problems.
My Little Champion
http://www.cerebralpalsy.org/story_courage09.htm
I have a 14 year old daughter who was born two months premature. I had
placenta previa. I take her to Shriners in Lexington, Kentucky . We
are about to go through surgery again. She is a mild case. Her legs
are affected and she is in special education at school.
Parker
http://www.cerebralpalsy.org/story_courage08.htm
My son Parker, he is 4 years old now, well physically he is. He
suffers from multiple medical problems including cp, he has fluid in
his brain and in his spine, he has a seizure disorder, and many other
unknown things to this date. I am a single mother i also have a 2 yr
old, their father is not in the picture financially or physically. I
had to quit my job as a lab tech to stay home full time with my boys,
sure i could have split them up and put them in different child care
programs but that would have killed Parker , do to his brother means
the world to him and has been through all of Parker's 12 surgeries
with him.
MI
MSU Mechanical Engineering Students Design Bicycle for Kids
w/Cerebral Palsy -
Zackerie Kerley couldn't conceal his gap-toothed grin as
he strapped on a blue-and-red helmet and test drove his school's new
bicycle Friday. Zackerie, a kindergartner at North Elementary School,
is one of the students with cerebral palsy who will benefit from a new
bike designed to strengthen muscles and bolster self-confidence.
Consumers: People who buy and use wheelchairs
http://www.wheelchairnet.org/WCN_ProdServ/Consumers/start.html
As a person who is new at using a wheelchair or as a family member of
a person who is new to using a wheelchair, you probably have many
questions. In fact you may be feeling overwhelmed by the amount of
information and the kinds of decisions you are now faced with. (As
WheelchairNet develops we plan to include some software resources that
will help with this decision-making process.)
FDA Approves Stair-Climbing Wheelchair Food and Drug Administration
http://www.fda.gov/bbs/topics/NEWS/2003/NEW00933.html
The Food and Drug Administration (FDA) today approved a
battery-powered wheelchair that relies on a computerized system of
sensors, gyroscopes and electric motors to allow indoor and outdoor
use on stairs, as well as on level and uneven surfaces.
Assistive Technology: Frequently Asked Questions
Alliance for Technology Access
http://www.ataccess.org/resources/fpic/faq/default.html
The following are the most frequently asked questions of the Alliance
for Technology Access. As technology and solutions continue to change,
so do both the questions and their answers.
Assistive Technology: What You Need to Know Alliance for Technology Access
http://www.ataccess.org/resources/fpic/whaten.html
Assistive technology is a growing and complex field. New developments
happen daily.
Emerging Trends in Medical Device Technology Food and Drug Administration, By Carol Lewis
http://www.fda.gov/fdac/features/2001/301_home.html
Medical devices, products and technologies are converging to
revolutionize home- and self-care health systems in the United States,
making it possible for people to play a greater role in maintaining
their own health.
NIDRR's Long Range Plan - Technology for Access and Function
Research National Institute on Disability and Rehabilitation Research
http://www.ncddr.org/rpp/techaf/lrp_ov.html
For Americans without disabilities, technology makes things easier.
For Americans with disabilities, technology makes things possible.
Assistive Devices for the Home: Tools and Tips to Make Life Easier Mayo Foundation for Medical Education and Research
http://www.mayoclinic.com/invoke.cfm?id=HA00028
Perhaps the years are creeping up on you, and getting around just
isn't as easy as it used to be. Bending over to pick up the paper is
practically impossible, and getting up from your chair seems to take
forever. Or maybe you're noticing that your parents aren't as spry as
they once were. The effects of aging may be inevitable, but how you
deal with these effects can make a difference in your quality of life.
Frequently Asked Questions about FCC Provisions for People with
Disabilities Federal Communications Commission
http://www.fcc.gov/cgb/dro/dtffaq.html
What is Telecommunications Relay Services (TRS)?
Assistive Technology and Your Child
http://kidshealth.org/parent/system/ill/assistive_tech.html
Technology is one of the buzzwords of the late 20th century, conjuring
up images of computers that talk or televisions so thin they can be
mounted on the wall like a picture. Technology isn't just a matter of
high-tech solutions to simple problems, however. People with
disabilities are now taking advantage of all kinds of technological
advances to overcome barriers caused by their disability.
Caring for a Child Dependent on Medical Technology Nemours Foundation
http://kidshealth.org/parent/system/ill/machine.html
Modern medical technology is constantly evolving and advancing. What
we would consider today a relatively minor infection or disability
sometimes led to death or a life of poor quality in the past.
