Cornelia de Lange
Syndrome (CdLS) is a congenital syndrome, meaning it is present from
birth. Most of the signs and symptoms may be recognized at birth or
shortly thereafter. A child need not demonstrate each and every sign
or symptom for the diagnosis to be made.
As with other syndromes, individuals with CdLS strongly resemble one
another. Common characteristics include: low birth weight (often under
five pounds), slow growth and small stature, and small head size
(microcephaly). Typical facial features include thin eyebrows which
frequently meet at midline (synophrys), long eyelashes, short upturned
nose and thin, down-turned lips.
Other frequent findings include excessive body hair (hirsutism), small
hands and feet, partial joining of the second and third toes, incurved
fifth fingers, gastroesophageal reflux, seizures, heart defects, cleft
palate, bowel abnormalities, feeding difficulties, and developmental
delay. Limb differences, including missing limbs or portions of limbs,
usually fingers, hands or forearms, are also found in some
individuals.
FAQs About CdLS
http://www.cdlsusa.org/about_cdls/faq.html
CdLS is a congenital syndrome, meaning it Is present from birth. Most
of the signs and symptoms may be recognized at birth or shortly
thereafter. A child need not demonstrate each and every sign or
symptom for the diagnosis to be made. As with other syndromes,
individuals with CdLS strongly resemble one another. Common
characteristics include: low birthweight (often under five pounds),
slow growth and small stature, and small head size (microcephaly).
Typical facial features include thin eyebrows which frequently meet at
midline (synophrys), long eyelashes, short upturned nose and thin,
downturned lips.
Assisting the Social Development of Children with CdLS article from Reaching Out
http://www.cdlsusa.org/publications/assisting-the-social-development-of-children-with-cdls.html
For children in general, social competence -- meaning the ability to
socially interact in an effective, responsive and appropriate way --
starts even before a child learns to speak. With children who speak
very little, the time parents spend interacting with their child helps
prepare them for future interactions with adults or other children.
Cornelia de Lange Syndrome Disorder Zone Archives
http://www.specialchild.com/archives/dz-010.html
Cornelia de Lange syndrome (CdLS) is a disorder that results in
several physical and developmental abnormalities. The cause of CdLS is
unknown at this time, however, it is thought that the disorder may be
of a genetic nature (possibly a faulty gene on chromosome 3). Most
cases are sporadic, however, there has been documentation of affected
siblings, which would suggest inheritance. It is said to occur in 1 in
10,000 to 1 in 30,000 live births and is found equally in males and
females. Although this syndrome is considered rare, experts agree that
it is likely underdiagnosed.
Dr. Lou Brown Advises Parents to Prepare Their Children for
Adulthood article from Reaching Out
http://www.cdlsusa.org/publications/dr-lou-brown-advises-parents-to-prepare-their-children-for-adulthood.html
A federal law passed in 1976 said that all children with disabilities
have a right to a tax-supported education in the least restrictive
environment teaching them to the highest point of their abilities.
According to Lou Brown this law, buoyed by tax dollars, although good
in its intent, segregated children with disabilities from the real
world of respect, dignity and choices.
CORNELIA DE LANGE SYNDROME (CDS)
http://www.dpo.uab.edu/~birmie/cdl.htm
Developmental delays include: low birth weight (<2500g), sluggish
physical activity, initial hypertonicity, speech delay (associated
with hearing loss) with low pitched, growling monotonous sounds,
mental retardation (average IQ 53)32, feeding difficulties, and
psychomotor retardation (decreased acquisition of skills requiring the
coordination of mental and muscular activity).
Cornelia De Lange Syndrome eMedicine
http://www.emedicine.com/ped/topic482.htm
Cornelia de Lange syndrome (CDLS) is a multiple congenital anomaly
syndrome characterized by a distinctive facial appearance, prenatal
and postnatal growth deficiency, feeding difficulties, psychomotor
delay, behavioral problems, and associated malformations mainly
involving the upper extremities. Cornelia de Lange first described it
as a distinct syndrome in 1933, although Brachmann had described a
child with similar features in 1916. Diagnosing CDLS in classic cases
is usually straightforward, but diagnosing CDLS in milder cases may be
challenging, even for an experienced clinician.
Cornelia de Lange Syndrome (CdLS) The GAPS INDEX
http://www.icomm.ca/geneinfo/cdls.htm
Syndrome is a medical term for a condition in which there is a
collection of signs (observable body changes) and symptoms (problems
related by the patient) recognizable by a doctor's exam. Individuals
with a syndrome may not have all of its associated signs and symptoms,
but they must have enough to be considered "diagnostic." Conversely,
because someone may display some of the signs and symptoms of a
syndrome, does not necessarily mean they have it.
Visual Gaze Behaviors in Children with CdLS article from Reaching Out
http://www.cdlsusa.org/publications/visual-gaze-behaviors-in-children-with-cdls.html
Dr. Mary Morse, an educational consultant with a private practice in
Pembroke, New Hampshire, provides assessments, in-service training and
consultations on behalf of children with special needs throughout the
United States and Canada. We are grateful to Dr. Morse for allowing us
to present her work in Reaching Out. Dr. Morse stresses that we also
need to examine possible physiological reasons for gaze averting
behavior.
What is Cornelia de Lange Syndrome (CdLS)?
http://www.isn.net/~jypsy/corndl.htm
In 1933, Dr. Cornelia de Lange, a Dutch pediatrician, described two
children with similar features. She is now generally credited with
describing the collection of symptoms comprising the syndrome that
bears her name. The syndrome is sometimes referred to as Brachmann-de
Lange Syndrome, after Dr. W. Brachmann who described a similar patient
in 1916.
Differences Are the Norm for Children With CdLS: A Discussion of
Why Children with CdLS Behave Differently article from Reaching Out
http://www.cdlsusa.org/publications/differences-are-the-norm-for-children-with-cdls_why-children-with-cdls-behave-differently.html
For a person with CdLS, being normal may include behaving differently.
Why is this true? At a workshop at the 1994 Arizona Convention Dr.
Douglas Stockwell answered that question as he briefed parents on
behavior patterns and problems normal to children with CdLS.
Who Named It? Brachmann-de Lange syndrome
http://www.whonamedit.com/synd.cfm/1080.html
In a review in 1985, John Marius Opitz (1935-) commented: "Brachmann's
paper is a classic of Western Medical iconography, deserving to be
commemorated in the eponym "Brachmann- de Lange syndrome." This
conjoined eponym is now generally accepted, although the term "de
Lange" or Cornelia de Lange's syndrome is also common.
What does Cornelia de Lange Syndrome mean for a child? UC Davis Children’s Hospital
http://www.ucdmc.ucdavis.edu/cleft/craniofacial/guide/about/corneliadelange.html
Cornelia de Lange Syndrome is diagnosed by clinical features. Children
with this Syndrome often have long eyelashes, bushy eyebrows and
synophrys (joined eyebrows). Their hairline may be lower than other
family members, and they may have more body hair. These features are
often less obvious in males after puberty. Children are often shorter
than others in the family. None of these features may cause a problem
for the person concerned; they are just clues for a diagnosis.
Research Shows all Children with CdLS make Developmental Progress article from Reaching Out
http://www.cdlsusa.org/publications/research-shows-all-children-with-cdls-make-developmental-progress.html
One question parents of children with CdLS ask pediatricians is, "How
will my child do?" Pediatric geneticist Dr. Antonie Kline answered
that question at the CdLS Foundation's Boston Convention with results
from research by her and other professionals at the Jefferson Medical
College, Philadelphia. Dr. Kline pointedly thanked parents for their
children's participation in these studies.
More About CdLS
http://my.execpc.com/~jprink/page7.html
A child with Cornelia de Lange Syndrome (CdLS) may live in your
neighborhood, go to your school, or be a part of your family. Yet,
because CdLS is a rare syndrome, many children go undiagnosed for
months or even years. There are about 2,500 known cases of CdLS in the
world--1,500 in the U.S.--but experts estimate that there are 5 to 10
times that many undiagnosed cases.
Communication Intervention in Cornelia de Lange Syndrome by Marjorie T. Goodban, Ph.D.
http://www.cdlsusa.org/publications/communication-intervention-in-cdls.html
This article provides comprehensive information about speech and
language abilities in the Cornelia de Lange syndrome (CdLS), also
known as the Brachmann-de Lange syndrome, and describes successful
therapy approaches with this population. It presents a review of the
literature and summarizes information gained from a database of 116
children diagnosed with CdLS along with general information resulting
from more than 275 evaluations of children with this syndrome. Also
included are prognostic indicators for the acquisition of speech and
language as well as intervention recommendations for speech-language
pathologists. The asynchronous development of receptive versus
expressive language abilities and the presence of oral-motor apraxia
are documented. Also suggested is the likelihood of higher cognitive
functioning than expressive language skills would indicate.
Ask the Doctor: Helping Children With
CdLS Stay Focused in School answered by Mary Morse, Ph.D.
http://www.cdlsusa.org/publications/ask-the-doctor_helping-children-with-cdls-stay-focused-in-school.html
By and large, attention is related to the ability to manage states of
arousal which, in turn, is both a neurological and a motivational
function. Neurologically, a child needs to be prepared to receive,
organize and interpret incoming sensory information. To do this
involves, (a) the ability to withdraw attention from some other event
in the environment (i.e., perseverative behaviors), (b) knowing what
to attend to and, (c) inhibiting competing events occurring at the
same time. Simultaneously, no one can sustain attention if they do not
find the activity motivating. When children perceive the activity as
pleasurable and interesting, they find the activity reinforcing. Young
children must have immediate payoff.
Ask the Doctor: Transitioning Out of the Special Education
Classroom answered by Mary Morse, Ph.D.
http://www.cdlsusa.org/publications/ask-the-doctor_transitioning-out-of-a-special-education-classroom.html
The first one is that a sudden transition from a half to a whole day
may be physically and emotionally tiring and stressful. It will be
helpful for you and the school staff to check out the physical
environment of the new classroom (noise level and visual stimulation),
the curriculum and her relationships with other students and discuss
changes that could be looked at in light of your daughter's needs.
Communicating with Symbols Promotes Skill Development in Children
with CdLS article from Reaching Out
http://www.cdlsusa.org/publications/communicating-with-symbols-provides-speech-development-in-children-with-cdls.html
Speech, gestures, written symbols, signing and objects -- they are all
ways to communicate a message. For some people with multiple
disabilities, however, words may be the least effective method. Other
symbols may do the job better. The critical component in using
symbolic communication is an inner understanding by the child that a
particular symbol truly represents a particular activity, object,
action or feeling.
Educational Techniques to Promote Increased Symbolic Communication
and Active Participation by Mary Morse, Ph.D.
http://www.cdlsusa.org/publications/educational-techniques-to-promote-increased-symbolic-communication-and-active-participation.html
Symbolic communication can take a variety of forms, the more common
ones being gestures, speech, written symbols and pictures. There are,
however, other means to communicate a message, namely gestures,
signing, finger spelling and the use of objects. The critical
component required in the ability to use any form of symbolic
communication, however, is the development of an inner understanding
that a particular symbol represents a particular activity, object,
action, or feeling.
Guidelines for Evaluating a Pre-School Program for Children with
CdLS by Mary Morse, Ph.D.
http://www.cdlsusa.org/publications/guidelines-for-evaluating-a-pre-school-program-for-children-with-cdls.html
What types of assessments is the school going to use? What
modifications to the testing procedures will be necessary --
especially if the child has no language (which means she needs
non-language-based testing)? What help do the assessors, themselves,
feel they need in testing?
Helping Your Child Communicate Using Diaries and Scrapbooks article from Reaching Out, adapted from work by Mary Morse,
Ph.D.
http://www.cdlsusa.org/publications/helping-your-child-communicate-using-diaries-and-scrapbooks.html
Many families keep a detailed record of significant events in their
lives by taking photographs and keeping them in albums. These albums
allow family members to remember important times and share their
memories with others. Similarly, keeping a personalized account of
daily events, through a diary or a scrapbook, also lets children
recall their experiences and develop a sense of time -- past, present,
and future. It promotes understanding of symbolic representation and
encourages children to communicate by sharing their activities and
experiences with others. Keeping a scrapbook or a diary gives children
a topic of conversation and becomes an activity to do with someone
else. Diaries are particularly effective in communicating special home
events to school, and vice versa.
Making the Educational Experience Work By Mary Morse, Ph.D.
http://www.cdlsusa.org/publications/making-the-educational-experience-work.html
Instructional Considerations include such factors as relevant goals
and objectives, motivating and understandable activities, and
providing appropriate adaptations and supports to help your child be
successful.
Patterns of Inheritance The Contact a Family Directory
http://www.cafamily.org.uk/inherita.html
Genetics is the branch of biology concerned with heredity and
individual characteristics. Specific conditions and rare disorders may
have a genetic basis. Where this is the case there will be a variety
of causes. For example; the causes may include a single abnormal gene,
a chromosomal abnormality or a genetic predisposition allied to other
factors.
Michigan
Resources, Support Groups, Listservs & Websites
Cornelia de Lange Syndrome Awareness
Day Office of the Governor
http://www.michigan.gov/gov/0,1607,7-168-22678_25488-71950--,00.html
Resolved, That I, Jennifer M. Granholm, Governor of the State of
Michigan, do hereby proclaim May 10, 2003, as Cornelia de Lange
Syndrome Awareness Day in Michigan.
Cornelia de Lange Syndrome Foundation,
Inc. 302 West Main Street, #100
Avon, Connecticut 06001
Phone: 860-676-8166
Web: http://www.cdlsusa.org
Email: info@cdlsusa.org
Cornelia de Lange
Syndrome (CdLS) Online Support Group
http://www.cdls-support.org/
Welcome to the Cornelia de Lange Syndrome (CdLS) Online Support Group.
The group was started by several moms who met regularly online and
realized how wonderful it was to have a convenient way of
communicating. CdLS is rare enough that finding other parents in close
proximity is not always feasible. Now, through this miracle of
technology, we can connect with others who have much in
common...wherever we may be in the world. We are no longer alone!
Cornelia de Lange Syndrome Forum
http://www.network54.com/Hide/Forum/8137?it=3
Our goal is to provide emotional support and fellowship among parents
and caregivers of children and adults with CdLS. Here we can discuss
their accomplishments and defeats, knowing we can find understanding,
encouragement, or a shoulder to cry on. We can also get some idea of
how others address specific problems/concerns with feeding, learning,
schools, techniques and equipment. We are by no means a forum for
dispensing medical advice or diagnosis.
SEARCH FOR GENETIC MARKERS CONTINUES by Ian Krantz, M.D.
http://www.cdlsusa.org/publications/search-for-genetic-markers-continues.html
The goal of our research investigations is to identify the underlying
molecular cause of CdLS. Many people drive this process. It involves
the tireless work of Dr. Laird Jackson, the staff at my research
laboratory here at The Children's Hospital of Philadelphia and at the
research lab of Dr. Tom Strachan at The University of Newcastle upon
Tyne in England, as well as the many clinicians who refer their
patients to us. Most importantly, it involves all of the children and
adults with CdLS, and their families who have generously contributed
samples.
Abstract&list_uids=21333161
Cornelia de Lange syndrome is known to be occasionally associated with
gastrointestinal malformation. However, the occurrence of cecal
volvulus in such anomalies is very rare. We report a 15-y-old Japanese
boy with Cornelia de Lange syndrome associated with a cecal volvulus
secondary to non-fixation of the cecum and ascending colon.
Taking Care of Me by Eileen P. Ahearn, M.D., Ph.D.
http://www.cdlsusa.org/publications/reachingout/archive/taking-care-of-me.html
In the event of a child born with CdLS, parents must mourn the loss of
their fantasized and longed for "normal" infant while accepting the
birth of their child with a disability. At the same time, there are
often adjustments in meeting the special needs of the infant and
decisions to be made about his or her medical care.
Blepharitis Common in CdLS by Alex Levin, M.D. FRCSC
http://www.cdlsusa.org/publications/blepharitis-common-in-cdls.html
"How many of your children have had serious problems with red, teary
or goopy eyes?" asked Dr. Alex Levin during the Saturday Research
Update Session at the 1995 Conference in Florida. Half of the audience
quickly shot up their hands, waiting to hear more about the new
findings that Dr. Levin had briefly touched on earlier in the
Conference during his "Ask the Doctor" workshops on the eyes of people
with CdLS.
Ear Infections in Children with CdLS
http://www.cdlsusa.org/publications/ear_infections.pdf
Dr. Robert Thayer Sataloff is Professor of Otolaryngology at Thomas
Jefferson University in Philadelphia, Pennsylvania. He is a member of
the Foundation's CdLS LINK program, and has served as a consultant to
our families on medical issues relating to the ears, nose and throat.
In the following article, Dr. Sataloff offers the latest information
on ear infections in people with CdLS, plus two opportunities for our
readers to help with current research.
Diaphragmatic Hernia and CdLS article from Reaching Out based on findings of Chris Cunniff,
M.D.
http://www.cdlsusa.org/publications/diaphragmatic-hernia-and-cdls.html
In a forthcoming issue of the American Journal of Medical Genetics,
Cunniff et al report that diaphragmatic hernia may be a relatively
common feature in newborns with the Cornelia de Lange syndrome. Twelve
newborns are presented from a number of centers in the United States
and Germany. Children with a diaphragmatic hernia were more likely to
be of low birth weight and to have major upper limb malformations. Of
special importance was the finding of ectrodactyly (lobster claw hand
abnormality) in four of the twelve children reported.
Feeding Difficulties are Confirmed for Persons with CdLS article from Reaching Out based on findings of Annemarie Sommer,
M.D.
http://www.cdlsusa.org/publications/feeding-difficulties-are-confirmed-for-persons-with-cdls.html
The importance of feeding difficulties as part of the CdLS clinical
picture was recently affirmed by Dr. Annemarie Sommer in her paper
entitled "The Cause of the Feeding Difficulties in Cornelia de Lange
Syndrome is the Sandifer Syndrome" which she presented at the David W
Smith Conference held at lake Arrowhead this past fall.
The Cause of Feeding Difficulties in CdLS is Sandifer Syndrome article from Reaching Out by Annemarie Sommer, M.D.
http://www.cdlsusa.org/publications/the-cause-of-feeding-difficulties-in-cdls-is-sandifer-syndrome.html
Cornelia de Lange Syndrome is characterized by physical and mental
retardation, hirsutism and synophrys, microcephaly, a long philtrum,
anteverted nostrils, and small or grossly malformed hands. A
characteristic hoarse growling cry is present. The most common
complications are neonatal feeding or respiratory difficulties.
Recurrent episodes of aspiration are frequent. We propose that most of
the complications are due to an associated Sandifer Syndrome. Sandifer
Syndrome is described as gastroesophageal reflux causing paroxysmal
dystonic posture including torticollis and opisthotonus.
Multiple Congenital Anomaly/Mental Retardation (MCA/MR) Syndromes de Lange syndrome 1
http://www.nlm.nih.gov/cgi/jablonski/syndrome_cgi?index=260
A frequent multiple congenital anomaly/mental retardation syndrome of
unknown etiology which affects 1/10,000 newborn infants. The most
commonly occurring defects include growth deficiency, retarded
psychomotor development, upper limb abnormalities, microbrachycephaly,
and peculiar hair patterns giving the face its characteristic
appearance, frequently associated with various neurological,
behavioral, cardiovascular, gastrointestinal, dermatoglyphic
abnormalities, and occasional Sandifer anomaly (abnormal body
posturing, torticollis, and gastro-esophageal reflux with or without a
hiatus hernia).
FREE! Facing The Challenges
http://www.cdlsusa.org/publications/facing.html
The 2001 printing of this invaluable book is now available online as a
series of Adobe PDF files. Due to filesize and bandwidth
considerations, the book has been divided into sections to make the
files more manageable and easier to download.
Jessica's Place
http://www.geocities.com/Heartland/Meadows/8874/
Hello, and welcome to Jessica's Place. Jessica was born in September
1996 and was diagnosed with Cornelia de Lange Syndrome (CdLS) at two
months of age. With this web site, we'd like to share a little bit of
Jessica's life and experience with CdLS in hopes of reaching out to
families, caregivers, teachers and others who have a person with CdLS
in their lives; as well as those interested in learning more about the
syndrome.
Amanda’s Room
http://www.geocities.com/Heartland/Meadows/2564/
Welcome to my web page... I am Amanda and I am eleven years old. Your
visit to my page is very important to me. You see, I have a rare
syndrome called Cornelia de Lange Syndrome or CdLS. Since it is so
rare many people, including medical professionals, have never heard of
it. So, please stick around and learn about me and CdLS. The knowledge
you aquire could warm your heart and in some way help myself or
another CdLS person someday.
Geoff's Stuff: The Successes of One Unique Guy
http://www.geocities.com/Heartland/Meadows/2308/
This site will be used to explore the way Geoff (and his family) have
found to work around his disabilities, to allow him to be all that he
can be.
Kayla’s Story: Living with Cornelia de Lange Syndrome
http://my.execpc.com/~jprink/
Just four months into my pregnancy, I knew something was wrong.
Ultrasounds pointed to some physical abnormalties—my baby's kidneys
were enlarged, and she was not growing as quickly as expected. Her
head was also very small.
WELCOME TO ...... ALEAH'S STORY
http://www.geocities.com/Heartland/Prairie/7054/
I'd like to introduce you to Aleah, my little sister. She's a real 9
month old cutie! She has long eyelashes, thin upper lip, downturned
corners of her mouth. Aleah was born with the Cornelia de Lange
Syndrome. CdLS is a rare genetic disorder, that really has no known
cause. These characteristics you've read so far about Aleah are only a
few ..... she has other challenges, but you would never know it. She
has a wonderful disposition. She loves to coo and gurgle. Her smile
not only lights up her face, but it will yours as well.
An Angel’s Story
http://www.geocities.com/Heartland/Valley/8084/
I am about to embark on a journey that is really quite difficult. It
will be a short one though, it ended much too quickly. This is going
to be the story of my little angel. Her name is Lindsey Leanne
Griffin. She was born September 17, 1997. There were several 'strange'
things that happened when this child was born.
Kendra’s Corner
http://www.geocities.com/Heartland/Ranch/3173/
Hi! My name is Kendra. I am six years old and have Cornelia de Lange
Syndrome (or cdls). My syndrome is so rare that most people have never
heard of it and there are many other children just like me who are
undiagnosed. I hope that someday people will recognize cdls as easily
as they do Downe Syndrome or other more commonly known syndromes. My
Mommy, Daddy and me welcome you to my web page. We want to tell you a
little about my life.
Will’s Way
http://www.geocities.com/Heartland/Acres/2451/
This story begins in the early morning hours of September 26,1991 when
a tiny new baby enters the world. He opens his eyes and see's a room
full of grim faces and a mom and dad in tears. You see, he couldn't
see what they all could, that he looked different than all the others
born that day. For he was born with a rare and serious condition
called Cornelia deLange Syndrome. The doctors suspected his life would
be difficult and limited. His mom and dad grieved for the perfect baby
that wasn't born. But they couldn't see what the boy would eventually
see ; yes I am different, but I have will and can make my own way.
Maddy’s Farm
http://maddysfarm.stormloader.com/
Cornelia deLange Syndrome (CdLS) is rare...you probably have never
seen another child like me. Please click on the links below to travel
through my pages and learn a little about me and my family.
Miggy’s Place
http://www.geocities.com/davejmsantos/
Juan Miguel S. Valencia, Miggy as he is fondly called will be turning
five next year March 4, 2002. I can not say the hard times are over
because medically speaking, our doctors briefed us on an even worse
scenario. We may yet expect scoliosis, corrective surgery on his hips,
reflux and seizures.
Kayla’s Story
http://my.execpc.com/~jprink/page2.html
Just four months into my pregnancy, I knew something was wrong.
Ultrasounds pointed to some physical abnormalties--my baby's kidneys
were enlarged, and she was not growing as quickly as expected. Her
head was also very small.
Katie’s Corner
http://www.geocities.com/Heartland/Lane/9538/
Hi! My name is Katie and I'm 4 years old. I have a very rare syndrome
called Cornelia de Lange Syndrome or Brachmann de Lange Syndrome. You
can just abbreviate it if you like to CdLS. It's easier for Mommy and
Daddy to say that way too.
Remembering Adam
http://www.angelfire.com/az/rememberadam/
What can one write about a little boy who knew pain, yet kept his
innocence? Who hadn't yet learned about hatred, discrimination, and
all the adult woes? Who had nothing but love for his friends and
family, and who would have given anything to live, to learn how to
communicate his thoughts? Here are my memories of my brother. No words
will ever do justice to such a beautiful, loving, and gentle soul.
Down on Kailee’s Street
http://www.geocities.com/Heartland/Oaks/7667/index.html
Hello, my name is Kailee Morgan Welsh, but you can just call me Kailee.
I was born with a rare genetic disorder called Cornelia de Lange
Syndrome, or CdLS for short.
Teresa’s Place
http://www.geocities.com/Heartland/Woods/9724/
Teresa Stafford Teresa was born July 14, 1977. The doctor's expected
date for Teresa to be born was around the third week of August. Teresa
weighed 4 lbs. 5 ozs. at birth. At first due to her small size the
doctor was sure she was premature. In just a few hours after birth,
the doctor told us, "There seems to be some problem, she is having
trouble breathing.
Chantells Home Page
http://www.tigger44.fsnet.co.uk/
My name is Chantell (without the e). I am 10 years old. I suffer from
a rare condition called "Cornelia DeLange Syndrome".
