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Disability-related Associations & Organizations (A-Z)
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Offering comprehensive reports on public, private and charter
schools— elementary, middle and high schools. We make it easy to
conduct a thorough investigation, critical in choosing a top school.
Get your child’s academic career off to the right start with Schools
Association of School Administrators
AASA, founded in 1865, is the professional organization for over
14,000 educational leaders across America and in many other countries.
AASA’s mission is to support and develop effective school system
leaders who are dedicated to the highest quality public education for
all children. AASA's major focus is standing up for public education.
801 N. Quincy Street
Arlington, VA, 22203-1730
Education Commission of the States
The mission of the Education Commission of the States is to help
state leaders identify, develop and implement public policy for
education that addresses current and future needs of a learning
707 17th Street
Denver, CO, 80202-3427
Educational Resources Information Center
The Educational Resources Information Center is a national
information system funded by the U.S. Department of Education's
Institute of Education Sciences to provide access to education
literature and resources.
2277 Research Boulevard
Rockville, MD, 20850
Phone: (301) 519-5157
Fax: (301) 519-6760
EducationNews.org calls itself “the Internet's leading source of
GreatSchools.net is a nonprofit online guide to K-12 schools that
provides parents with the information they need to guide their
965 Mission Street
San Francisco, CA, 94103
Fax: (415) 977-0704
Just for Kids
Just for the Kids collects enrollment and state test data from
state education departments to analyze student achievement in core
academic subjects. The JFTK School Reports identify a school's
potential for improvement by comparing it to other schools with
equally or more disadvantaged students. This analysis identifies which
schools are succeeding and which need more help. Our researchers use
this information identify and investigate educational best practice.
4030-2 West Braker Lane
Austin, TX, 78759
National Center for Education Statistics
NCES is the primary federal entity for collecting and analyzing
data that are related to education in the U.S. and other nations.
1990 K Street, NW
Washington, DC, 20006
Phone: (202) 502-7300
SchoolMatch by Public Priority Systems, Inc. is a research and
database service company that collects, audits, integrates, processes
and manages information about public and private elementary and
Phone: (614) 890-1573
on Workforce & Disability - Over eighty organizations offer
a variety of relevant resources and information useful to those
interested in workforce development and youth.
Visit our section on
Job Opportunities & Resources - click
Journals for Parents of Kids with Special Needs - "When my
daughter was diagnosed, I created a health journal to help organize
all of her medical information. Soon, the clinic asked me to make 40
more for the other parents." The Little Acorn now offers many versions
of this book which have been customized to fit specific disabilities.
Visit the website for more details or to order. Available items (New
products added often - see website for current offerings): "Juggling
Autism" Starter Kit, "Juggling Cystic Fibrosis” Starter Kit, "Juggling
Down Syndrome” Starter Kit, "Juggling Cerebral Palsy" Starter Kit,
"Juggling Asthma" Starter Kit, "Juggling Diabetes" Starter Kit,
"Healthy Kids” Starter Kit, "A Woman's Health Journal", and "The
Family Voices of North
Dakota, Inc. - A grassroots network assisting families of children with
special health care needs.
PubMed, available via the NCBI
retrieval system, was developed by the
National Center for
Biotechnology Information (NCBI) at the
National Library of Medicine (NLM),
located at the National Institutes of
Health (NIH). Entrez is the text based search and retrieval
system used at NCBI for all major databases including PubMed,
Nucleotide, and Protein Sequences, Protein Structures, Complete
Genomes, Taxonomy, OMIM and many others. PubMed was designed to
provide access to citations from biomedical literature. Subsequently,
a linking feature
added to provide access to full-text articles at journal web sites,
and other related web resources. PubMed also provides access and links
to the other Entrez molecular biology databases.
Health Finder - As a health
care consumer today, you are faced with many decisions concerning
doctors, prescriptions, hospitals, long term care, health insurance,
and medical privacy. We've brought together some of the best
information on the Internet to help you make these important choices
for yourself and your family. For background on health care
providers, ratings of hospitals and nursing homes, guides to health
insurance, how to report fraud or make a complaint, and privacy
issues, just choose a starting point when visiting their home page.
National Patient Travel Center
Rare Disease Conference Travel
Assistance - Mercy Medical Airlift
provides a transportation service to help families attend rare disease
conferences. The World Congress on Disabilities/Coalition for
PKU & Allied Disorders conference is listed with Mercy Medical Airlift
as a rare disease conference and they may be able to assist families
with free transportation to the convention.
Mercy Medical Airlift can usually arrange
transportation in general aviation aircraft (Angel Flight) to anyone
living within approximately 1,000 miles of conference site at no cost.
For more information, contact
Mercy Medical Airlift,
National Patient Travel Center,
4620 Haygood Rd., Suite 1,
Virginia Beach, VA 23455
Links for Kids & Youth
Visit our section that is totally dedicated to Kids and
Miscellaneous Resource Links
Do you believe that
you may have been wrongfully injured while taking pharmaceuticals?
You can find
information on this website. Note that this listing does not
imply endorsement of the services offered, however, the information
offered may be useful in figuring out where to begin. Some very
popular drugs have been known to cause some very debilitating
side-effects and even death. Better safe than sorry, in my book.
Featured Product: SPIO Orthotic Garment -
SPIO is a snug orthotic garment
that surrounds the body with pressure-touch and mild proprioceptive
input, which promotes body awareness and the release of
calming/modulating chemistry. SPIO’s are useful for decreasing
sensory seeking behaviors (such as excessive touching, crashing and
banging) which leads to improved safely and stability for the child.
SPIO’s patented material is breathable and can be worn alone or
under regular clothing during waking hours.
Ramapo For Children - Ramapo’s mission is to serve children
with a wide range of emotional, behavioral and learning problems in a
dynamic and stimulating learning environment, providing educational and
recreational experiences that promote social, emotional, physical and
intellectual growth. Ramapo’s specific focus is to provide adventure-based
experiential learning programs that develop character, competence and build
community in children from preschool age through late teens, and in
families. Ramapo’s newest initiative, Ramapo Training, provides on-site
staff training and program support for educational and recreational programs
serving at-risk and special needs children.
Support Group Information
Disabled Online Support Group: MDJunction is a health community
focused on becoming a free center for Online Support Groups.
Jonah & The Whale
Helping Families of
Disabled & Chronically ill Children
P.O. Box 981
Mars, PA 16046
Self-Help Group Clearinghouse - Website of the American Self-Help Group
Clearinghouse and the New Jersey Self-Help Group
Clearinghouse, a non-profit, social service agency that provides
information by phone on over 4500 local self-help groups in New
Jersey. Website contains information on starting self-help groups,
statewide training workshops, online newsletter, and contact
information for over 170 local mental health groups (including
anxiety, depression, bipolar disorder, obsessive-compulsive disorder,
eating disorders, families of the mentally ill, dual diagnosis, and
more). Website made possible through partnership with Med Help
International, one of the nation's leading online medical websites,
providing online access to world renowned medical organizations and
experts. The non-profit American Self-Help Group Clearinghouse,
run by St. Clare's Health Services in New Jersey, helps families and
professionals to find and form self-help support groups for almost any
specific illness, disability, addiction, bereavement situation,
parenting, caregiver concern, abuse, or other stressful life
situation. Their keyword-searchable database has over 1,100 national,
international, online, and model groups. If there is no existing
support network in the world for your concern, they provide a registry
and free consultation for those who want to join with others to start
one. Their website at
www.selfhelpgroups.org also has a listing of local non-profit
self-help group clearinghouses worldwide, as well as suggestions for
starting both community and online groups. If you prefer to phone to
get group information or help, the they can be reached at
973-326-6789. If you frequently refer people to such support groups
and would like a hard copy of their database, they recently published
the 7th Edition of their Self-Help Group Sourcebook, which contains
their database, how-to's, research reviews, over 300 additional
national to--free help lines. The 448-page guide costs $18 postpaid,
and may be ordered by phone with a credit card, or by check to: Am.
Self-Help Group Clearinghouse, Attn: Sourcebook, 100 E. Hanover Ave.,
Rm 202, Cedar Knolls, NJ 07927-2020.