Asperger
Syndrome Experts Endorse New Peer Awareness Video
(PDF) Some of the country’s leading experts in Asperger Syndrome have
endorsed a new video designed to help classmates accept and befriend
students with AS, who are now frequently subjected to teasing,
harassment and isolation. The video is titled, "INTRICATE
MINDS: Understanding Classmates With Asperger Syndrome."
The Asperger Society of Michigan and
this website are designed to provide support and information for
parents, children and adults affected by Asperger Syndrome. The
society is comprised of parents and professionals who are committed to
expanding opportunities and support for children and adults with
Asperger Syndrome within and beyond the borders of Michigan.
Studies
from Brenda Myles - Participation Requested
(Ages 8-18)
Brenda Smith Myles, Ph.D. and her
colleagues at the University of Kansas are
undertaking twolarge-scale studies to
better understand children and youthwith
Asperger Syndrome in orderto plan effective
interventions. The firststudy will involve
completion of surveys andinterviews via
phone by parents andchildren/adolescents.
Brenda and her colleagues willassist in
these tasks.In the second study,
children/adolescents with Asperger Syndrome willbeprovided with a software program
that teaches emotions and will be asked to
use it for 2hours per week for 10 weeks.
Parents who have children withAsperger
Syndrome (ages 8 to18) who are interested
in learning more about the studyare asked
to contact Brenda atasdresearch@ku.edu.
MI
Everyday Miracles: A New Support Group
for Parents Children
with Asperger's This group meets at The Cornell Center
in Port Huron (1025 Court, Port
Huron, MI) every third Tuesday of
the month from 7:00 - 8:30 p.m.
For more information call 810-987-9500.
MI
Support Group for
Parents of Children with Asperger's Syndrome
Information
is listed atwww.asperger.org.
The group meets on the 4th Wednesday
of each month from 7:00 p.m. -9:00 p.m. at the Turner
Senior Center, 2401 Plymouth Rd. Suite C, Ann Arbor,
Michigan.
Autism, Asperger
Syndrome and Siblings - During the
past seven months, my wife and I have met an amazing group of people.
In producing two videos about brothers and sisters of kids on the
autism spectrum, we’ve conducted 57 interviews with siblings and
parents. People were incredibly open about their lives. About their
hopes, fears, and challenges. Most of all, about the ways they’ve
found to make things better for their families. We went into these
videos looking for “best practices” about siblings that we could share
with other families. We got that and more.
Suspect Asperger's?
If you suspect Asperger's, ask to have these tests done on your
child: Gilliam Asperger's Disorder Scale(GADS),
Asperger Syndrome Diagnostic Scale ASDS, and for speech and language, do the
Test of ProblemSolving
(preferably the first edition of thistest). This
language test is sensitive to the language deficits
common to Asperger's Syndrome. While children with Asperger's may be highly
verbal, they may alsocontrol the topic of
conversation, talk about their own interests, and be socially inept. This test
helpsuncover those issues.
Asperger's Syndrome:
Guidelines for Treatment and Intervention by Ami Klin, Ph.D., and Fred
R. Volkmar, M.D., Yale Child Study Center, New Haven, Connecticut. Includes:
Introduction, Securing and Implementing Services, General Intervention Setting,
General Intervention Strategies, General Strategies for Communication
Intervention, and Social Skills Training, General Guidelines for Behavior
Management, Academic Curriculum, Vocational Training, Self-Support,
Pharmacotherapy, and Psychotherapy.
Getting Started: Introducing
Your Child to His or Her Diagnosis of Autism or Asperger Syndrome -
Who, what, when, where, how, and why are all important questions parents ask
themselves when problem solving and making decisions about issues in the lives
of their children. Discussing an autism or Asperger Syndrome diagnosis with your
child is a very important issue and one for which many parents seek advice. This
brief article will focus on aspects of explaining your child's diagnosis to him
or her, and about resources that can assist and guide you.
Driver's Education Q and A: Are there any
driver's ed schools that work well with kids who have Asperger's and
High Functioning Autism?
Click here for the answer.
Asperger Syndrome
By Rosalyn Lord
Asperger Syndrome is a developmental
disorder falling within the autistic spectrum affecting two-way
social interaction, verbal and nonverbal communication and a
reluctance to accept change, inflexibility of thought and to have
all absorbing narrow areas of interest. Individuals are usually
extremely good on rote memory skills (facts, figures, dates, times
etc.) many excel in math and science. There is a range of severity
of symptoms within the syndrome, the very mildly affected child
often goes undiagnosed and may just appear odd or eccentric.
While
Asperger Syndrome is much more common than Autism it is still a rare
condition and few people, including professionals, will know about
it much less have experience of it. It seems to affect more boys
than girls. In general terms they find making friends difficult, not
understanding the subtle clues needed to do so. They often use
language in a slightly odd way and take literal meanings from what
is read or heard. They are happiest with routines and a structured
environment, finding it difficult to decide what to do they fall
back on to their preferred activities. They love praise, winning and
being first, but find loosing, imperfection and criticism very
difficult to take. Bad behavior often stems from an inability to
communicate their frustrations and anxieties. They need love,
tenderness, care, patience and understanding. Within this framework
they seem to flourish.
Asperger's Syndrome Written by Stephen M. Edelson, Ph.D., Center for the Study of
Autism, Salem, Oregon
http://www.autism.org/asperger.html
Asperger's syndrome was first described by a German doctor, Hans
Asperger, in 1944 (one year after Leo Kanner's first paper on autism).
Asperger syndrome (also called Asperger
disorder) is a relatively new category of developmental disorder, the
term having only come into more general use over the past fifteen
years. Although a group of children with this clinical picture was
originally and very accurately described in the 1940ís by a Viennese
pediatrician, Hans Asperger, Asperger syndrome (AS) was "officially"
recognized in the Diagnostic and Statistical Manual of Mental
Disorders for the first time in the fourth edition published in 1994.
Asperger’s Syndrome is a neurological
disorder that is often described as a milder variant of autistic
disorder, and both conditions are grouped under the broad diagnostic
category of autistic spectrum disorders, or pervasive developmental
disorders.
OASIS
O nline A sperger S
yndrome I nformation & S upport
As parents of children who are diagnosed
with AS, we understand how essential is it that families of children
diagnosed with Asperger Syndrome and related disorders, educators who
teach children with AS, professionals working with individuals
diagnosed with AS, and individuals with AS who are seeking support,
have access to information.
Asperger
http://www.geocities.com/CapeCanaveral/Hall/1360/asd.html This was written by Rosalyn Lord on behalf of
CASSEL a support group in
East Lancashire. It's aim is to give a parent's perspective on
Asperger syndrome with ideas on how to help and understand our special
children. It draws on many years of personal, practical experience and
the desire to help guide newly diagnosed families to a better
understanding of the problem, without the use of difficult terminology
and jargon.
Recent autism and autism-related research
from Gothenburg is surveyed. In indigenous families, typical autism
seems no more common now than 10 years ago. Genetic factors play a
part in causing autism and Asperger syndrome. Certain medical
syndromes carry a relatively high risk of concomitant autistic
symptoms. Evidence for nonspecific brain dysfunction is often found in
autism and autistic-like conditions. The search for the underlying
clue to the riddle of autism may be futile. Autism might be best
conceptualized as a behavioral syndrome reflecting underlying brain
dysfunction which shades into other clinical syndromes. A new class of
disorders of empathy is proposed.
Asperger Syndrome
The ERIC Clearinghouse on Disabilities
and Gifted Education (ERIC EC), The Council for Exceptional Children
The Purpose of the
Autism Asperger Resource Center (AARC) is to foster the behavioral,
academic, and social development of persons with Autism, Asperger's
Disorder, and related exceptionalities by offering a variety of
services to individuals and support networks.
This directory hopes to help you find the
information you need by categorizing links available for Asperger
Syndrome.
Especially for Grandparents of Children
With Asperger Syndrome By Nancy Mucklow
http://www.udel.edu/bkirby/asperger/grandparents.html
If your grandchild has been newly
diagnosed, then welcome to the world of Asperger Syndrome. It is a
mysterious and sometimes overwhelming world, but it is not one to be
afraid of. Even if you are saddened, disappointed or angry about the
diagnosis, keep in mind that it’s for the best. The earlier the
diagnosis, the earlier the intervention, and the better the prognosis
in the long run.
One Child's Story
http://www.udel.edu/bkirby/asperger/survival_shore.html#Bio
This is adapted from an excerpt of a presentation USING MUSIC TO WORK
WITH AUTISTIC CHILDREN on July 21, 1997 that I gave at the Allegro
School in Cedar Knolls, New Jersey, USA. Since I was giving the
speech, the text is in the third person. - Stephen Shore
Asperger Syndrome
http://www.geocities.com/aspergifted/
Website with excellent
links to autism and Asperger Syndrome related websites and personal
stories.
Pervasive
Developmental Disorder: Asperger Syndrome eMedicine
http://www.emedicine.com/ped/topic147.htm
Asperger disorder is a form of pervasive developmental disorder
characterized by severe persistent impairment in social interactions,
repetitive behavior patterns, and restricted interests. Unlike an
autistic disorder, no significant delay occurs in language development
or cognitive development. Asperger disorder generally is evident in
children older than 3 years and primarily occurs in boys.
How is Social Anxiety Different
Than... Asperger's Disorder?
http://www.socialanxietyinstitute.org/asperger.html
Social anxiety disorder is markedly different than Asperger's
Disorder in that Asperger's is a pervasive developmental disorder
(also called a milder version of autism) and that people with social
anxiety disorder do not display the patterns of behavior
expected in definitions A and B.
Avoiding Unfortunate Situations By Dennis Debbaudt
http://policeandautism.cjb.net/
As a parent of a young man with autism and reporter/researcher on this
topic since 1991, I hope to bring you useful information about autism
and the law enforcement community.
Attacking Asperger's Syndrome:
Practical Parenting
http://www.linktoaustin.com/as/
Attacking Asperger's Syndrome: Practical
Parenting Solutions is a Web-Book written by Lainey Melnick, the
mother of a 13 year old son diagnosed on the Autism Spectrum.
The Asperger's Connection Home
http://www.ddleadership.org/aspergers/
The Asperger's Connection is an inter-active web site that allows
individuals with Asperger's Syndrome, their families and anyone with
an interest in Asperger's to interact and support one another as well
as share ideas and problem solving strategies and suggestions. The web
site is also intended to create access for professionals and public
policy makers so they can learn directly from primary and secondary
consumers.
Allexperts.com is the oldest & largest
free Q&A service on the Internet.
Asperger's Syndrome: A Developmental
Puzzle by Michael McCroskery
http://www.ldaca.org/gram/croskery.htm
Cognitive and social skills, which shape personality and character,
develop throughout life. However, genetic or environmental obstacles
can obstruct development, especially early in life. One such obstacle
is Asperger's Syndrome (AS).
Autism Assistance Dogs are dogs that
provide security for the child and for the parents. In some cases the
dogs are merely placed for emotional, therapeutic reasons. These dogs
become the child’s friend. It is becoming well known, that children
with Autism may develop an emotional relationship with an animal, even
when they have never done so with a human.
MD
Gaithersburg School Tailors Teaching To Help Students Cope With
Asperger’s - Alex was a capable
child with superior intelligence -- and no end of
eccentricities. He would flee noisy school assemblies. He
couldn't bear the smell of the cafeteria. By the end of first
grade, his mother was spending much of the day at Alex's side.
On Thursday, Alex, 10, finished fourth grade at one of the
nation's few public schools with a program tailored to children
with Asperger's. He is popular and well-adjusted, and spends
more and more of his school days in regular classes. The program
at Diamond Elementary addresses one of the most vexing problems
in special education: What to do with a child who is disabled
but who has average to above-average intelligence and is capable
of work at or above grade level? James Ball, who has consulted
nationally on autism, said the Montgomery County effort "should
be looked at as a model program" for teaching children with
Asperger's, "because they are a unique breed of kids, and they
do respond to a variety of unique teaching strategies."
School, Public
System Form Partnership to Serve Pupils With Asperger Syndrome
- Merril Oliver's son, now in seventh grade, could read
at a third-grade level when he was 3 years old. His favorite
bedtime story when he was 4 was his mother's college astronomy
book. Now, he is one several students with Asperger Syndrome who
have enrolled at the Norbel School as part of a new partnership
between the county school system and the private school in
Elkridge, which teaches youngsters in prekindergarten through
grade 12 who have learning and/or language disabilities.
Teaching Kids
With Asperger Syndrome For The First Time -
You're a teacher. You've just found out that you're
going to have a student with Asperger Syndrome (AS) in class this
year. You're in for an interesting year. And that's not coded
language for "brace yourself." It's a real-life perspective that
teaching a child with AS often gives you as many opportunities as
challenges.
20 Ways To Ensure
the Successful Inclusion of Asperger Child in the General
Education Classroom - Children
with Asperger syndrome (AS) have a variety of issues that must be
addressed on a daily basis. Because these children tend to be
high-functioning, many are placed in general education classrooms
in order to receive the best education possible. Teachers working
with children with AS may not be aware of how to provide the best
inclusive environment. The following are strategies and tips that
can be incorporated to help these children adjust and become
successful in the general education classroom.
Appropriate
Educational Placements for Children with Asperger’s Syndrome For more information on Dr. Tony Attwood or to check out
his many publications and resources, visit
http://www.tonyattwood.com.au/. "The child with Asperger’s
Syndrome does not have the behavioral and learning profile of a
child with classic autism, and schools or units for such
children may not be an appropriate option. The child is also not
acutely disturbed and psychiatric services can be reluctant to
provide services for someone with a developmental disorder. The
child may have specific learning problems but not be considered
eligible for services for the intellectually disabled. Thus the
conventional government services often have few resources,
services and policies for people with this syndrome."
This paper is a synthesis of a number of documents relating to the
educational issues confronting children with Asperger's Syndrome,
Autism or a Pervasive Developmental Disorder Not Otherwise Specified (PDDNOS)
in the Autism spectrum. It is written as a document for teacher
information and is equally useful for anyone who cares for children
with the condition.
Asperger's Syndrome: Useful Information
for Teachers
Asperger's Syndrome, or sometimes called
Asperger's Disorder, is one of a group of diagnoses included under the
general term "Pervasive Developmental Disorders". It is sometimes
compared to high-functioning Autistic Disorder. In general, Asperger's
Syndrome is used to describe persons with severe deficits in social
interaction and who display repetitive, stereotyped behaviors without
significant delays in the acquisition of language or in cognitive
functioning.
Asperger's Syndrome Guide for Teachers
Written by the parents of OASIS Asperger
Syndrome Forum, Compiled and Edited by Elly Tucker
Children diagnosed with Asperger syndrome
present a special challenge in the educational milieu. This article
provides teachers with descriptions of seven defining characteristics
of Asperger syndrome, in addition to suggestions and strategies for
addressing these symptoms in the classroom. Behavioral and academic
interventions based on the author's teaching experiences with children
with Asperger syndrome are offered.
Educational Implications: Ideas For
Classroom Management
The applicable educational ideology as
well as quality of available services vary enormously from school
district to school district, across the country as well as within the
various states, and sometimes across time for the same school
district. It is very important that parents become well acquainted
with the following factors involved in securing appropriate placement
and programming for their child.
Specific interventions, e.g. teaching
practices and approaches, behavioral management techniques, strategies
for emotional support, and activities intended to foster social and
communication competence, should be conceived and implemented in a
thoughtful, consistent (across settings, staff members, and
situations), and individualized manner.
General Strategies for Communication
Intervention and Social Skills Training
For most individuals with AS, the most
important item of the educational curriculum and treatment strategy
involves the need to enhance communication and social competence. This
emphasis does not reflect a societal pressure for conformity or an
attempt to stifle individuality and uniqueness. Rather, this emphasis
reflects the clinical fact that most individuals with AS are not
loners by choice, and that there is a tendency, as children develop
towards adolescence, for despondency, negativism, and sometimes,
clinical depression, as a result of the individual's increasing
awareness of personal inadequacy in social situations, and repeated
experiences of failure to make and/or maintain relationships.
Individuals with AS often exhibit
different forms of challenging behavior. It is crucial that these
behaviors are not seen as willful or malicious; rather, they should be
viewed as connected to the individual's disability and treated as such
by means of thoughtful, therapeutic, and educational strategies,
rather than by simplistic and inconsistent punishment or other
disciplinary measures that imply the assumption of deliberate
misconduct.
The curriculum content should be decided
based on long-term goals, so that the utility of each item is
evaluated in terms of its long-term benefits for the individual's
socialization skills, vocational potential, and quality of life.
Specially Designed Instructions for
Educators: IEP Modification/Adaptations/Support Checklist
http://www.udel.edu/bkirby/asperger/IEP_Modif_Checklist.html
The basic format for this document was taken from the Technical
Assistance Manual on Autism for Kentucky Schools by Nancy
Dalrymple and Lisa Ruble. However, this form has been revised to more
accurately describe the modifications and adaptations necessary for a
child who is on the higher functioning end of the autism spectrum.
The Asperger’s (AS) child may have a
powerful predisposition to inertia especially when he is
stressed or tired.This profound lack of energy or ability to
initiate action is seen in the child’s school, home, and social life.
Michigan
Resources, Support Groups, Listservs & Websites
Click here for
information on Social Skills Builders Classes
- Social Skills Builders offers a series of peer group programs
for early childhood through adolescent aged children, who demonstrate
difficulties with social skill awareness, social interactions and
social behaviors.
Social Skills Classes: Oakland County
This program is for elementary kids with
Asperger's Syndrome, PDD-NOS, or High Functioning Autism.
For more information, contact:
Judith Coucouvanis,
Child and Adolescent Psychiatry,
University of Michigan Health Systems, 1500
E. Medical Center Dr., Ann Arbor,
MI 48109-0390, Phone: (734)764-0234,
Fax: (734)936-8907, Email:
coucouv@umich.edu
The Friendship Club:
A free service provided by:The
Autism Society of America-Oakland County Chapter (Michigan) The
Friendship Club is a list of children and young adults with Asperger's
Syndrome, High Functioning Autism or Pervasive Development Disorder.
The primary goal of the club is to provide parents with opportunities
to locate others with similar interests and abilities who may wish to
become friends, set up play dates or create social formal training
groups. Casual family activities and meetings will also be arranged
for all participants to meet in person. The group is not limited to
Oakland County residents, however, members should be within driving
distance of Oakland County. There is
no fee.
Asperger's Syndrome Support Group for parents of
children with Asperger's meets the 4th
Wednesday of each monthfrom 7:00 p.m. to
9:00 p.m.at Turner Senior Resource Center,
2401 Plymouth Rd., Suite C, Ann
Arbor, MI - All parents welcome to this
confidential support group which will include discussion and speakers.
Group seeks to focus on Asperger's, not the total autism spectrum. For
information, call Mary Rumman at 734-439-8613 or e-mail at
mrumman@umich.edu
The Macomb and St. Clair Autism
Society of AmericaSupport Group: Held
on the 3rd Thursday of each month,
St.Ephram's
Church at 17 Mi. and Dodge Park (near VanDyke) in SterlingHeights. For more information email
lindaob725@aol.com.
The Autism Society of
Michigan is committed to empowering individuals with autism and their
families by offering educational resources and materials, workshops,
seminars and other services.
Autism Society of
America / Oakland County Chapter
The Mission of the Autism Society of
America, Oakland County Chapter is to foster knowledge, promote
awareness, provide information and opportunities related to
educational, medical, social and life skills issues for families and
individuals with autism spectrum disorders, and to promote awareness
to the general public in and around Oakland County.
The mission of the Autism Society of
America (ASA) is to promote lifelong access and opportunities for
persons within the autism spectrum and their families, to be fully
included, participating members of their communities through advocacy,
public awareness, education, and research related to autism.
University of Michigan
Autism and Communication Disorders Center
The University of Michigan Autism and
Related Communication Disorders Center (UMACC) is committed to the
integration of research, training, and clinical service.
Parents of children with Aspergers
Syndrome or similar behavioral and/or emotional problems; We meet to
share resources and information, especially in regard to school and
social issues. Located in Northville.
The Gray Center for Social Learning and
Understanding
Dedicated to individuals with autism
spectrum disorders (ASD) and those who work alongside them to improve
mutual understanding. Located in Grand Rapids.
This Michigan-based list is for families
who think their child might have aspergar syndrome or families who
have recently been diagnosed with aspergar syndrome.
U.K. Different
Worlds - Basingstoke, Hants - We are a group of parents, carers,
friends and relatives with a common link. We all have personal
experience of Aspergers Syndrome or other Autistic Spectrum Disorders.
We meet monthly and invite ‘Guest Speakers’ along to the meetings. We
have had visits from Social Services, the Local Education Authority,
Alternative Therapists re. dietary advice etc. We have write ups,
photos, poetry, diagnosis criteria, and much more on our Site, and we
actively encourage both adults and children to write for us.
Asperger Syndrome
Education Network (ASPEN) - ASPEN® is a New Jersey based
non-profit organization providing support and information to families
and individuals whose lives are affected by Autism Spectrum Disorders
(Asperger Syndrome, Pervasive Developmental Disorder-NOS, High
Functioning Autism), and Nonverbal Learning Disabilities including:
Education about the issues surrounding the disorders. Support in
knowing that they are not alone, and in helping individuals with ASD's
and NLD achieve their maximum potential. Advocacy in areas of
appropriate educational programs, medical research funding, adult
issues and increased public awareness and understanding.
Parent Sharing:
Autism-related Resources for Teens & Pre-Teens w/High Functioning
Autism or Asperger Syndrome "A couple of books that I've heard are
helpful: "Teaching Your Child the Language of Social Success" by
Marshall and Nowicki and "I Can Problem Solve" by Myrna Shure. There
is also a yahoo group for girls with autism. I've heard they have
discussions about the onset of puberty and middle school topics quite
a bit. It's called Autism_in_Girls. You can find information about the
group at
http://health.groups.yahoo.com/group/Autism_in_Girls." - Barb B.,
Ann Arbor, MI
Autism is a complex developmental
disability that typically appears during the first three years of
life. The result of a neurological disorder that affects the
functioning of the brain, autism and its associated behaviors have
been estimated to occur in as many as 2 to 6 in 1,000 individuals
(Centers for Disease Control and Prevention 2001). Autism is four
times more prevalent in boys than girls and knows no racial, ethnic,
or social boundaries. Family income, lifestyle, and educational levels
do not affect the chance of autism's occurrence.
The Asperger Syndrome Coalition of the
U.S. is a national nonprofit organization committed to providing the
most up-to-date and comprehensive information on
Asperger Syndrome and related conditions.
Initially working out of Helen Green
Allison's back room, with a handful of members and little funding, the
NAS has come a long way in 39 years. Today, the Society has grown into
the UK's foremost organisation for people with autism and those who
care for them, spearheading national and international initiatives and
providing a strong voice for autism.
ASPIRES is an on-line resource for
spouses and family members of adults diagnosed or suspected to be on
the autistic spectrum. Our approach to one another and towards our
"significant others" is directed towards solving problems in our
relationship with a spectrum-sitting spouse.
FAAAS, Inc.™
Families of Adults Afflicted with
Asperger's Syndrome
Our mission is to offer support to the
family members of adult individuals afflicted with Asperger’s
Syndrome. Our goal is to educate the public to the existence of
Asperger’s Syndrome in the ADULT population and to bring awareness of
this neurological disorder and its ramifications on the ‘whole’ family
to the medical communities who are directly or indirectly
involved. Another key aspect to our work is to give the families a
measure of reassurance so they can validate their concerns and
frustrations as concrete issues rather than simple ‘family problems’.
Asperger's Syndrome Support Network (Queensland)
Inc.
The Society exists to increase awareness of autism, together with well
established and newly developed approaches in the diagnosis,
assessment, education and treatment. The main goal is to improve the
quality of life for persons with Autism.
The purpose of the autistics.org project
is to connect autistic people with the services we need to live whole
and happy lives. The immediate goal of autistics.org is to build a
global database of information and resources by and for persons on the
autistic spectrum.
A community of persons with, or affected
by, Asperger's Syndrome. A place to share information, receive
support, ask questions.
ASPERGER Listserv (Asperger Syndrome Support mailing list
adjunct to OASIS)
ASPERGER is primarily a resource for parents of AS/PDD/high
functioning autistic kids, but it has a vibrant and active contingent
of AS adults as well, some of whom are themselves parents of AS/PDD/HFA
kids. ASPERGER is a private list. Contact the list owners at
ASPERGER-request@maelst rom.stjohns.edu to subscribe. ASPERGER was
formerly known as
AS-Support@UDel.edu , and was maintained at the University of
Delaware by its founder, Barb Kirby, until its move to St. John's
University in March 1997.
AUTINET Listserv (discussion list on Autism, especially HFA
and AS)
AUTINET's aim is to be a point of unity between autistic/AS people,
their parents, friends and helpers, and neurologists, psychiatrists,
psychologists (both clinicians and researchers) in the field. To
subscribe, contact the list's owner, Peter Wise, at
autinet-request@iol.ie or
autinet.wise@iol.ie.
Stacking
the Deck for Family Holidays - It’s
family holiday gatherings season. So, do you feel anticipation or
anxiety? If you have a child with an autism spectrum disorder, you
might feel a bit of both.
Who's To Know?
Disclosing Asperger Syndrome - Your son or daughter has
Asperger Syndrome. Who do you tell? Who do they tell? This can be a
tough decision. There are definitely two sides to disclosure issues.
Personally, I'm in favor of being as open as possible with people who
are going to have routine contact with your child - and that includes
other kids. But it's an individual and family decision.
Discovering Asperger
Syndrome - Getting a diagnosis of Asperger Syndrome for your
child is sort of like getting hit by a slow freight train. Usually,
you know something's wrong. Maybe you got worried. Maybe teachers or
others urged you to get your child checked out. Maybe, like my wife
and I, you went through several other diagnoses first. But even though
you knew something was coming, you still feel the impact when you get
the official word.
Practicing
Social Skills - When's the last time you got frustrated because you told
your child not to do something, and two minutes later he or she is doing it
again? I think of this as "Teflon Shelf Syndrome." If you consider the brain as
a storehouse with shelves, some kids seem to have some shelves that are coated
with Teflon - and are tilted so things slide off easily. So...maybe it's not
your son's fault that his finger strays to his nostril. It's not your daughter's
fault she doesn't make eye contact when you speak to her. Maybe it’s the way
their brains work.
Autism and
the Pew Lady - I'm writing on behalf
of the mother of a five-year old girl with autism - and for me and my
son. If you're not familiar with autism and you've ever wondered what
you might do to help, here's a heads up. I ran into the mother I
mentioned at the Autism Society of North Carolina annual conference in
Raleigh. She described how her autistic daughter had become upset in
church and caused a small disturbance.
Asperger
Syndrome: Classroom Success Next Year - Do you want next year
to be different? If you want the coming school year to be better for
your child with Asperger Syndrome, whip out a sheet of paper. Now,
let's do a review of what worked this year and what you'd like to see
carried over into next year. What did Jimmy like about school? What
did Mary do best in? What did the teachers do that worked? What did
you and your child do that worked? What do you want to make sure you
capture and repeat next year?
Asperger Syndrome:
Put Those Kids To
Work! - We’d do anything for our kids
with Asperger Syndrome. Is that always a good thing?Hmmmmmm. Hard to say. It’s good if we can figure out what we
need to do for our kids versus what they need to do for themselves.
And that’s not always easy.
Asperger
Syndrome and Mom's Secret Weapon (A Mother's Day Reflection)
- Want to be more effective in helping your child? Want to
give him the best possible training to deal with AS and succeed? Then
you need to access a secret weapon. You. Your immediate reaction may
be, "Yeah, right! I'm already doing everything I can. More than I can!
In fact, I'm so stressed that just the thought of doing more threatens
to shut me down."
IN 'Unlimited
Potential' Program Offers Hope - Alex Harvey is a little
preoccupied and logical to the point of irritation. A typical gifted
child. In truth, the 10-year-old Munster boy has Asperger's disorder.
Many cases of this syndrome go undiagnosed because it is assumed that
a child with a high IQ is bound to act differently. According to the
American Psychiatric Association, Asperger's is one of five disorders
that fit under the umbrella of Pervasive Developmental Disorders (PDDs).
Others include autistic disorder, childhood disintegrative disorder
and Rett's disorder. While the association classifies Asperger's as a
separate disorder from autism, many professionals still consider it to
be a less severe form of autism.
Asperger's Syndrome: The Invisible Disability - "You could
teach a child the theory of relativity once and he'd get it. But you'd
have to tell him the rules for lining up for recess 500 times."
A Life Out of
Sync: Asperger Syndrome - High-functioning autism. People with
this disorder don't get the joke, or most other interpersonal cues
that society takes for granted. They have difficulty with
communication and social skills, and can become preoccupied with one
narrow subject. But they are typically bright and often excel in math,
science and high-tech. Unrecognized and untreated until recently, the
disorder is now the focus of research, classes and hope.
Newsweek: Girls,
Boys and Autism - Is this mysterious
and sometimes devastating condition just an extreme version of normal
male intelligence? That’s one provocative new theory. Behind autism’s
gender gap.
Autism's little brother
- For kids like Ben, leading a normal childhood becomes a wrenching
struggle, due to Asperger’s Syndrome. And it isn’t easy on the
neighbors.
TN
LOVE UNLEASHED: 4-legged
therapist helps teen learn to socialize, verbalize - Jim and Laurie Bond say they owe a lot to their
dog, TJ. The couple credit the golden retriever with bringing their
14-year-old son Jeb out of a shell, transforming him from a loner who
seldom communicated into a more social, active teen.
Asperger Syndrome:
Writer's Corner - What The DSM IV means to me.... by A Woman With AS
http://www.udel.edu/bkirby/asperger/asmeans1.html
Several people have asked me what it's like to have Asperger's
Syndrome and have also asked for a better understanding of the DSM
criteria. I pulled out some letters and articles that I've written and
grouped them with my understanding of the diagnostic criteria.
Making the Transition
from the World of School into the World of Work Temple Grandin, Ph.D., Assistant Professor, Colorado State
University
http://www.autism.org/temple/transition.html
During my travels to many autism conferences I have observed many sad
cases of people with autism who have successfully completed high
school or college but have been unable to make the transition into the
world of work. Some have become perpetual students because they thrive
on the intellectual stimulation of college. For many able people with
autism college years were their happiest (Szatmari et al., 1989).
The
Little Professor Syndrome By LAWRENCE OSBORNE, The New York Times
Magazine
http://www.aspergernyc.com/little_professor_syndrome.htm
Scholars
have retroactively applied the Asperger's label to oddball
intellectuals ranging from Vladimir Nabokov to Béla Bartok to Ludwig
Wittgenstein.
When A
Child Can't Relate: Asperger's in Parade Magazine by Sheryl Flatow
http://www.aspergernyc.com/asperger-parade.htm
When Tyler Douglass was 18 months old, he
was so articulate that people thought he might be gifted. But, as he
grew, his mother saw a very different child.
Asperger's Syndrome presents challenges to an Iowa family Jessica Tarbox, digital
iowa staff reporter, Drake University
http://www.drake.edu/journalism/digitaliowa/aspergers.html Katie Roberts, an Iowa child,
has often been lumped together with learning-disabled children in
school, linking her, in the minds of her peers and teachers, to
children who struggle in classes due to learning disabilities.
The lost boy Guardian Unlimited
http://www.guardian.co.uk/Archive/Article/0,4273,3883045,00.html
Lewis bites, swears and bullies; he always has. His mother sought
professional help, his school opted for permanent exclusion. Yet in
all the years of trauma, no one suggested autism. Jill Dawson
describes the battle to understand her son.
These are the official diagnostic
criteria (taken from DSM-IV, the American Psychiatric Association's
Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition)
for the "pervasive developmental disorders", including autism and AS.
The
Discovery of "Aspie" Criteria by Attwood and Gray
Making any
diagnosis requires attention to weaknesses, the observation and
interpretation of signs and symptoms that vary from typical
development or health.
As defined in DSM-IV (the most recent
Diagnostic and Statistical Manual of the American Psychiatric
Association, 1994), the tentative criteria for AS follow the same
format, and in fact overlap to some degree, the criteria for autism.
Several similar diagnostic concepts
originating from adult psychiatry, neuropsychology, neurology, and
other disciplines share, to a great degree, the phenomenological
aspects of AS.
Qualitative Impairments in Reciprocal
Social Interaction & Communication
Although the social criteria for AS and
autism are identical, the former condition usually involves fewer
symptoms and has a generally different presentation than does the
latter.
Validity and Neuropsychological
Characterization of Asperger Syndrome: Convergence with Nonverbal
Learning Disabilities Syndrome
By A. Klin, F. R. Volkmar, S. S. Sparrow,
D. V. Cicchetti, and B. P. Rourke
Although autism has been widely
recognized as the prototypic pervasive developmental disorder (PDD),
various other diagnostic concepts with features somewhat similar to
autism have been described (Klin & Volkmar, 1995).
One of the first indicators of motor
clumsiness is that some children with Asperger's syndrome learn to
walk a few months later than one would expect (Manjiviona and Prior
1995).
Girls With Social Deficits and
Learning Problems: Autism, Atypical Asperger Syndrome or a Variant of
These Conditions By Svenny Kopp and Christopher Gillberg
In our center, for many years now, we
have come across girls who have severe social and communication
impairments – and restrictions in their behavioral repertoire – but
who do not clinically present with the picture usually
associated with autism.
Asperger Syndrome (AS) is a severe
developmental disorder characterized by major difficulties in social
interaction, and restricted and unusual patterns of interest and
behavior.
Asperger syndrome: a clinical account Lorna Wing, from the MRC Social Psychiatry Unit, Institute of
Psychiatry, London
http://www.mugsy.org/wing2.htm
Synopsis - The clinical features, course, aetiology, epidemiology,
differential diagnosis and management of Asperger syndrome are
described. Classification is discussed and reasons are given for
including the syndrome, together with early childhood autism, in a
wider group of conditions which have, in common, impairment of
development of social interaction, communication and imagination.
The Syndrome of Hyperlexia vs. High Functioning Autism and
Asperger's Syndrome
http://www.hyperlexia.org/gordy001.html
When we first met Abie at the age of three. he was very active, had
temper tantrums, was echolalic, and did not appear to understand much
of what was said to him.
The
following questionnaire is designed to identify behaviors and
abilities indicative of Asperger's Syndrome in children during their
primary school years.
Psychologist Simon
Baron-Cohen and his colleagues at Cambridge's Autism Research Center
have created the Autism-Spectrum Quotient, or AQ, as a measure of the
extent of autistic traits in adults.